Cannot Get Help

[Tasha2004]

Worthless doctors.

I posted this in another section.

I went with my Celiac Mom (80 yrs old, Celiac for 20) to the doctor. Mom has all the complaints which go with accidentally ingesting gluten.

The doctor didnt believe me that a blood test could be done to see if the diet was working or things were getting past it. She just didnt.

The Gastro cannot see my mom until October. I asked the primary care doc, in fact she mentioned it herself, to get with the gastro and get a blood test for right now.

No, they wont do it.

I am an advocate for diabetes, fibromyalgia and other concerns because I have those conditions.

I know enough from this board to know about Celiac. I am so angry and upset that my Mother gets blown off.

If anyone has an article, or suggestion on how to let the doctor know that testing can still be done after one has started the diet, please send me the link.

She just simply said there is no further testing that can show if a Celiac is being compliant or accidentally getting gluten.

I really am upset.

[tiredofdoctors]

And she passed the medical boards?????

You ought to send her Peter Greene's book, "Dangerous Grains". She probably wouldn't read it. Any physician that close-minded doesn't want to know, anyway.

I'd be very tempted to take your mother to another physician . . . one that is actually current on medical conditions. Good luck to you. I'll see if I can find any short articles which may shed some light her way . . .

[Nantzie]

Have you considered having her tested through Enterolab? Enterolab is a highly trusted lab on this board. They have a $99 gluten stool test that might be an option. If you go to www.enterolab.com and email them, they should be able to tell you if that test should work in her circumstances. The woman who answers the emails there, Phyllis, is an RN, and is always so helpful.

They also have other tests and testing packages.

Nancy

[LKelly8]

That's outrageous.

Here's suggested follow up care (including bloodwork) from Open Original Shared Link

[2kids4me]

This should help, can the primary care doctor not order these tests??

IgA class endomysial antibodies are very specific, occuring only in celiac disease and DH. These antibodies are found in approximately 80% of patient with DH and in essentially 100% of patients with active celiac disease. IgA endomysial antibodies are more sensitive and specific than either reticulin or gliadin antibodies for diagnosis of celiac disease. Antibody titers are found to parellel morphological changes in the jejunum and can also reflect compliance with gluten-free diets. Titers decrease or become negative in patients on gluten free diets and reappear upon gluten challenge.

The purpose of testing for anti-gliadin antibodies includes, in addition to diagnosis of gluten sensitive enteropathy, monitoring for compliance to a gluten free diet. IgA gliadin antibodies increase rapidly in response to gluten in the diet, and decrease rapidly when gluten is absent from the diet. The IgA anti-gliadin antibodies can totally disappear in 2-6 months on a gluten-free diet, so they are useful as a diet control. By contrast, IgG anti-gliadin antibodies need a long time, sometimes more than a year, to become negative.

The reverse is also true. That is, a patient with celiac disease who has been on a gluten-free diet and tests negative for IgA anti-gliadin antibodies, will show a rapid increase in antibody production when challenged by gluten in the diet. Approximately 90% of challenged patients will yield a positive IgA anti-gliadin result within 14-35 days after being challenged.

The above was copied and pasted from this site at : https://www.celiac.com/st_prod.html?p_prodid=57

[Tasha2004]

Thank you all, and 2Kids, I think I will use that link. Author Danna Korn graciously wrote me an email last night and said any primary care doctor (even an assistant) can order the IgA IgG. I know this is true, because they have ordered them on me to make sure I dont inherit celiac disease.

I think I will useyour link, run over to my Mom's doctor's office today and drop her a letter.

I think it is disgraceful that she dropped my Mom into the hands of the Gastro office and they wont help her until Ocotber. Clearly if we were Celiacs we would want to know right now, if we were accidentally getting something.

I'm still mad today, I didnt sleep good over this and I hope the doctor reads my mail. The doctor doesnt work today, but I am going to insist they put it in her box and I'm going to act like she is expecting it.