Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac & Gerd


glen4cindy

Recommended Posts

glen4cindy Apprentice

In 2003 I had surgery for GERD an hoped it was the cure for my heartburn AND my other symptoms which I later learned were gluten intolerance.

I am again having problems with GERD and am seeing a GI dr. next week. My regular MD prepared me for being scoped, probably from both ends!

Since I have never sought nor been given a diagnosis of Celiac, nor have I been checked for any kind of damage, would this be a good time to talk to the Dr. about getting a biopsy while he is "in there"?

I don't even know if this is possible, so, if anyone has any advice, please advise.

Thanks,

Glen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator

Have you been following a gluten free diet since your were diagnosed gluten intolerant? If you have continued to eat gluten while being gluten intolerant this can lead to coeliac.

If you have been gluten free since 2003, chances are they if there was any damage this would've healed by now. Talk to the doctor see what he says.

Hope you get some answers to your question soon.

Cathy

glen4cindy Apprentice
Have you been following a gluten free diet since your were diagnosed gluten intolerant? If you have continued to eat gluten while being gluten intolerant this can lead to coeliac.

If you have been gluten free since 2003, chances are they if there was any damage this would've healed by now. Talk to the doctor see what he says.

Hope you get some answers to your question soon.

Cathy

Actually, my MD did not call it gluten intolerance or Celiac. He suggested I may be allergic to bread. I still ate "breaded" things for awhile until I realized that I was still eating bread. I did my own research and concluded that gluten was possibly the problem instead of just bread.

I have tried to be as gluten free as possible, but, three weeks ago, I made some fried chicken and used corn flakes as part of the coating. I ate this over three days and then ate cereal that I did not see had wheat starch in it. This made me really sick, so, there may still be evidence of damage since I have had recent exposure.

Thanks. I am planning on discussing this with the GI MD.

Guest cassidy

I had a nissen in 1988 (I'm assuming that is what you had). It worked well until 1 1/2 years ago. My heartburn came back like crazy. They told me the wrap was compromised and I needed another one. I was scheduled in February and I called off the surgery 3 days before it was to happen.

My mother was diagnosed (self diagnosed) with celiac in September and in January she told me she thought I had it. I went gluten-free and felt so much better. During that time I had an upper gi, an endoscopy, a 24 hour ph test and several others. I told the doctor I thought it was celiac and he said he didn't think so. That celiac was rare and that wasn't what was wrong with me. I told one doc was I had gone gluten-free and he said, don't you cheat and have a beer or two on the weekends?

Basically, I was supposedly seeing the best gi docs in town and none of them thought I had celiac and they were all willing to do another lap. I'm so glad I didn't trust them. My reflux is totally gone. It does come back when I'm glutened - and lasts for about two weeks. It did take about 2-3 months for it to go away in the beginning. That is probably because I was glutening myself fairly regularly in the beginning.

I don't have any advice on what to ask the doctors because I am fairly bitter about what they put me through and how they never figured out what was wrong with me or believed me when I told them what was making me better. I wouldn't recommend another nissen and I would recommend going gluten-free and seeing if that helps.

tiffjake Enthusiast

I had GERD so bad I was on Nexium and Reglan (nearly throwing up after every meal) and refused a surgery. I knew it had to be food related, and got tested. Found out about Celiac, had those tests, and went gluten-free. No more GERD! Proof for me!

Hope you feel better soon!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.