Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This The Gluten/wheat?

HappyCat22

Recommended Posts

HappyCat22 Apprentice
HappyCat22
Posted

On Saturday night we had company coming, so my family ate out. I foolishly ate croutons, and half of a piece of bread. I was perfectly fine that night (except a few stomach problems)! Yesterday, as we were taking company around we ate out again. I had grilled chicken with BBQ sauce. (it was a BBQ place so everything had BBQ sauce!) It was either eat and risk gluten or starve (and I was SO hungry!). My mom who has Celiac said she was fine! I, on the other had knew immediately after eating the meal, that there was gluten/wheat in it somewhere. I had the usual twinge in my stomach right after I ate it! I was fine until we drove to the beach later. Before we left, all I had was and iced coffe with lactaid milk in it and sugar. I started feeling sick in the car. I got REALLY dizzy! Then as we got the the beach I got nausea, and I started feeling weak/my arms and legs got heavy. As we were walking back from the beach I felt like I could not breath and was going to pass out in the sand! I made it back to the car though, but my hands were shaking like crazy! My face also got really flushed (I felt almost like I had a fever!). I've gotten this several times before now. Is this from the gluten/wheat, or is it from caffiene? I'mjust so confused! My mom just thinks I didn't eat enough, but I ate alot yesterday!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Connie R-E Apprentice
Connie R-E
Posted

It certainly could be a combination of things like caffeine, eating gluten and milk(in the coffee) together, low blood sugar, heat...

But, I have had this happen to me with just eating gluten(accidentally)!

I got REALLY dizzy!  ...I got nausea, and I started feeling weak/my arms and legs got heavy.  ...I felt like I could not breath and was going to pass out...  ...my hands were shaking like crazy! My face also got really flushed (I felt almost like I had a fever!).

I felt like I would fall off of the floor, and I was lying on it!

It's like being really drunk ...and the room starts spinning, too!

What a horrible symptom to have! I feel for you. :)

I think it's the gluten, 'cause it happens to me, too.

Connie

gluten-free since 1-'98

  • 1 month later...
Mballerina Explorer
Mballerina
Posted

Everything you described is exactly what i feel after eating gluten. Really dizzy and really nauseated and my arms get heavy and i know that i wouldn't make it walking around the block. This is how i discovered that someone sold me the wrong iron supplement that wasn't gluten-free. Listen to what your body tells you, it will definitly let you know when you have been poisoned.

byuiemily Newbie
byuiemily
Posted

I've also experienced this several times. I would get really dizzy and feel like the room was moving and in my worst episodes I would still be conscious but my eyes would black out, like I was blind and my hearing would be almost completely gone. It was the most weird feeling ever and the whole time I was flushed and felt like I had a fever and that I could possibly die. Thankfully this hasn't happened for over a year now.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. daniellelawson2011
      - daniellelawson2011 replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

      Thank you for the welcome and reply. The first test was tissue transglutaminase IGA and it was normal. The second test just simply says IGA and it was 638. You definitely answered my question, it sounds like im negative for celiac since the 1st test was normal, and that another condition has caused the abnormal result of the IGA. That's exactly what I was...
    2. trents
      - trents replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

      Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check...
    3. daniellelawson2011
      - daniellelawson2011 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

      After struggling with many different symptoms for years with no diagnosis, I decided to do my own research and I stumbled upon an article about celiac disease. I asked my PCP to order a ttg and iga. The results: the iga was high at 638. The ttg was negative. Of course I will discuss with my doctor, but i would like to hear from people that have went through...
    4. Joe R
      - Joe R replied to Joe R's topic in Related Issues & Disorders
      2

      Immunologist Referral if IgA Deficient

      Thank you for your advice. I appreciate the help.
    5. nanny marley
      - nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Help needed

      Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,695
    • Most Online (within 30 mins)
      7,748
    NeonCrest1
    Newest Member
    NeonCrest1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • daniellelawson2011
      Lab results

      By daniellelawson2011 · Posted

      Thank you for the welcome and reply. The first test was tissue transglutaminase IGA and it was normal. The second test just simply says IGA and it was 638. You definitely answered my question, it sounds like im negative for celiac since the 1st test was normal, and that another condition has caused the abnormal result of the IGA. That's exactly what I was wondering. Im almost positive I have MS and I've read results are higher like that with early onset. Or it could be IBS. Hopefully the visit with the neurologist will give me even more answers and point to a final diagnosis. I really appreciate you taking the time to reply and for helping. Thank you so much!
    • trents
      Lab results

      By trents · Posted

      Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check for iga deficiency. If you are iga deficient, then the ttg-iga and other iga tests that are specific for celiac disease will be abnormally low and this would potentially produce false negatives. You are not iga deficient but, rather, your total iga is abnormally high. This can suggest underlying health conditions, some of them can be serious in nature.  https://labs.selfdecode.com/blog/high-iga/ "High IgA usually points to chronic infections or inflammation, though many disorders can raise its levels. High IgA does not cause symptoms. People show symptoms from their underlying health problem." One thing I might add and that is you must have been eating normal amounts of gluten for weeks/months prior to the blood draw for antibody testing. Testing while on a gluten free or gluten reduced diet will not yield valid results. Also, here is a primer outlining the various antibody tests that can be ordered to check for celiac disease:  
    • daniellelawson2011
      Lab results

      By daniellelawson2011 · Posted

      After struggling with many different symptoms for years with no diagnosis, I decided to do my own research and I stumbled upon an article about celiac disease. I asked my PCP to order a ttg and iga. The results: the iga was high at 638. The ttg was negative. Of course I will discuss with my doctor, but i would like to hear from people that have went through the process of diagnosis to maybe give me some insight on what this means and where to go from here. Also of note, i had a brain mri which showed white lesions which arent typical at 44 years old. I have many MS symptoms. I go to the neurologist on Tuesday, but just curious if anyone knows if there is a correlation between iga and MS. I appreciate any help! Thanks!
    • Joe R
      Immunologist Referral if IgA Deficient

      By Joe R · Posted

      Thank you for your advice. I appreciate the help. 
    • nanny marley
      Help needed

      By nanny marley · Posted

      Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which if not on the diet I would have to avoid anyways has I don't tolerate many fruit juices so I'm sure I've done the right thing I did try to contact the department on my letter but weirdly enough it was ringing but then after a while saying wrong number 🤷 but again I'm positive I've done the right thing I'm going to take today very lightly too with low portions and more liquids so yes thankyou for that advise I am very nervous but I have had time to think and read other peoples experiences and not all are bad there is some good advise and reassuring information from people who do these all the time so I'm trying my best to be positive so I can at least settle my mind knowing im doing this to help my own health has this year has been a rollercoaster for me cutting out gluten and lactose was a good idea but I still get flare ups and other symptoms so it definitely is worth a check like you said it was the calprotein that prompted the doctor to refer me again thankyou for your reply it's means a lot for someone to take the time to listen and respond and give uplifting advise  especially to me just now has I'm a bundle of nerves inside getting closer to tomorrow prep so thankyou for that 🙏
×
×
  • Create New...