Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice


chrisepp3

Recommended Posts

chrisepp3 Newbie

Hi Everyone..I am new to this site and was diagnosed with celiac disease (the worst case my gastroenterologist has ever seen) in November 2003. Have been gluten free since January 2004 and am not sure what I am doing wrong. I always had the constipation problem, I eat a lot of beans and vegetables and nothing seems to work. The problem has actually gotten worse since being gluten-free. I have tried laxatives and stool softners and they don't work either. I had a colonoscopy the same time as the endoscopy (which determined the celiac disease) and the colonoscopy was normal. Anybody else out there with this problem. Also severe lower back pain the last three weeks. HELP! Thanks, Christine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

You might try going on a low residue diet for a couple of weeks to give your intestines a break. Google the term for more advice, but the basic idea is that you eat little or NO fiber (or complex carbs) so that your body is absorbing ALL of what you eat, and not having to clear out the waste that can't be digested. I don't suggest this for a long term solution AT ALL (though there are a handful of medical conditions where it's warranted), and probably wouldn't do it more than two weeks AT MOST, but it helped me.

I would also highly encourage you to talk to your doctor about this further incase there is a physiologic problem that needs to be addressed.

jasa Newbie

Hey there,

I know the problem - have been living with it for way too long... Over the years I've found a few specific foods that I can eat that basically manage to, er, clear the system out after its been blocked up for a few days. Certain types of yogurt are great - I find Onken in particular works like a treat. If I can't get my hands on that, then cranberry juice does the trick. Another thing, drink loads of water. And someone on this board gave me a great tip a few months back that is useful: if you are constipated, try massaging your 'lower left quadrant' I think they referred to it as. Basically I can feel that my left side is solid and my right side isn't if I massage hard enough. I find that a good twenty minutes or so of massaging at night and in the morning stuff seems to be sorting itself out.

Hope some of the above helps you out - when you've been on the diet longer I guess you'll strike lucky as I have and find certain foods that seem to work for you. Hang on in there...

Take care,

Jasa

plantime Contributor

I have to massage all of my stomach, but it does help me. I start at the groin on the right side, massage up to the ribs, across, then down the left. I keep repeating for 15-20 minutes, every night. When I'm really constipated, I feel the blockage, and it hurts. If you take antihistamines for allergies, it could very well be the cause, or at least a contributor.

kvogt Rookie

I've found that dried apricots can be very moving. Try five a day.

kalo Rookie

I've had my problems too and forgot about masaging the stomache. My massage therapist showed me that. Is there something else like eggs maybe that's causing it? Hugs, Carol B (who just got her test results from enterolabs. Positive for gluten sensitivity, milk casein allergy and I have the gene)

burdee Enthusiast

Christine: Constipation was one of my main celiac symptoms (besides pain, bloating and gas), so I've dealt with that one over the years. Are you taking calcium or iron supplements (which also influenced my constipation)? I started taking magnesium supplements for regularity several years ago. That mineral helps with muscle contractions. In Europe doctors often recommend magnesium and Vitamin C for constipation. If you're getting plenty of vegetable/fruit fiber and liquid, you might just need magnesium to help the intestinal muscle contractions and absorb more water into the stool. I second the suggestion about drinking lots (2-4 liters per day) of water. There are also a few great gluten-free high fiber cereals which helped me. Ener-G Foods Rice Bran cereal (19 grams of soluable fiber per serving) can be cooked as a hot cereal. I add a little Quinoa flakes, which makes the mixture look/feel like cooked oatmeal. Also Nu-World Amaranth makes a great cold cereal from Amaranth which is low carb, high fiber (9-10 grams of fiber per serving) and low calorie. It looks like Cheerios and comes in peach, original and strawberry flavors. I have also successfully used dried plums (OK prunes), but who hasn't?? ;) I can empathize with your struggle. So many celiacs have diarrhea as their main symptom, so gluten-free breads and cereals are SO low in fiber. I've really searched for higher fiber cereals and tried to increase my fiber consumption with cereals, fruits, vegies and water. Good Luck! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OLIVES4 Newbie

Hi everyone! I am new to this board (in terms of posting), been checking out the site over the past few months and finally joined in!

I am a Licensed Massage Therapist and when I read this post I wanted to make sure that anyone who applies self abdominal massage is doing it in the correct direction as Dessa describes - clockwise, as this is the normal flow of your intestines.

Going in a counter clockwise direction can only move the blockage backwards, defeating the purpose!

kalo Rookie

I also wanted to mention that aloe vera juice is good for constipation as well as coconut. Both of those are great in smoothies. Hugs, Carol B (thanks for the reminder of massage direction)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,257
    • Most Online (within 30 mins)
      7,748

    KariNoMoreGluten
    Newest Member
    KariNoMoreGluten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.