Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Allergies


Carriefaith

Recommended Posts

shai76 Explorer
shai76, if you don't mind me asking, which foods cause your severe reactions?

I'm a class 3-4 with soy, and a class 2 with milk, eggs, corn, wheat, oats, and yeast. And a class 1 with turkey, tree nuts, fish, and coffee.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 58
  • Created
  • Last Reply
Michi8 Contributor
They say spice mix is allspice, cinnamon, colves, ginger, and nutmeg.

Marcia, thanks for your reply. Does your daughter know for sure what causes her reactions? This is all very confusing for me as I am not 100% sure what caused the reaction. I wish my epipen were free, I had to pay $140! And I don't have insurance! Ah!

I had a skin prick test and they tested for a lot of different foods. I'm not too concerned about the foods I'm allergic to since most of them are easy to avoid except potatoes. I'm not really sure what peanuts do to me since I eat peanut butter all the time! And peanut allergy was very high on the test :blink:

Carrie,

That price for the Epipen was very high. I bought my sons at the Walmart pharmacy (in Alberta) for around $95-99. Fortunately, for us, the price is covered by insurance. I recommend shopping around for a better price the next time you have to buy one (the shelf life isn't very long unfortunately.)

In terms of the peanut allergy, it is possible that you will never have an anaphylactic reaction (given you eat peanut butter regularly.) I never did, I only ever reacted with itchy tongue, throat, ears and lips. The allergist had me carry an Epipen for a while (I think a lot of allergist are being very cautious nowadays), but I think it was overkill (I had lived with my peanut allergy for 26 years at that point!)...there was never a sign of anaphylaxis for me.

I "outgrew" that peanut allergy after I had my first baby. I've since develped new foods allergies in its place. :) From what I understand, completely avoiding peanuts was what helped my body "outgrow" the allergy...now I ingest them on a regular basis to keep my allergy at bay.

Michelle

Carriefaith Enthusiast

Thanks shai76 :)

That price for the Epipen was very high. I bought my sons at the Walmart pharmacy (in Alberta) for around $95-99. Fortunately, for us, the price is covered by insurance. I recommend shopping around for a better price the next time you have to buy one (the shelf life isn't very long unfortunately.)
That is a lot cheaper! Mine is a Twin EpiPen, maybe that is why it is so expensive?
Michi8 Contributor
Thanks shai76 :)

That is a lot cheaper! Mine is a Twin EpiPen, maybe that is why it is so expensive?

It could be. I've never seen a "Twin EpiPen"...is it a double injection kit? My son's epipen is the standard adult dose, single injection. Because he has a penicillin allergy I only buy and carry one epipen at a time...it expires before it's needed, because it's pretty hard to get penicillin accidentally (although I really need to advocate for my son with doctors, because they prescribe penicillin without thinking.) :rolleyes: I really need to get my son a medic alert bracelet instead, as I think it would be way more helpful if he ever needed medical attention in an accident away from home and family.

Michelle

Carriefaith Enthusiast

Michelle,

Mine is called a Twinject and there are two doses. I'm assuming that's why it is so expensive! There is one auto injector and one manual needle. They have two in case the first dose wears off before you can get medical attention.

A medic alert bracelet is always a good idea for someone with severe allergies. The bracelet would definately help him away from home. I am thinking of getting one myself now that I have this allergy.

sasha1234 Newbie

I'm in Alberta too and was just recently told to switch over from Epipens to Twinjects because of the reassurance that you have 2 dosages, especially good for travellers. However, they are currently quite a bit more expensive (I don't remember what mine was, insurance paid, but it was about what you paid $140 I believe), anyway it is cheaper than having two Epipens. I expect as they become more prominent (they are a new product) the price will slowly come down, they certainly did with Epipens.

Carriefaith Enthusiast
I'm in Alberta too and was just recently told to switch over from Epipens to Twinjects because of the reassurance that you have 2 dosages, especially good for travellers. However, they are currently quite a bit more expensive (I don't remember what mine was, insurance paid, but it was about what you paid $140 I believe), anyway it is cheaper than having two Epipens. I expect as they become more prominent (they are a new product) the price will slowly come down, they certainly did with Epipens.
Hopefully the Twinjects will get cheaper with time. I think that they are a great idea! I got a practice one with no needles from my allergist and they are fairly easy to use.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munchkinette Collaborator

Wow, that's really scary. I've never had that kind of reaction from just eating wheat, but my other allergies (dust mites and pets) can get really bad like that after I've been glutened. If it's within a week of eating a little wheat (it usually ends up being soy sauce in a marinade instead of contamination) then the addition of my pets often causes me to need my inhaler. It just seems to be a cumulative thing for me. One allergy alone won't make my throat close up, but the combination of two things will.

I definitely keep benadryl and claritin in my purse. I have a few inhalers in various places.

Carriefaith Enthusiast
One allergy alone won't make my throat close up, but the combination of two things will.
I am really glad that you shared that. I am wondering if my reaction was from a combination of being exposed to wheat and milk. I was having breathing problems the week leading up to the reaction and I now know that I was eating large amounts of gluten contaminated chips that entire week. I started unknowinly eating dairy contaminated chips a few days before the reaction. I almost wonder if it was an allergen overload. I am hoping that is what happened. But I am pretty sure that the gluten contaminated chips were causing my respiratory problems.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.