Waiting On Enterolab Results For My Kids. Should I Give Results To Pediatrician?

[Sarah8793]

In light of recent threads about neglect and insurance etc. etc., I don't know what I should do. I am waiting for results on both of my children who are pretty much symptom free. I was planning on putting them on a gluten free diet if necessary after EnteroLab responds. I wasn't going to mention it to their pediatrician because 1) they don't have symptoms and 2) I didn't know if it was a good idea for it to be in their medical records for future experiences with insurance. BUT I also don't want to be accused of neglect. Do they need to have a test with the pediatrician also?? So confused and paranoid now.

Sarah

[CarlaB]

I wouldn't. Not to hide it from the doc, but just because you don't need a doctor's supervision or permission to do this diet. I have six kids and don't have a pediatrition!! If the kids get sick, they usually end up at urgent care anyway, as it just doesn't seem that docs can get them in soon enough. All my kids are healthy so don't have any need for regular appts.

I wouldn't be here today if I relied on the medical profession, so I might not be the right person to ask! There's a huge lack of trust here.

[Guest nini]

I agree with Carla. You do NOT need a dr.s permission to put your children on the gluten-free diet. I got support from my daughter's pediatrician, but was going to do it with or without their support  anyway. I literally have been denied health insurance because of this and for school it's up to me to provide the notes for her, I just send in her food anyway so it's a non issue. The only thing I needed a Dr. for was notes on the medication she takes IF she is accidentally glutened (benedryl and Pepto Bismol) The entire last year of school she didn't need them and at the end of the school year I got my unopened boxes back.

[Nantzie]

Yea, I've pretty much decided to fly under the radar with the pediatrician. I was worried about the rest of my family thinking that I was just wanting her to be sick (they were really, really awful with me when I first found out about celiac). But, one of the reasons I don't want it on their permanent record is because we've got a lot of military in the family. And if by some stretch of the imagination, there is ever something like an alternative medicine "cure" for it, I don't want their choices in life to be limited by a disease that they have on paper, but aren't effected by. I'd hate for one of my kids to want to enlist in the military only to be told no because of that.

That's just in addition to insurance issues and everything else. We're kind of in the middle of things here in celiac-land because we're hearing about insurance being denied, but there was also at least one member here who was able to get Tricare (military) insurance to cover the costs of Enterolab tests.

I'm going to keep their Enterolab results just in case they ever do come out with that enzyme thing that's going into clinical trials.

I just think that things are so up in the air with all of these issues right now that it's hard to know the best thing to do. In the long run, with more and more people being diagnosed all the time, I think the military may eventually consider accommodating the diet in some way. Maybe non-combat positions only, or something like that. Same thing with insurance. We all know that finding out about celiac and stopping gluten only makes us healthier. Insurance will eventually catch on. It will have to because of the number of people effected by it.

Nancy

[Sarah8793]

CarlaB, Nini, and Nantzie,

Thank you so much for your responses. I'm not goint to bring it up with our pediatrician. Nantzie, you bring up a good point about the military. We are military and I had never thought about that. Thanks.

Sarah