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Does It Get Worse First?

dljones

By dljones
in Coping with Celiac Disease

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dljones Newbie
dljones
Posted

my wife just started wheat-free and feels dreadful. flu-like symptoms, naseaus, shaky. is it from "coming off" wheat/gluten? thanks all.

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Lymetoo Contributor
Lymetoo
Posted

I'm new here and just beginning this myself. I wonder if the kitchen and utensils are clean??

Using a contaminated toaster? Teflon pan with scratches on it? [could be contaminated with gluten from past use]

Check her meds, supplements. I'm in the process of calling many manufacturers about my supps.

Guest Robbin
Guest Robbin
Posted

Hi and welcome. I felt much worse before I felt better. It was a kind of withdrawal and flu-like symptoms fit the description for me. I also had hot flashes, cold flashes and the rash I had for ages slowly moved from the legs and abdomen to my chest , neck and face and then all of a sudden one morning I woke up and felt better and the rash was gone. The whole thing lasted for a couple of months gradually getting better towards the second month. It varies from person to person though, so it may be shorter or longer for her to feel like the withdrawal is over. I would caution you as well that other intolerances may make themselves clear. She might want to go easy on dairy for awhile as well. The other poster had a good point too about the contamination. You have to really be diligent about this or she will not get well as soon as she otherwise would. Others on here have a similar story as mine--it took awhile to get to this point of dx, and it will take a little while to get better, but it is so worth it. :) ( If she is running a high fever and thinks it is some virus, however I would check with the dr.) Take care and keep us posted on her recovery and you feel free to vent your frustrations anytime. We are all here for each other.

dljones Newbie
dljones
Posted
  • Author
I'm new here and just beginning this myself. I wonder if the kitchen and utensils are clean??

Using a contaminated toaster? Teflon pan with scratches on it? [could be contaminated with gluten from past use]

Check her meds, supplements. I'm in the process of calling many manufacturers about my supps.

thats really nice of you thanks so much. this is my first message board experience. happy to see that most people are good people.

Mayflowers Contributor
Mayflowers
Posted

Hi,

I'm new also and I decided to stop eating wheat. I'm waiting for the Enterolab test to verify my suspicians, but in the meantime, I decided to give up wheat anyway....I was here the other day asking people about withdrawal symptoms. I have cravings for wheat products I never crave and I feel irritable, crabby, tightness in the chest, nervous feeling. My anxiety flared up. Sheesh. I didn't expect a reaction like this to just stop eating wheat, and I'm not a sandwich lover either. :(

Lisa Mentor
Lisa
Posted

Mayflowers:

Upon waiting for your Endo-lab response, try reading alot of these posts. You can get so much information from the people that post here.

Also, my concern for you is that said that you are trying to eliminate Wheat. If you truly have Celiac Disease, you need to eliminate all GLUTEN, which includes wheat, but not limited to.

As you wait, please read all that you can. The cure to a good life with Celiac, is plain and simple "knowlege".

Hope this will be helpful to you, Lisa

my wife just started wheat-free and feels dreadful. flu-like symptoms, naseaus, shaky. is it from "coming off" wheat/gluten? thanks all.

Was you wife dx's with celiac. Are you going Wheat Free or Gluten Free? I am not an expert, but I don't think that there is any detox after going wheat free.

Please let us know a little more about your wifes situation.........and we can add more imput. Better, than most doctors, I might add. I am sorry that she is feeling so poorly. Hope she feels better soon.

A little more info would be helpful. :)

Lisa

Mayflowers Contributor
Mayflowers
Posted

Thanks Lisa, I don't eat Barley or Rye and I gave up oats at the same time, which I haven't hardly been eating lately anyway. So now all I eat is rice and corn. I'm thinking about giving them up too. I don't think I can keep my weight down eating corn. I have been reading and asking questions, I guess you haven't been posting here in a few days. I just thanked everyone for their help and consideration in another thread tonight. :)

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evie Rookie
evie
Posted

[quote name='Mayflowers' date='Jul 21 2006, 09:26 PM' post=

I don't eat Barley or Rye and I gave up oats at the same time, which I haven't hardly been eating lately anyway. So now all I eat is rice and corn. I'm thinking about giving them up too. I don't think I can keep my weight down eating corn. I have been reading and asking questions, I guess you haven't been posting here in a few days. I just thanked everyone for their help and consideration in another thread tonight. :)

Mayflowers Contributor
Mayflowers
Posted

Thanks Evie. I've learned a lot. I also didn't know that insurance turns people down who are celiacs and gluten intolerant! cripe. That was really good to find out. I haven't been diagnosed. I'm more into natural medicine anyway. A stool test is enough for me. There is no cure except not eating gluten.

In my opinion, my only issue, is that some people posting here give way too much information. I don't need to know details about someone's bowel movement. That they should be telling their doctors, not posting it. Really grossed me out. :o

Diana

dljones Newbie
dljones
Posted
  • Author
Mayflowers:

Upon waiting for your Endo-lab response, try reading alot of these posts. You can get so much information from the people that post here.

Also, my concern for you is that said that you are trying to eliminate Wheat. If you truly have Celiac Disease, you need to eliminate all GLUTEN, which includes wheat, but not limited to.

As you wait, please read all that you can. The cure to a good life with Celiac, is plain and simple "knowlege".

Hope this will be helpful to you, Lisa

Was you wife dx's with celiac. Are you going Wheat Free or Gluten Free? I am not an expert, but I don't think that there is any detox after going wheat free.

Please let us know a little more about your wifes situation.........and we can add more imput. Better, than most doctors, I might add. I am sorry that she is feeling so poorly. Hope she feels better soon.

A little more info would be helpful. :)

Lisa

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