Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Is So Insane!


Laurasc

Recommended Posts

Laurasc Rookie

So I've been gluten free for about a week and with the exception of one little slip, I've been feeling okay. So today for lunch I decide to go for some basic smoked ham (read the lable and there was nothing bad) and some cheese. I had two slices each of provolone and mozzerella. Within 15 minutes of finishing the cheese, I started to get stomach pains and a monumental amount of gas. My 14 year old is a master belcher and had I let one loose in front of him I would have left him in awe....that's how bad it was. I took two Gaviscon which helped a little bit but not a lot.

Is this a problem with lactose as well?? Thing is I don't like milk and most milk products, with the exception of ice cream and the very occasional vanilla yogurt. But I have been having a small amount of 1% milk (maybe 1/4 cup) with my cereal in the morning and I've been alright. I also have a history of GERD but am on medication for it.

What the blazes is going on with me?? Am I gluten and lactose intolerant?

I'm going to try eating a bagel tomorrow to see how I feel...I wonder if I shouldn't cut out all dairy as well and see what happens?

Like I said...this is soooo insane....all I want is to feel good. I'm too young to be this old! :(

Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Alot of the time people are lactose intolerant until their intestines heal. The tips of your villi are what digests the lactose so when they are damaged the lactose is not digested properly.

Also, a week is not really enough time to get rid of all your symptoms. Took me about 8 months...some people take longer than that and some people don't take as long. So don't expect instant changes. Also, at first there are so many things that you can miss. It covers not only food but products like lipstick and shampoos and that sort of thing. I know at first I was glutening myself and didn't even know it. If I knew what I know now, it probably would not have taken 8 months.

Ashley Enthusiast

Hate to say it, but it's sure gonna take more than a few weeks for this pain to subside. It took me nearly a year before things were back on track.

I've been having the same things happen as they are to you. A lot of people who have Celiac and have problems with lactose, whey, casein, ect.

I know it would be hard cutting out gluten and milk products, but, giving a trial test time frame wouldn't hurt. I'm going through it right now, so, I know how you feel. I'd say at least give it a few weeks and then introduce dairy back into your diet and see how you feel. Hopefully things will get better :)

-Ash

ebrbetty Rising Star

sounds like lactose intolerance to me, I use Kraft shredded cheese sometimes, it lactose free

nettiebeads Apprentice
What the blazes is going on with me?? Am I gluten and lactose intolerant?

I'm going to try eating a bagel tomorrow to see how I feel...I wonder if I shouldn't cut out all dairy as well and see what happens?

Like I said...this is soooo insane....all I want is to feel good. I'm too young to be this old! :(

Laura

Why are you going to eat a bagel?

BRUMI1968 Collaborator

I just read some awesome stuff on dairy - at doctorj.com I think. He's a vet. Anyway, casein, soy, corn, and gluten are al glue - and all of them affect the small intestine. I'd stay away from dairy at the very least at first, and then consider goat dairy, which has way less casein, or continuing on dairy free. I've been dairy free for two years (except for a vacation in Hawaii on which my husbands father kept baking bread [before i was dx'd celiac] and I ate bread and butter for ten days)...and I think it's really helped, especially intestinally, but also in balancing out weight and the like.

Good luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,355
    • Most Online (within 30 mins)
      7,748

    tealangel09
    Newest Member
    tealangel09
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.