Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently Diagnosed Celiac And Also Type I - Juvenile Diabetic - Anyone Else?


collins3

Recommended Posts

collins3 Newbie

At some point, I think I will "get this" but I'm six months into diagnosis of being a Celiac. I found out on January 19, 2006. Also, I've had Type I - Juvenile Diabetes since age 5. I'm now 31 years old and have a one year old son, who is perfectly healthy and shows no signs of Celiac or diabetes thus far. Diabetes does not run in my family, and neither does Celiac that we can find.

What do you do on a daily basis that tastes good? How do you vary what you eat for lunch when you work? What do you buy and eat at home to snack on that you "trust"?

After being diagnosed in January, we thought that the episodes I was having were triggered when I started to "wean" my son from breastfeeding. My body basically said, enough is enough, if you don't me anymore, then we'll tell you how we really feel. And that was it. Amazingly, my blood sugars did fine, I wear an insulin pump and I test about 6 times a day. My diabetes has been in excellent control for over 6 years now.

I'm just really tired of being hungry! I like potatoes and rice and thankfully, I think I can eat corn just fine so far. About 6 weeks after being tested, my system finally was "back on track", and I felt great. Then, around 5 weeks ago, I seemed to have "messed up" somewhere along the line, I'm quite sure it was when I went out to eat while on vacation in Canada in mid-May. I have not been able to get my system back on track again.

Also, there are days where I'm tired of the same old vinegar and oil dressings for salad. I'm slightly over the salads. What do you do? What's your favorite snack? I find I eat a lot of dried fruits and nuts these days as a filler. I work for a law firm 4 days a week and when I'm at my desk, I like to snack on something. I'm not overweight, always maintained a somewhat lean and muscalur petite figure. I've played tennis my whole life competively so I'm sure that has always helped, but these days I just don't have the energy to keep it up. I've lost more weight since being on a Gluten-Free Diet.

I tried to make a Gluten Free pizza the other night, it was horrible. Chewy and tasteless.

Any words of wisdom is much appreciated. thankfully, I know how to control my diabetes just fine, it's this new obstacle that seems to be causing the frustration.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TCA Contributor

My 2 kids are celiac, and I think I am, and my husband has type 1 diabetes. My daughter is also allergic to dairy and eggs. It's fun to try to incorporate all the different diets. I'm PMing you some ideas.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    2. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    Mike Maurillo
    Newest Member
    Mike Maurillo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.