Preemie Got A Prescript For Formula

[averyannsmom]

Hi,

DD having rarely been exposed to gluten and other allergens got a clear bill of health on allergy tests..d'uh. But the consensus at this point is that DD is certinly protein sensitive (soy & dairy), as displayed in her mucus and diarhea diapers over the past 2 months on Alimentum and then alimentum RTF (the latter being a lot better).

So we have been givn a precript for elecare...because they had the most sample cans of that brand and they gave me 8 cans.

So we are trying this for 2 weeks to see if it will clear up the problem. Any suggestions where I can get this for the best price? Of course, my insurance (Wisconsin) doesn't cover it (and our coverage is really good). The insurance company only recognizes elecare and neocate as an Over-the-counter medication....Even though you have to have a prescription and be supervised by a doctor...WTH!!!

I haven't been able due to DD compromised immune system (due to prematurity) and all her medical problems and appointments. I'm doing some work from home but it is on a commission only basis...so I haven't made a dime and now I am going to have to shell out $300+ per month to feed my infant.....sigh. We are not low-income (though used to living on 2 salaries) so wic is not an option.

[Fiddle-Faddle]

I'm so sorry to hear that things are difficult for you. Pardon me if I've suggested this to you before (I cna't remember)--how old is your daughter? Is there any possiblity that you might be able to lactate? Even if you could only supply some of her feeds, that would probably help her tolerate formula a whole lot better, not to mention protect her from food allergies, even if she gets your milk in a bottle.

I'm convinced pumping saved my first baby's life (he hadmultiple medical issues)--and he even latched on once I had something "in there" to drink!

I've been told that there is a 4-month window of oppoortunity, where you can re-lactate, even after you've "dried up."

Either way, good luck!

[averyannsmom]

It's been 5 months since I pumped, and even at that point she was not handling my milk well. I have health issues too and I could not cut out all protein including soy, all dairy except yogurt, and all citrus and still be able to supply enough energy for both of us. I didn't have a great supply to start with because I could only pump. DD was too small and weak to breast feed for a long time, and when she got bigger she was still only allowed to nurse 1-2 times per day. The weirdest part is that she tolerated alimentum for several months before we started having problems. I am not yet convinced that it will solve the problem, but we will see.

Thanks!

I'm so sorry to hear that things are difficult for you. Pardon me if I've suggested this to you before (I cna't remember)--how old is your daughter? Is there any possiblity that you might be able to lactate? Even if you could only supply some of her feeds, that would probably help her tolerate formula a whole lot better, not to mention protect her from food allergies, even if she gets your milk in a bottle.

I'm convinced pumping saved my first baby's life (he hadmultiple medical issues)--and he even latched on once I had something "in there" to drink!

I've been told that there is a 4-month window of oppoortunity, where you can re-lactate, even after you've "dried up."

Either way, good luck!

[Fiddle-Faddle]

It's been 5 months since I pumped, and even at that point she was not handling my milk well. I have health issues too and I could not cut out all protein including soy, all dairy except yogurt, and all citrus and still be able to supply enough energy for both of us. I didn't have a great supply to start with because I could only pump. DD was too small and weak to breast feed for a long time, and when she got bigger she was still only allowed to nurse 1-2 times per day. The weirdest part is that she tolerated alimentum for several months before we started having problems. I am not yet convinced that it will solve the problem, but we will see.

Thanks!

Wish I could help! AveryAnn is a beautiful name, BTW...

[Satori]

You can get it covered with a fight, check out www.kidswithfoodallergies.org and check the forums. Lots of parents who won insurance battles for formula coverage.