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Ran Across This


chrissy

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chrissy Collaborator

i found this when i was looking up info on fibromyalgia-------something to do with glyconutrients. i was thinking it might be something helpful----and then i read this.......

I was diagnosed with Celiac Sprue in Dec 1990. This condition is “incurable” and is an intolerance to wheat, oats, rye and barley (anything with gluten). I had a lot of gastric pain, often vacillating between diarrhea and constipation. When diagnosed, my hemoglobin was extremely low and so I was very anemic. I had food sensitivities to hot peppers and spicy foods of all kinds, as well as MSG. I experienced great fatigue and pain.

I began taking some products made by a company in Texas in Jan 1994. At that time they only had an endocrine support product and another product which was designed to help athletes. They later came out with a glyconutrient tablet which I also began to take. Within 8 months or so I had healed a great deal and was able to eat almost anything.

I have been in menopause for 2 years and have very little of the traditional symptoms and have not had to go on hormonal support.

Today, I eat anything that I want. I look and feel great. Many people have told me that I look younger today than I did 3 years ago. My hemoglobin that was extremely low is now getting to normal limits. An impossibility according to most physicians, especially because of my age.

i wonder if she has had any follow up blood work??!!


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trents Grand Master
i found this when i was looking up info on fibromyalgia-------something to do with glyconutrients. i was thinking it might be something helpful----and then i read this.......

I was diagnosed with Celiac Sprue in Dec 1990. This condition is “incurable” and is an intolerance to wheat, oats, rye and barley (anything with gluten). I had a lot of gastric pain, often vacillating between diarrhea and constipation. When diagnosed, my hemoglobin was extremely low and so I was very anemic. I had food sensitivities to hot peppers and spicy foods of all kinds, as well as MSG. I experienced great fatigue and pain.

I began taking some products made by a company in Texas in Jan 1994. At that time they only had an endocrine support product and another product which was designed to help athletes. They later came out with a glyconutrient tablet which I also began to take. Within 8 months or so I had healed a great deal and was able to eat almost anything.

I have been in menopause for 2 years and have very little of the traditional symptoms and have not had to go on hormonal support.

Today, I eat anything that I want. I look and feel great. Many people have told me that I look younger today than I did 3 years ago. My hemoglobin that was extremely low is now getting to normal limits. An impossibility according to most physicians, especially because of my age.

i wonder if she has had any follow up blood work??!!

How was the Celiac diagnosis made? What kind of tests were done?

Steve

Rikki Tikki Explorer

Sounds like a sales pitch to me!

eKatherine Apprentice
Sounds like a sales pitch to me!

A sales pitch based on a testimonial from someone who was originally misdiagnosed.

NicoleAJ Enthusiast

I agree. No one simply goes from having celiac to eating anything they want. It's a chronic, life-long illness, and her diagnosis could have only been from dietary changes--certainly 16 years ago the tests for celiac were less specific. She doesn't even name the suspect supplement.

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    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
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