Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Let It Not Be My Latte

kristi

By kristi
in Gluten-Free Restaurants

Recommended Posts

kristi Rookie
kristi
Posted

I'm pretty new to this whole celiac thing so this might be an obvious mistake. I was on a good wave of health recently and went back to some of my old patterns in life and now I'm feeling crumby off and on again. I used to start my mornings with a latte. Not always the same stand. I was reading on another link warning about flavorings in vodka and "bing" a big red light came on about having "vanilla" or "cocoanut" flavoring in my latte. Now I go through stages of upset (both emotional rage and sadness of withdrawl and physical illness too) and then hope again with thinking of more food options and then my favorite reaction...denial. Please don't let it be my latte and if it might be, does anyone know of any safe flavorings I can buy and just keep in my car so I can add it to my drink afterwards? I know there is probably more pending issues for some. Sorry, I don't think I can face life without my latte ever again, well at least on the good days now that I'm feeling good enough to be out in the world.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

If you go to Starbucks the flavorings are safe. My question would be, do you have a casein intolerance? I do ... so I go for the soy chai latte now. I just don't like the espresso with soy.

lorka150 Collaborator
lorka150
Posted

i've gotten cross contaminated often in coffee shops that bake on premise. the only one i have never gotten ill at is starbucks. if the clerk has donut goo on their hands and then put the lid on your drink, it might give to some crumb residue.

to be safe, you could always just go in and order instead, and ask them to wash their hands.

CarlaB Enthusiast
CarlaB
Posted
i've gotten cross contaminated often in coffee shops that bake on premise. the only one i have never gotten ill at is starbucks. if the clerk has donut goo on their hands and then put the lid on your drink, it might give to some crumb residue.

to be safe, you could always just go in and order instead, and ask them to wash their hands.

I go in and order. It's a matter of principle. If I'm going to pay $4 for a cup of coffee, someone is going to have to smile and be nice!!!!! :rolleyes: Plus, I can see whether the same person is serving danishes as is making the coffee, or see if they set the lid down on a crummy counter, etc. I have asked for a new lid before.

I have never been glutened at Starbucks. Today I had coffee at Panera Bread. There I am MUCH more cautious!! I never get a latte because they're made back where they're making all that bread stuff, and I always get a mug and wipe it out in case there's a flour residue from when they're baking bread. I bring in my own soy creamer since I can't have dairy. Doesn't seem worth going out for a cup of coffee, but I enjoy the atmosphere of being "out" if you know what I mean.

kristi Rookie
kristi
Posted
  • Author

I don't know if I have a casein intolerance. I never used to have this problem but the way my body reacts to things has changed so much. From what I can tell it has happened at different stands or my reaction has taken time to get over. They weren't making food there but maybe they had been eating a snack. I'm still learning where I need to go get tested successfully. I'm on the West Coast. Terrible place not to be able to drink coffee. Part of my self was just sooooo happy I was feeling good enough to try.

CarlaB Enthusiast
CarlaB
Posted
I don't know if I have a casein intolerance. I never used to have this problem but the way my body reacts to things has changed so much. From what I can tell it has happened at different stands or my reaction has taken time to get over. They weren't making food there but maybe they had been eating a snack. I'm still learning where I need to go get tested successfully. I'm on the West Coast. Terrible place not to be able to drink coffee. Part of my self was just sooooo happy I was feeling good enough to try.

I never would have guessed that I had a casein intolerance, though I discovered my wheat problem on my own without a doc (years later I found out I had the gluten problem). I got tested through Enterolab, but you could just stay off dairy for a few weeks, then have some and see what happens.

Giving up coffee anywhere is hard!!!! Even her in Cincinnati we have a Starbucks on every corner, in Kroger, in the airport, in Meijers, in Target, etc.!!!

kristi Rookie
kristi
Posted
  • Author

Well, I might have been off-base with the flavoring idea. I had read somewhere about someone else having trouble with vanilla. I went off lattes and dairy then got another sick attack days later (one very long night) so I don't think it's the coffee. Sometimes I just can't digest things anymore.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
Well, I might have been off-base with the flavoring idea. I had read somewhere about someone else having trouble with vanilla. I went off lattes and dairy then got another sick attack days later (one very long night) so I don't think it's the coffee. Sometimes I just can't digest things anymore.

Keep a food diary and how you feel after eating things. You may see a pattern.

At the Starbucks I used to go to before we moved, the manager was allergic to vanilla.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    2. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    3. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
    4. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    5. Jmartes71
      - Jmartes71 replied to annamarie6655's topic in Super Sensitive People
      4

      Airborne Gluten?

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,135
    • Most Online (within 30 mins)
      7,748
    AmberR
    Newest Member
    AmberR
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.