Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Post Diagnosis Tests Should Be Done Yearly?

sparkles

Recommended Posts

sparkles Contributor
sparkles
Posted

Some place (not sure if it was here or not) but there was a list of tests that should be done yearly if you are a celiac just to make sure that everything is working right. If you know of any such list, please let me know. I have a regular MD (internist) and I am sure that I know more about celiac's disease than she does. Does anyone see another kind of doc? I also have diabetis. Just curious... Thanks.

  • 4 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


au natural Newbie
au natural
Posted
Some place (not sure if it was here or not) but there was a list of tests that should be done yearly if you are a celiac just to make sure that everything is working right. If you know of any such list, please let me know. I have a regular MD (internist) and I am sure that I know more about celiac's disease than she does. Does anyone see another kind of doc? I also have diabetis. Just curious... Thanks.

I am not sure of a list of post diagnosis test, i imagine your doc would be wise enough to give you a thorough look over. I have been diagnosed with severe chronic idiopathic neutropenia. For this i see an oncologist. I am unable to maintain a healthy white count. It is not cancer related. I did have my thyroid removed a few years before my diagnosis - had a low thyroid all my life- it finally got to the point that it was choking me. They found cancer starting. I do have other food allergies though, egg whites, dairy, codfish and peanut. Id say ask for a full exam. It seems that alot of celiacs have at least one more thing wrong. lets hope that you dont have anything else. By the way my father was diabetic starting in his 50s. So I watch for it like a hawk. good luck

courtnxy Newbie
courtnxy
Posted

I think your antibodies are supposed to be tested every 6 months to a year, but I suppose it depends on how well-controlled you are.

Also, you could get checked for deficiencies in iron and vitamin D. I'm deficient in both of them! Plus, celiacs are supposedly also prone to vitamin A and K deficiencies.

One more thing: If your symptoms don't clear up after a year or two, you should talk to the gastro doctor about getting an EGD, where they can check out the lining of some of your intestine.

Courtney

flagbabyds Collaborator
flagbabyds
Posted

i get antibody testing and then just a CBC.

julie5914 Contributor
julie5914
Posted

I was wondering the same - I have my one year anniv. on the diet checkup on the 16th and am not sure what the point is. I have symptoms some still and would like to know for sure that I am healing, but I don't necessarily want an endoscopy. Last blood test was 6 months ago and was still pretty high even though I'm very strict. Sometimes they look at you like, "what are you here for," and I am thinking "aren't you supposed to know that?" I don't have any major complaints except some dwindling symptoms that I expect I may be stuck with - just want to make sure I'm on the right track - is that worth an expensive visit to the doc?

olalisa Contributor
olalisa
Posted

Check out this website.

Open Original Shared Link

The NIH seems like a pretty good source to me, and I printed this info and took it to my GP, who has ordered all the tests they recommended, including testing my blood for all the nutritional deficiencies. I go for the bone density on Monday.

Good luck!

chrissy Collaborator
chrissy
Posted

we run the Ttg test on our kids. our doc is willing to just call the test order in to the lab if we want so that we don't have to drive the long distance to his office.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748
    maltawildcat
    Newest Member
    maltawildcat
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NanCel
      Celiac getting dentures

      By NanCel · Posted

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.