Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An Update On Me

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

Hey there.

Hope everyone is doing well.

Wanted to give an update about the cruise and how I'm feeling. The cruise went very well and I only

got sick one time for several hours. This was the morning after I'd had four pieces of bread with dinner :blink:

For the most part I ate a slice of bread or two with every dinner, but not much else in the way

of gluteny stuff. Lots of meats, potato's and salads.

Actually the worst day of all was after we got back...we had pizza for dinner. I felt like crap and hurt all over the next day. Like a hangover but without the booze....

Interestingly, what I've discovered is...it's not just the amount of gluten that I eat that makes me sick,

it's also, the RATIO of gluten to other foods. If I eat a couple slices of bread along with a large piece of meat, potato's....cheese etc...I'm not likely to get sick. However, if I hadn't eaten the other foods, I

would get sick. In other words a sandwich might make me sick, however a piece of bread, along with

a big dinner, doesn't seem to make a difference. How weird is that??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Why are you eating gluten? You can't get better if you eat it everyday. Damage is done despite a lack of symptoms as well

JerryK Community Regular
JerryK
Posted
  • Author
Why are you eating gluten? You can't get better if you eat it everyday. Damage is done despite a lack of symptoms as well

Good question. Because I've decided to pursue an official diagnoses. I posted about this a couple weeks ago...

mouse Enthusiast
mouse
Posted

Hope you had a wonderful time on the cruise. I heard that the trip is awesome. I know you want an official diagnosis and so keep on eating the bread. They say it has to be enough gluten to equal 3 slices of bread a day. Good Luck.

jerseyangel Proficient
jerseyangel
Posted

Hi Jerry--welcome back! Glad you had a nice vacation. Do you have an appt yet, or are you going to hold off a little longer--I can't remember :blink:

JerryK Community Regular
JerryK
Posted
  • Author
Hi Jerry--welcome back! Glad you had a nice vacation. Do you have an appt yet, or are you going to hold off a little longer--I can't remember :blink:

I think I'm going to try to consume gluten for a few more weeks then make an appt. I went a couple weeks gluten-free...so I just want to be sure to give it enough time. j

jerseyangel Proficient
jerseyangel
Posted
I think I'm going to try to consume gluten for a few more weeks then make an appt. I went a couple weeks gluten-free...so I just want to be sure to give it enough time. j

Sounds like a good plan :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Welcome back! Glad you had a good trip.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,538
    • Most Online (within 30 mins)
      7,748
    Scott Ganzert
    Newest Member
    Scott Ganzert
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.