Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently Diagnosed Celiac And Also Type I - Juvenile Diabetic - Anyone Else?


collins3

Recommended Posts

collins3 Newbie

At some point, I think I will "get this" but I'm six months into diagnosis of being a Celiac. I found out on January 19, 2006. Also, I've had Type I - Juvenile Diabetes since age 5. I'm now 31 years old and have a one year old son, who is perfectly healthy and shows no signs of Celiac or diabetes thus far. Diabetes does not run in my family, and neither does Celiac that we can find.

What do you do on a daily basis that tastes good? How do you vary what you eat for lunch when you work? What do you buy and eat at home to snack on that you "trust"?

After being diagnosed in January, we thought that the episodes I was having were triggered when I started to "wean" my son from breastfeeding. My body basically said, enough is enough, if you don't me anymore, then we'll tell you how we really feel. And that was it. Amazingly, my blood sugars did fine, I wear an insulin pump and I test about 6 times a day. My diabetes has been in excellent control for over 6 years now.

I'm just really tired of being hungry! I like potatoes and rice and thankfully, I think I can eat corn just fine so far. About 6 weeks after being tested, my system finally was "back on track", and I felt great. Then, around 5 weeks ago, I seemed to have "messed up" somewhere along the line, I'm quite sure it was when I went out to eat while on vacation in Canada in mid-May. I have not been able to get my system back on track again.

Also, there are days where I'm tired of the same old vinegar and oil dressings for salad. I'm slightly over the salads. What do you do? What's your favorite snack? I find I eat a lot of dried fruits and nuts these days as a filler. I work for a law firm 4 days a week and when I'm at my desk, I like to snack on something. I'm not overweight, always maintained a somewhat lean and muscalur petite figure. I've played tennis my whole life competively so I'm sure that has always helped, but these days I just don't have the energy to keep it up. I've lost more weight since being on a Gluten-Free Diet.

I tried to make a Gluten Free pizza the other night, it was horrible. Chewy and tasteless.

Any words of wisdom is much appreciated. thankfully, I know how to control my diabetes just fine, it's this new obstacle that seems to be causing the frustration.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TCA Contributor

My 2 kids are celiac, and I think I am, and my husband has type 1 diabetes. My daughter is also allergic to dairy and eggs. It's fun to try to incorporate all the different diets. I'm PMing you some ideas.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.