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thebanker Newbie
thebanker
Posted

I've been gluten free for only two days and I've been really worried about how to make the correct food choices and eating out. I've read several posts tonight and my mind is at ease. Being new to the celiac world, this forum is extremely helpful.

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jerseyangel Proficient
jerseyangel
Posted
I've been gluten free for only two days and I've been really worried about how to make the correct food choices and eating out. I've read several posts tonight and my mind is at ease. Being new to the celiac world, this forum is extremely helpful.

Hi and welcome to the board :)

I'm glad you found us--keep reading, you will find a wealth of information and a great bunch of caring people who will be happy to answer any questions you have. :)

Ashley Enthusiast
Ashley
Posted

Welcome here!

Glad you really like this place :) , it's almost like an encylcopedia of knowledge about Celiac, gluten, and its effects on the mind, body, and soul. It's a helpful place.

Need any help, fear not to ask! Most are friendly, epesically if they can steer a person from making a terrible decision and consuming gluten. :blink:

Feel free to PM me if you need.

-Ash

Carriefaith Enthusiast
Carriefaith
Posted

Welcome :) If you you need any meal ideas or recipes check out this thread:

Open Original Shared Link

taz sharratt Enthusiast
taz sharratt
Posted
I've been gluten free for only two days and I've been really worried about how to make the correct food choices and eating out. I've read several posts tonight and my mind is at ease. Being new to the celiac world, this forum is extremely helpful.

this forum is a must for the newly diagnosed as it does contain things i personally would have never thought about excludeing from my diet. keep at it as it only gets easier to pick the thing you know are good for you and safe. everyone here is in the same boat and we all need ecouagement and some sympathy and its allways best from people who understand and KNOW what its like to live in a gluten free world. best of luck.

I've been gluten free for only two days and I've been really worried about how to make the correct food choices and eating out. I've read several posts tonight and my mind is at ease. Being new to the celiac world, this forum is extremely helpful.

oh and welcome!

tarnalberry Community Regular
tarnalberry
Posted

Welcome to the board! Glad you're finding it useful! :-)

ArtGirl Enthusiast
ArtGirl
Posted
it's almost like an encylcopedia of knowledge about Celiac, gluten, and its effects on the mind, body, and soul. It's a helpful place.

I spent all my free time for about three weeks after I discovered this forum, and am still often here searching and reading old posts. There is such a wealth of information. Most of my questions and concerns have been answered by and expanded on by others and I've been "saved" from the trial-and-error method of determining safe foods and brands.

I recently checked out a newly published celiac book from the library - Celiac Disease, a hidden epidemic by Peter H.R. Green, MD. (director of the Celiac Disease Center and Columbia Univ.) and Rory Jones (a science writer of health and medical topics). After reading through it I found that I knew very nearly everything written in the book, and then some (okay, there were a few things I didn't know already). By the way, celiac.com was mentioned in the authors' list of references.

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DingoGirl Enthusiast
DingoGirl
Posted

Welcome! You've found the best place to be. Very very helpful and informative. Keep reading and learning, and realize there could be some ups and downs...but you will stabilize and will feel so much better. And seriously, I think most people on this board who've been here any length of time know more than DOCTORS - - doctors don't live it, WE do.

Keep reading and learnign and you'll do great. :)

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
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