Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have Trouble With So Many Foods

CantEvenEatRice

Recommended Posts

CantEvenEatRice Enthusiast
CantEvenEatRice
Posted

Hi Everyone,

I was diagnosed with Celiac about 3 years ago and when I went on the diet, my symptoms improved dramatically. However, as time has passed, I have developed more and more problems with so many foods. I cannot eat dairy, soy, corn, tomatoes, bananas, beans, and now even rice! I feel so overwhelmed trying to figure out what to eat as well as why this is happening?! If I eat these foods, I usually react within 24 hours with bloating, cramps, painful gas, diarrhea and muscle aches. I am then tired for days. I suffer from a lot of fatigue in general, not as much as before the gluten free diet, but definitely more then I think I should at my age (28). Any help would be greatly appreciated!

Thank you so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

It sure sucks when your diet is so restricted. You sound like you may be intolerant to lectins. If you'd eliminate them all for a while, your energy level might improve. Check my lectin link in my signature for more information.

The bananas could be a problem because of high carb level, and/or mold I am told. Because even though theoretically I shouldn't be intolerant to them (they don't have lectins, salicylates or gluten), I cannot eat more than one a week without getting a mild allergic reaction (oral allergy syndrome).

Just to make this easier, here are the lectin groups: All grains (including rice and corn), all dairy, legumes (including soy and peanuts), eggs, and nightshades (potatoes, tomatoes, pepper, eggplant). Pepper includes ALL peppers, and paprika is made from a pepper.

It says that after staying away from all of those for about a year, most people will then end up being able to eat some of those again, and will be permanently intolerant to only one or two of those groups (I just wished that would happen to me <_< ). Of course, people with celiac disease and lectin intolerance will likely be intolerant to grains for the rest of their life at the least.

CantEvenEatRice Enthusiast
CantEvenEatRice
Posted
  • Author

Thank you very much for your response. Can you give me some examples of what you eat? It seems very difficult to stay away from so many foods. I pretty much eat meat, potatoes and vegetables (except corn and tomatoes). Should I cut out potatoes even if I don't think I react to them? I would do anything to have more energy. I have been tired my whole life!

DingoGirl Enthusiast
DingoGirl
Posted

Hello,

so sorry you're having trouble. You sound like many people on a very busy thread on this board - - don't be scared, it's over 300 pages long now, but I think you'd find the information in that very helpful (start at the beginning - - we've gotten more than a little silly now about midway and formed our own town, even :blink: - lots of laughs!). Some people on that thread have had to figure out so many things due to intolerances, maybe you could learn from their experiences. And no, you don't have to read the whole thing!

Good luck.

p.s. it's called "OMG I think I can eat dairy again" :)

CantEvenEatRice Enthusiast
CantEvenEatRice
Posted
  • Author
Hello,

so sorry you're having trouble. You sound like many people on a very busy thread on this board - - don't be scared, it's over 300 pages long now, but I think you'd find the information in that very helpful (start at the beginning - - we've gotten more than a little silly now about midway and formed our own town, even :blink: - lots of laughs!). Some people on that thread have had to figure out so many things due to intolerances, maybe you could learn from their experiences. And no, you don't have to read the whole thing!

Good luck.

p.s. it's called "OMG I think I can eat dairy again" :)

Thanks Susan! I will check it out! I am so glad that I found this board. I was feeling pretty overwhelmed and lost!

Ursa Major Collaborator
Ursa Major
Posted

I suggest you do what I did. I eliminated all lectins for a while, and then tried one group at a time to see if I'd react to them (two weeks apart so you don't miss delayed reactions). You may not be intolerant to all of them, or at least not for good.

You can still eat all fruits, most vegetables, nuts and seeds, all meat, and you can bake with non-grain flours like buckwheat, nut-flours, tapioca and arrowroot flour.

I would wait at least a month before trying any of the lectin foods again (other than gluten grains, of course, you won't outgrow that problem).

CantEvenEatRice Enthusiast
CantEvenEatRice
Posted
  • Author
Hello,

so sorry you're having trouble. You sound like many people on a very busy thread on this board - - don't be scared, it's over 300 pages long now, but I think you'd find the information in that very helpful (start at the beginning - - we've gotten more than a little silly now about midway and formed our own town, even :blink: - lots of laughs!). Some people on that thread have had to figure out so many things due to intolerances, maybe you could learn from their experiences. And no, you don't have to read the whole thing!

Good luck.

p.s. it's called "OMG I think I can eat dairy again" :)

Susan, can you post a link to that thread? I must be looking in the wrong place. Thanks! ~Noelle

Susan, can you post a link to that thread? I must be looking in the wrong place. Thanks! ~Noelle

I just found it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CeliacStinksKLS Newbie
CeliacStinksKLS
Posted

I'm sorry you're so restricted. I know it sucks, cause I can relate to you on the restricted part. I can ONLY eat soluable foods. Right now because of my stomach, I'm only on liquids and baby food. When I'm not having a hard time, I can add in other soluable foods, but it's not a big list. And not being able to eat gluten on top of every thing, I'm very restricted. Just gotta adapt the best you can.

KLS

sspitzer5 Apprentice
sspitzer5
Posted

Hi,

Sorry that you are so restricted. I sure know how that feels. It's extremely frustrating.

I decided to do a 96 food igg test and FINALLY got it back. It shows that I have a huge reaction to almonds! Of course, I eat almonds every single day because they are in my gluten free bread. DOH.

I know not everyone thinks these test are accurate, but it might be worth it for you. I sure hope the almonds make a difference because I feel like I just can't take much more.

S

Lymetoo Contributor
Lymetoo
Posted

You might also check into yeast or candida as a possible cause of your bloating and cramps, etc.

here is some info:

Candida diet and elimination:

Open Original Shared Link

Open Original Shared Link

Lyme symptoms list compared with yeast symptoms

Open Original Shared Link

"Successful control and elminiation of a Candida Albicans overgrowth requires a multifaceted program as described below. Failure to follow ALL the steps simultaneously will result in slow progress and will lengthen healing time significantly. The program should be tailored to the individual and must balance the need to eliminate the Candida and deprive it of its food source while insuring proper nutrition for the individual."

Five Steps to Candida Elimination:

1. You must starve it into submission by eliminating its food source.

2. You must kill it with anti-fungal herbs and supplements. [e.g....garlic, onion, caprylic acid, Pau D'Arco capsules or tea, clove, grapefruit seed extract, olive leaf extract, oil of oregano, tea tree oil, Echinacea, Goldenseal, black walnut, MSM, barberry root, uva ursi, neem leaf, biotin]

3. You must reestablish the proper balance and quantity of probiotic bacteria in the digestive tract. [...multi-strain lactobacillus acidophilus and bifidus capsules with FOS should be taken between meals to maximize repopulation of the digestive tract by beneficial bacteria.]

4. You must reestablish proper levels of all B vitamins (yeast free) and utilize other immune enhancing supplements to boost immune system function. [e.g ... B complex vitamins (yeast free), biotin, beta 1-3 glucan, colostrum, maitake mushroom, vitamins A, C, E, zinc and selenium]

5. You must cleanse and heal the digestive tract to promote proper elimination of toxins and Candida and assimilation of nutrients. [e.g...chlorophyll, MSM, omega 3 fatty acids found in flax seed and salmon oils, GLA found in borage, evening primrose and black currant oils. Pantothenic acid, digestive enzymes between meals]

CantEvenEatRice Enthusiast
CantEvenEatRice
Posted
  • Author

Thank you for the responses. I am finding so much good information here. Lymetoo-I had Lyme Disease too and spent 6 months on iv antibiotics. They say you never really get rid of it though. I think the antibiotics messed up my stomach more. Did you go on iv meds?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest...
    2. trents
      - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test. In...
    3. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covere...
    4. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced. Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well. Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside...
    5. Wheatwacked
      - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748
    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Have I got coeliac disease

      By trents · Posted

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
    • trents
      Have I got coeliac disease

      By trents · Posted

      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      Have I got coeliac disease

      By Wheatwacked · Posted

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.