Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help I Feel Awfull


taz sharratt

Recommended Posts

taz sharratt Enthusiast

had another constapation attack, only been 4 days but its severe this time, my tummy is so swollen that i cant fit in to my trousers and i look like im 7 months pregnant,and my belly is rock solid hard, the pain in my tummy is worse its actually throbbing and feels like labour pains!! i feel sick and got gas and my head is banging and im a bit emmotional too. ive tried my fruit smoothies and apple juice and nothing, the last straw came today at dinner when i couldnt eat ( i was hungry) my tummy just wouldnt allow any more food in, it was full. i know im gonna pay for this later and it was a bad thing i did but i didnt have anything to lose at thatpoint so i took 20 laxatives, ive had to take 16 before in the past before it worked so im hopeing its gonna work. im desperate!!! i know we al get D ( and i do too) but why do we get constapation ? or is this one just me?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
had another constapation attack, only been 4 days but its severe this time, my tummy is so swollen that i cant fit in to my trousers and i look like im 7 months pregnant,and my belly is rock solid hard, the pain in my tummy is worse its actually throbbing and feels like labour pains!! i feel sick and got gas and my head is banging and im a bit emmotional too. ive tried my fruit smoothies and apple juice and nothing, the last straw came today at dinner when i couldnt eat ( i was hungry) my tummy just wouldnt allow any more food in, it was full. i know im gonna pay for this later and it was a bad thing i did but i didnt have anything to lose at thatpoint so i took 20 laxatives, ive had to take 16 before in the past before it worked so im hopeing its gonna work. im desperate!!! i know we al get D ( and i do too) but why do we get constapation ? or is this one just me?

If you took 20 laxitives and have not had a bowel movement you need to get to the hospital. Are you running a fever at all? You say you have gas but is your tummy rumbling? If it is not making noise again get thee to the ER. The rock hard tummy worrys me, do you have diverticulosis? If so go to the ER. Seem a little repititious sorry but I'm a bit concerned. Thats a lot of laxitive to take. I hope everything is okay.

Guest Robbin

I agree with ravenwoodglass-this sounds like an emergency. If you can't get to a hospital, at least try an emema or suppositories. At this point you are blocked and everything you put in your mouth is going to just sit there and "brew". Try to get to a hospital, though. Keep us posted and take care.

TCA Contributor

Impactions are a VERY serious medical condition. I used to work in a retirement community and one lady almost died before they realized what it was. It is still possible to have somewhat of a BM with an impaction, but alternating from D to C is one symptom. You really need to see a dr.!!!!!!

Daxin Explorer

Taz,

How much water are you drinkning? Strictly increasing your fiber intake will not do it. You need to drink water.

Apple juice is about the WORST thing to drink when you are backed up. You should avoid everything in the BRAT diet (bananas, rasins, apples, toast.) THose things combat D, not constipation.

If it has been as long as you say, you should go to the hospital!!

With that many laxitives to combat the problem everytime, there is also a risk that your system can become dependant on them...again, a trip to the local ER, or your doc for some guidance perhaps.

IT is sounds to me like this is getting very serious. More caffiene will only make theproblem worse at this point because it will dehydrated you further and compound your problem.

Many prayers and good luck!

zip2play Apprentice

Before you take that many laxatives, why not do an enema? That is almost guaranteed to break the blockage!

Please get help!

Monica

L.A. Contributor

Taz: I hope you're okay. Once you get this under control, you may want to try fresh pineapple or pineapple juice to help keep you a bit more regular. I know not all things workl for all people but this really helps me after an episode of D and i don't 'go' for several days--let us know how you made out. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



taz sharratt Enthusiast
Taz: I hope you're okay. Once you get this under control, you may want to try fresh pineapple or pineapple juice to help keep you a bit more regular. I know not all things workl for all people but this really helps me after an episode of D and i don't 'go' for several days--let us know how you made out. :)

got home today, went to the hospital who addmitted me immediatly, had an x-ray which found i had some kind of mass in my bowel which they said was an obstruction in my bowel, then had pethadine ( lovely) for the pain, seen by the consultant who said " you dont get constapation with celiac and you certainly dont get pain, no no it has to be something else" at this point i wasnt just upset i was confused, to be told that i doubted if i had celiac at all, anyway he wanted me to havea scan to see what was happening, i agreed, so i waited and i waited and i waited, in the end they had to send me home to wait for an appoitment as there was no space for mein radiology, i was tamping mad, i came home and decided straight away that i was going privealy to see someone, as i left the hospital i spokt to a registra who looked at my notes and said i had sespected pelvis inflamatory desease, i was hopping mad as i know that is an std and i have been happliy married for more than 10 years and have had numerous swabs done cos of a prvious thrush problem , all come back negetive by the way for any infection as have my husband! can someone please explain to me what the **** just happend!!!! ( sorry )

got home today, went to the hospital who addmitted me immediatly, had an x-ray which found i had some kind of mass in my bowel which they said was an obstruction in my bowel, then had pethadine ( lovely) for the pain, seen by the consultant who said " you dont get constapation with celiac and you certainly dont get pain, no no it has to be something else" at this point i wasnt just upset i was confused, to be told that i doubted if i had celiac at all, anyway he wanted me to havea scan to see what was happening, i agreed, so i waited and i waited and i waited, in the end they had to send me home to wait for an appoitment as there was no space for mein radiology, i was tamping mad, i came home and decided straight away that i was going privealy to see someone, as i left the hospital i spokt to a registra who looked at my notes and said i had sespected pelvis inflamatory desease, i was hopping mad as i know that is an std and i have been happliy married for more than 10 years and have had numerous swabs done cos of a prvious thrush problem , all come back negetive by the way for any infection as have my husband! can someone please explain to me what the **** just happend!!!! ( sorry )

sorry i should also mention that they did give me something for the constapation, and i did eventually go, although it was D.

Girl Ninja Newbie

So did they fix the obstruction, or did they just do nothing?? Don't you just want to shake a doctor sometimes? I'm sorry. If you go back, go armed with Celiac literature. These doctors need a lesson.

TCA Contributor

An obstruction sounds like an impaction. We once had a foster son with horrible uncontrollable D. Turned out he had an obstruction the size of a grapefruit and some D was leaking around it. He had no control because the impaction had taken the urge away. You really need to be see soon!!!!!!!

ravenwoodglass Mentor
, as i left the hospital i spokt to a registra who looked at my notes and said i had sespected pelvis inflamatory desease, i was hopping mad as i know that is an std and i have been happliy married for more than 10 years and have had numerous swabs done cos of a prvious thrush problem , all come back negetive by the way for any infection as have my husband! can someone please explain to me what the **** just happend!!!! ( sorry )

Don't freak out over the PID question. This can come from many things and is not solely a sexually transmitted condition. Try to ignore their ignorance of celiac, as we all know it can cause severe C, I suffered with C for many many years and have had more than one impaction before my system switched over to constant D. I am glad they were able to give you something to get you 'going'. I hope you are feeling better today.

taz sharratt Enthusiast
So did they fix the obstruction, or did they just do nothing?? Don't you just want to shake a doctor sometimes? I'm sorry. If you go back, go armed with Celiac literature. These doctors need a lesson.

no they didnt fix anything just told to wait for mt appoitment for scan. and yes i could have bi**h slapped him all the way to london and back!

Don't freak out over the PID question. This can come from many things and is not solely a sexually transmitted condition. Try to ignore their ignorance of celiac, as we all know it can cause severe C, I suffered with C for many many years and have had more than one impaction before my system switched over to constant D. I am glad they were able to give you something to get you 'going'. I hope you are feeling better today.

so what else could cause this PID condition. when i heard that i did freak. i do feel better today and my tummy has gone down although im wacked and my boys said i lokked tired, i plan to have a lie in tommorow.

twink Newbie

Before I got diagnosed I would switch between V, D AND C. Usually V and D came together at the SAME time. Then C would come. I seriously didn't go for 6 days once. 6 DAYS! They gave me laxatives that worked, but made be feel real sick, bloated and my belly was sticking out like I was pregnant, it hurt sooo bad, I swear laxatives do more damage than good, so I stopped taking them. I have been fairly regular now with no big surprises. Please let us know what the doctors tell you to do next.

ravenwoodglass Mentor
no they didnt fix anything just told to wait for mt appoitment for scan. and yes i could have bi**h slapped him all the way to london and back!

so what else could cause this PID condition. when i heard that i did freak. i do feel better today and my tummy has gone down although im wacked and my boys said i lokked tired, i plan to have a lie in tommorow.

I had repeat bouts of this for a while along with urinary tract infections, for me it was linked to my constant D and accidents. Anytime bacteria gets into that area of the body it can cause PID, it doesn't have to be linked to sexual activity. There is a link between undiagnosed gonnorhea and PID and that got a lot of press, and rightly so but it isn't the only cause.

  • 3 weeks later...
andrew1234 Newbie

Dear Taz,

It sounds like you have "intestinal obstruction" which could be due to a number of reasons. In your case judging by the diagnosis of PID, it is most likely due to an intestinal "adhesion". "Adhesion" means a loop of your intestine is adhering to the internal wall of your abdomen. Then the normal intestine enters the adhering loop and gets "strangulated" producing the obstruction. This may be hard to visualize but think of it like a noose around a rope (with the adhering loop being the noose and the normal intestine being the rope) This kind of intestinal adhesion occurs after the healing of PID. In your case PID is definitely not caused by Gonorrhea but probably Streptococcus or Staph. Did you have any gynecological surgeries in the past? I am asking because this is usually the way these organisms enter the pelvis and cause PID.Once they cause PID they can enter the peritoneal cavity (where the intestines are located) and cause peritonitis (which is just infection of the intestinal cavity), peritonitis causes bleeding and formation of a clot or scar between the intestines and the wall of the abdomen. So then that causes adhesion. Anyway, I hope this helps to clear up your concerns.

-Andrew

Rikki Tikki Explorer

Taz:

How are you feeling? Did you go back to the doctor?

Lisa Mentor

Andrew, you really sound like you know what you're talking about regarding the medical field.....Very informative, and thank you.

Lisa

taz sharratt Enthusiast
Taz:

How are you feeling? Did you go back to the doctor?

had another attack of C last week, not so bad this time, went to the hospital but this time it was so full there and i had the boys with meso went to the pharmacy spoke to her about symptoms and she said to try an enema, didnt know i could by them otc, i bought 2 and it did work to some egree, not as much as i thought it might, but the pain stopped and my belly went down. im seeing my private consultant on monday 17. still waiting for the scan and havent seen nyone since , im told he doctors i need to be seeing are very busy with bowel cancers and such like so m afraid my problems have to wait a bit longer untill my number comes up, nhs are infamous for waiting lists to be seen by specailists. will post on board what the consultant says on monday 17.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.