Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heaven Through Hell?


Papa-Hen

Recommended Posts

Papa-Hen Rookie

Folks,

I'm new here.

You all seem to do much better immediately upon going gluten free.

Having had mch success especially in losing weight since quitting wheat in November, I recently learned enough to get rid of the next level of gluten from my diet. I have since had a bout of what I hope was my body releasing the many toxins that had collected over the years.

(It has been a very rugged 2+ weeks...I'd really love to learn that it's not just extreme anxiety.)

Doing better, but not yet good--hopefully, very soon.

Any advice?

Thanks,

- Henry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice

Hi Henry, welcome on the board!

I did feel better in some ways immediately after going gluten free, but also worse in some others. And the first few months were a rollercoaster of better days and worse days. So your experience sounds quite normal to me. :)

Pauliina

Guest laferriere

Henry,

I am new as well, and the first two months have definitely been up and down. In fact, the first month some of my long-term symptoms were better but I developed new and different symptoms for awhile. I am still having good days and bad days and still not having brilliant nights. Please hang in there; hopefully, things will get better eventually. Good luck!

lisa

DingoGirl Enthusiast

Hi Henry, and welcome.

Ditto to what the above foks said. I felt better - amazingly better - after about a week gluten-free. And then plummetted so deeply I had to go back on an antidepressant. Had ups and downs but now it's pretty stabilzed, five months in.

Keep at it! You'll go through interesting physical and emotional changes, but press on, keep reading and reading here, learn all you can, and make sure you truly have elimnated ALL gluten (toothpaste, chapstick, vitamins, meds, secret ingredients).

Stick wtih it and learn all you can, and things will get better. Also, think about the possibility of giving up dairy, at least for a while, while you heal.

blessings -

MNB Newbie

Hi Henry:

I am in the middle of my 3rd week of gluten-free and it has been anything but stable. The first week- amazing difference and then varying days of good and bad since. Probably mostly bad. I know a few times I tried to order at restaurants (I'm just not a home cooking kind of gal) I must have been exposed to some gluten somehow. But other times I was certain nothing I ate could have been contaminated - but I still got the stomach pains, brain fog ect.

I think it just takes a while for it all to get out of your system - I'm looking forward to having more good than bad, but for now I guess we just cope as best as we can :huh:

Good Luck Henry -

Michelle

TCA Contributor

Thre are a lot of ups a downs in the beginning. I think a lot of this for me was really learning the diet. I made a lot of mistakes in the beginning, which caused a lot of issues for me. Don't mean to state the obvious, but are you sure everything is really gluten-free? I made so many mistakes to start with, I guess I just assume others could too! ;)

Lister Rising Star

yeah, i was amazed by the diffrence in the first 2 weeks of going gluten free, i lost my whole apple belley and everything, but withen another week new symptoms started to apear and some left, its been 3 months now and its still a rollercoaster, i dont know if it just takes a long time to work out all the gluten in your body or if the healing processe itself just sucks, but hopefully you will be better soon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Papa-Hen Rookie

Folks,

Cautious optimism...

I'm becoming more optimistic that this is my body responding to the release of a toxic load that it is sheading quite rapidly, now.

External stressors are quite high, so let's give them and any consequential anxiety their due, however.

I've had a fairly productive day at work despite a good bit of insomnia last night. I started to fade around 10:30AM & broke away to go to the gym. On the exercise bike, I could not believe that I was still aerobic with my heart rate at 150 bpm. 130 - 140 maybe, but 150--I felt good, pumping hard with no pain & unforced breathing. I've spent a lifetime with almost zero "wind", and pushing myself to the point of muscle pain, so this was a treat! To top it off--and this is also scary--after my shower, I stepped on the scale & found that I had lost 8 1/2 lb since Wed. 8 1/2 lb in 5 days!?!? Loss of water weight as inflammation continues to decrease?...Any insights?

(The dark side within wants to put the thought of serious disease into my head, but we'll just wait until we discuss this with doc.)

So, maybe my crisis is was simply due to the high rate of toxic release....it's over, right?

Maybe I would have done better by forcing myself to drink a lot of water to wash things out when I was at my worst. I am doing that now.

Thank you for your best wishes.

- Henry

judy05 Apprentice
Folks,

I'm new here.

You all seem to do much better immediately upon going gluten free.

Having had mch success especially in losing weight since quitting wheat in November, I recently learned enough to get rid of the next level of gluten from my diet. I have since had a bout of what I hope was my body releasing the many toxins that had collected over the years.

(It has been a very rugged 2+ weeks...I'd really love to learn that it's not just extreme anxiety.)

Doing better, but not yet good--hopefully, very soon.

Any advice?

Thanks,

- Henry

You said that you gave up "wheat", do you realize that gluten free means giving up barley, rye and also oats? Just wanted to make sure.

aikiducky Apprentice

Yeah you're probably loosing water weight. And my endurance and also shot up after going gluten free, it was great! Now I've gotten used to it, lol. :rolleyes:

Pauliina

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,500
    • Most Online (within 30 mins)
      7,748

    HDM005
    Newest Member
    HDM005
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.