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Help! I Am New To This And Glutened Myself.

jabberwife

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jabberwife Explorer
jabberwife
Posted

I have been gluten-free for over a week (suspecting intolerance) and just accidentally glutened myself. Dang imitation crab meat. I grabbed some sushi from the grocery, and looked carefully at the soy sauce ingredients, and the soy sauce actually WAS wheat-free (a miracle!) but didn't look until afterwards at the imitation crab. wheat starch. Dang it. So....I have a presentation in 2 hours, am I going to make it through? I haven't tested with gluten since going gluten free....didn't want to test unintentionally! Yikes.

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Nantzie Collaborator
Nantzie
Posted

Yikes is right. I'll cross my fingers for you that you get through your presentation.

Good luck!

Nancy

CarlaB Enthusiast
CarlaB
Posted

You'll make mistakes along the way, but each one will be a learning experience. Last mistake I made was with charcoal, who'd have thought charcoal would have wheat in it????

Keep hydrated, it's all you can really do.

jabberwife Explorer
jabberwife
Posted
  • Author

Well, the fact that I have almost immediately had some reaction (although mild--bloating and gas, mostly) probably confirms the intolerance question, I'm hoping that since I'm probably not THAT sensitive yet, since I just went off of it, that this will be the worst for the next few hours. Here's hoping! Thanks for the support.

Rikki Tikki Explorer
Rikki Tikki
Posted

How are you feeling now? It usually hits me within a couple of hours and lasts a couple of days. It is just a learning experience. I found myself eating a UNO candy bar yesterday and felt ill, looked at the package and on it is wheat flour. So here I am home sick missing work :(

One would think after all of this time I would know better, but it just happens.

I was just noticing how many people are signed up on the boards, and all I can say is wow. People are becoming aware of celiac and I think that is just great, more foods available. Over 9,000 wow

Daxin Explorer
Daxin
Posted

Being fairly new to this myself, I glutened myself a couple times. It gets easier, and it has taught me the importance of reading labels.

I hope your presentation went well. It does get easier with time. Promise.

Guest Robbin
Guest Robbin
Posted
:) Welcome. I hope you made it through the presentation. It is awful to have to be excused because of D in the middle of something like that. Keep immodium on hand for emergencies and if D is your major symptom, I recommend eating bananas, they help me-maybe will help you. I hope everything goes well and you start feeling better soon. Let us know how it went. :)
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tarnalberry Community Regular
tarnalberry
Posted

If it makes you feel any better, I've been doing this for almost three years, and go glutened yesterday. I tend to get plenty of sleep, plenty of water, and plenty of *healthy* food that I KNOW is safe because I cooked it myself.

jabberwife Explorer
jabberwife
Posted
  • Author

Well, thanks for all the well wishes. I think I still am not used to this gluten-free diet...I glutened myself today. Forgot that egg roll wrappers are flour (duh). Did well with the whole not eating Hoison sauce in my vietnamese soup, no soy sauce, read labels, but then chowed right down on an egg roll. At least it was only one.

Fortunately, I think I have been so new to this that the worst I got yesterday and today was bouts of bad bloating and gas. I imagine if I truly challenged myself after a few weeks being gluten-free, which was my intention, I would have eaten a bagel or something so that there'd be no question as to the results. Bloating and gas only seems somewhat inconclusive to me, but being otherwise gluten-free except for these 2 boo-boos, I am starting to see a pattern as to where these issues come from. Evil gluten!

I did get my Enterolab stuff today in the mail...so I figure I'll get an official diagnosis. I'm not sure that's truly necessary, but I do want to know if lactose or casien has anything to do with my issues as well.

I WILL get the hang of this! :)

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      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
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