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Growth Hormone Shots

oneqtrceliac

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oneqtrceliac Newbie
oneqtrceliac
Posted

My son was diagnosed with celiac when he was 3 1/2. We've adhered strictly to the diet. However, after leaving the coveted 10% on the growth chart (at age 2) and plunging into the unknown abyss below, he has never recovered to make it back on the chart. Now at 9, his GI recommended he get tested for growth hormone deficiency. After numerous heartwrenching tests, the endo confirmed that he is growth hormone deficient. She mentioned that about half of celiac kids are found to be growth hormone deficient. So, I'm just wondering if everyone else has had their child tested and if they receive shots. Thanks!

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ravenwoodglass Mentor
ravenwoodglass
Posted
My son was diagnosed with celiac when he was 3 1/2. We've adhered strictly to the diet. However, after leaving the coveted 10% on the growth chart (at age 2) and plunging into the unknown abyss below, he has never recovered to make it back on the chart. Now at 9, his GI recommended he get tested for growth hormone deficiency. After numerous heartwrenching tests, the endo confirmed that he is growth hormone deficient. She mentioned that about half of celiac kids are found to be growth hormone deficient. So, I'm just wondering if everyone else has had their child tested and if they receive shots. Thanks!

All I can tell you is how very, very much I wish we had pushed even the issue of testing with our pediatrician. If there was anything I could do to help my son achieve even that coveted 10th percentile spot I would. Your doctor has tested and found the deficency. These shots are very effective and could make a real difference in his selfimage and employability in young adulthood.

debmidge Rising Star
debmidge
Posted

would the GH shot work in a weight debilitated celiac (gee, take my husband for example) adult as well?

ravenwoodglass Mentor
ravenwoodglass
Posted
would the GH shot work in a weight debilitated celiac (gee, take my husband for example) adult as well?

You could ask your doctor or an endocrinologist. From my understanding from a growth standpoint it is too late for my DS to benefit from this because his growth plates have fused. I don't know if it is ever given to help someone gain weight or if it would even work for that. My DS and I used gluten-free protein powders and lots of chocolate Instant Breakfast powder, not the readymade. I even put the instant breakfast in my coffee when I was still dairy intolerant.

Guest tracey and emma
Guest tracey and emma
Posted

my friends son has growth hormone. don´t know much about it but this was considered for emma.

silly question we are in the depths below all centile line and will need tabs at the bottom of the page soon!

but at the moment she follow a line under the last centile on the chart.

they told me she will always be small, and probably now never get back on a centile line.

as long as she follow it below thats ok and she is fine in herself then they won´t worry just wondered if per-haps it might be the same for your son?

tracey

oneqtrceliac Newbie
oneqtrceliac
Posted
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My son always was below the %age line but followed his own curve. The pediatrician always said that was okay since he was parallel to the curve although definetely below. He's nine and 49" now. I haven't started the shots yet - paperwork and insurance but hope to start in the next few weeks.

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