Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastroparesis

ebrbetty

Recommended Posts

ebrbetty Rising Star
ebrbetty
Posted

hi, Has anyone found something to help with this? either RX or OTC..I tried Reglan, but it made me feel worse, about 8 times out of 10 after I eat [1-3 hours] it feels like I ate a rock, the pain and heavyness is right in the middle of my gut, the food just sits there..drives me crazy, if I eat a meal at noon I can't eat dinner, still full and hurting.

any ideas?

thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tangerine Rookie
Tangerine
Posted

I have gastroparesis too. Reglan basiclly made me feel suicidel. it was aweful. And I only took it for two days!I think there is a drug called ZelNorm. It is for people with IBS, but my gastro doc said they often perscribe it for gastroparesis too. I have never taken it, so i can't help you there. but maybe you can ask your doctor about it.

I just try and eat small meals, with a lot of water. A lot of times gastroparesos can be caused by too little stomach acid- but normal MD's won't tell you that. You might want to try some apple cider vinegar or HCL tabs. Just make sure you stomach lining is healed!

ebrbetty Rising Star
ebrbetty
Posted
  • Author
I have gastroparesis too. Reglan basiclly made me feel suicidel. it was aweful. And I only took it for two days!I think there is a drug called ZelNorm. It is for people with IBS, but my gastro doc said they often perscribe it for gastroparesis too. I have never taken it, so i can't help you there. but maybe you can ask your doctor about it.

I just try and eat small meals, with a lot of water. A lot of times gastroparesos can be caused by too little stomach acid- but normal MD's won't tell you that. You might want to try some apple cider vinegar or HCL tabs. Just make sure you stomach lining is healed!

thank you for the reply and help, my heartburn is so bad, I can feel the burning on my tongue :blink: I eat rolaids, no help..baking soda was helping till I broke out in hives and almost stopped breathing..salt allergy!!

I'll go try some apple cider..what is HCL?

btw..I started with a new gasto this week, told her i've tried ever PPI on the market with no help, they actually made the heartburn worse, every other DR told me this is not possible, but she did say some ppl do get worse from them!

thank you again

Betty

Tangerine Rookie
Tangerine
Posted

hello betty,

I have tried many PPI's too, and they either did nothing, or made my heartburn worse! I have recently---like last week, discoverd I have been having intolernaces to other food as well as gluten :(. I have been researching up a storm and found that the reason for my gastritis and gastroparesis could be caused by other food intolerances, and other food intolerances can make your stomach not produce enough acid- leading to gastoparesis because the food does not have enough acid to digest it properly. that way it justs sits there and hurts! i feel you pain!!! I feel like the PPI's did not work because it is making the acid your stomach even less than it already was... makeing my heartburn worse, and allowing my food to sit in my stomach longer.

I am much more into holistic approaches than taking pills, so that is why i have not tried zelnorm. HCL is a suppliement that contains HCL(hyrochloric acid- the acid your stomach produces) and it can help suppliment your loss of HCL. it comes in 100mg to 650mg tablets. I would say start out slow... taking 100-200mgs at first right before each meal, and then increase it with each meal until you feel warmth in you tummy. the warmth means that you have a little too mcuh acid. Apple cider vinegar works the same way. I would mix a little bit. like 1 tsp--- and work your way up, a bit of water and take it with a straw as it can damage some peoples teeth. But before you do any of this you need to make sure your stomach lining is healed. if you have gastritis like I do, it could make you even worse!

You might want to check into other intolerances... my heartburn ha gotten much better over the past few days since I cut some more foods out of my diet. i'm also going to get an ELISA test done to see for sure what else my body reacts to.

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thank you so much for the great reply, I had a RAST test, no food allergies [besides the salt in lg doses] but many intolerances.

I'm going for a colonoscopy and the test with the camera down my throat into belly in a few weeks.

do you get a terrible "deep down" type of pain in the middle right between the ribs?

I just took a little apple cider a few minutes ago, I will stick with that to see if it helps, if it does I guess I should order some HCL..I agree, would much rather go with the holistic approache than another Med from my DR.

I went to a cookout at my moms today, hubby cooked me a all-natural, no nitrate, preservative free burger, found I can't eat red meat with all the crap they inject, so only meat from whole foods and I made an awesome flourless chocolate cake..normally I stay away from chocolate and foods with butter, but I ate a piece :rolleyes: think thats what may have done me in, possibly the gluten-free roll too..as you said we need to constantly check for other food intolerance'sand now I seem to be having trouble with gluten-free Breads, I think they;re too heavy for my belly.

thank you again, I appreciate the help and support!

hugs Betty

Tangerine Rookie
Tangerine
Posted

I'm glad to help!

I get heartburn that goes up into my mouth sometimes and makes my voice 'feel' rhaspy, but people say it doesn't sound it. I aldo get intense pressure right above the X-something(that bone at the end of your sternum) and a burning pain. I then also get this weird sideache pain on my left side that feels up under my ribs. yuck!

They found out I had gastroparesis after finding food in my stomach on my last biop. Then they did thing with a huge gigercounter.

I hear that it can go away perminetly as long as you address the issue and cause, not the symptoms. So I hope you and I get better!

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thank you again, we seem to have the same miserable symptoms, I hope we both feel better very soon!!

happy 4th of july

hugs Betty

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.