Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Frustrated


Natlay

Recommended Posts

Natlay Apprentice

Ok...so I am relatively new to all of this even though I've had stomach issues my entire life. They told my mom I had spastic colon (the wonderful old name for IBS :P ) and I thought I would just have to deal with it. Then recently my doctor told me it might be gluten so I stopped eating that and felt great for a few weeks...and then the problems came back so I added corn and soy to the list. I have been off dairy since I was a baby...it gave me hives. Now I'm suspecting that potatoes give me trouble as well. I'm starting to feel better but now every time I accidentally eat something bad I feel so much worse because I finally know what it feels like to be normal again :P

So anyway...to get to the point...I'm making a new effort to eliminate all possible sources of these things in my diet. So I am wondering now about things like toothpaste and dish soaps. Does anyone know if dish soaps similar products have gluten, dairy, corn, or soy in them? I got new toothpaste last night (It tastes horrible though :blink: )

Thanks so much for any help/advice you have

Natalie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Ok...so I am relatively new to all of this even though I've had stomach issues my entire life. They told my mom I had spastic colon (the wonderful old name for IBS :P ) and I thought I would just have to deal with it. Then recently my doctor told me it might be gluten so I stopped eating that and felt great for a few weeks...and then the problems came back so I added corn and soy to the list. I have been off dairy since I was a baby...it gave me hives. Now I'm suspecting that potatoes give me trouble as well. I'm starting to feel better but now every time I accidentally eat something bad I feel so much worse because I finally know what it feels like to be normal again :P

So anyway...to get to the point...I'm making a new effort to eliminate all possible sources of these things in my diet. So I am wondering now about things like toothpaste and dish soaps. Does anyone know if dish soaps similar products have gluten, dairy, corn, or soy in them? I got new toothpaste last night (It tastes horrible though :blink: )

Thanks so much for any help/advice you have

Natalie

Hi Natalie, What a great picture and welcome. One thing you want to be careful of is overdoing any one particular food. I ended up temporarily intolerant to nightshades by eating tomatoes and potatoes in large amounts. Rotate your diet a bit it also helps to keep from gettig board with the food. You may want to check out the section of products many helpful lists there on everything from shampoos to toothpastes to pet foods etc. Some folks also have Newbie Kits with lots of info on products. Nini has one and lots of folks link to it. Many of us find that we become more sensitive, this is not in all a bad thing. It shows our bodies are starting to heal so instead of being in a constant state of inflammation it is doing a more 'here's a good shot' reaction to the poison. You have come to a great place for information and support and once again welcome.

Krista

rinne Apprentice

Welcome Natalie.

Yes, gluten is everywhere, shampoo, toothpaste, laundry soap, dish soap...plus all the foods it is in.....and drywall!!! Lots of great support here, I'm just learning myself and have found this place very helpful.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    3. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,844
    • Most Online (within 30 mins)
      7,748

    donnawebb265
    Newest Member
    donnawebb265
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.