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Gluten Intolerance Or Full Blown Celiac


ali786

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ali786 Newbie

Hi everyone, I have been reading some of the postss and some people mentioned being glucose intolerant and having a positive respone to a change in diet. I was hoping you could give me some advice. I have been having symptoms of celiac for 6 months now but not as severe as some people on this forum, mind you I am now 27. I decided to go on a gluten free diet and did so for 4 weeks and I saw dramatic changes in a few days. No more headaches, no more difficulty falling aslep, no more D but I still have a sore tongue sort of like a strawberry(I am thinking of going on folate and B-12). But here is the weird part I decided to go back on gluten to see if the symtoms would recurr and have been eating gluten for about 5 days now and so far the only thing I have is a headache and strawberry tongue still hasn't gone away. Could this mean that I don't have Celiac or am I just Gluten Intolerant? Your advice would be appreciated beacuse as of yet I can't affored expensive testing. Thank You.

ali786


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queenofhearts Explorer

Symptoms & recovery speed both vary so much among Celiacs that there is really no way of diagnosing from symptoms alone. Your healing could have already progressed to the point where digestion is more efficient, so your symptoms are different. If you want to know for sure, you should get an endoscopy/biopsy while you are still eating gluten. But if you just want to feel better, stick with a strict gluten-free diet (including all cc & cosmetics, &c.) & simply enjoy your enhanced health!

Leah

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    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
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      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
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