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Can'tEvenEatRice!

Have Trouble With So Many Foods

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Hi Everyone,

I was diagnosed with Celiac about 3 years ago and when I went on the diet, my symptoms improved dramatically. However, as time has passed, I have developed more and more problems with so many foods. I cannot eat dairy, soy, corn, tomatoes, bananas, beans, and now even rice! I feel so overwhelmed trying to figure out what to eat as well as why this is happening?! If I eat these foods, I usually react within 24 hours with bloating, cramps, painful gas, diarrhea and muscle aches. I am then tired for days. I suffer from a lot of fatigue in general, not as much as before the gluten free diet, but definitely more then I think I should at my age (28). Any help would be greatly appreciated!

Thank you so much!

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It sure sucks when your diet is so restricted. You sound like you may be intolerant to lectins. If you'd eliminate them all for a while, your energy level might improve. Check my lectin link in my signature for more information.

The bananas could be a problem because of high carb level, and/or mold I am told. Because even though theoretically I shouldn't be intolerant to them (they don't have lectins, salicylates or gluten), I cannot eat more than one a week without getting a mild allergic reaction (oral allergy syndrome).

Just to make this easier, here are the lectin groups: All grains (including rice and corn), all dairy, legumes (including soy and peanuts), eggs, and nightshades (potatoes, tomatoes, pepper, eggplant). Pepper includes ALL peppers, and paprika is made from a pepper.

It says that after staying away from all of those for about a year, most people will then end up being able to eat some of those again, and will be permanently intolerant to only one or two of those groups (I just wished that would happen to me <_< ). Of course, people with celiac disease and lectin intolerance will likely be intolerant to grains for the rest of their life at the least.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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Thank you very much for your response. Can you give me some examples of what you eat? It seems very difficult to stay away from so many foods. I pretty much eat meat, potatoes and vegetables (except corn and tomatoes). Should I cut out potatoes even if I don't think I react to them? I would do anything to have more energy. I have been tired my whole life!

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Hello,

so sorry you're having trouble. You sound like many people on a very busy thread on this board - - don't be scared, it's over 300 pages long now, but I think you'd find the information in that very helpful (start at the beginning - - we've gotten more than a little silly now about midway and formed our own town, even :blink: - lots of laughs!). Some people on that thread have had to figure out so many things due to intolerances, maybe you could learn from their experiences. And no, you don't have to read the whole thing!

Good luck.

p.s. it's called "OMG I think I can eat dairy again" :)


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Hello,

so sorry you're having trouble. You sound like many people on a very busy thread on this board - - don't be scared, it's over 300 pages long now, but I think you'd find the information in that very helpful (start at the beginning - - we've gotten more than a little silly now about midway and formed our own town, even :blink: - lots of laughs!). Some people on that thread have had to figure out so many things due to intolerances, maybe you could learn from their experiences. And no, you don't have to read the whole thing!

Good luck.

p.s. it's called "OMG I think I can eat dairy again" :)

Thanks Susan! I will check it out! I am so glad that I found this board. I was feeling pretty overwhelmed and lost!

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I suggest you do what I did. I eliminated all lectins for a while, and then tried one group at a time to see if I'd react to them (two weeks apart so you don't miss delayed reactions). You may not be intolerant to all of them, or at least not for good.

You can still eat all fruits, most vegetables, nuts and seeds, all meat, and you can bake with non-grain flours like buckwheat, nut-flours, tapioca and arrowroot flour.

I would wait at least a month before trying any of the lectin foods again (other than gluten grains, of course, you won't outgrow that problem).


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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Hello,

so sorry you're having trouble. You sound like many people on a very busy thread on this board - - don't be scared, it's over 300 pages long now, but I think you'd find the information in that very helpful (start at the beginning - - we've gotten more than a little silly now about midway and formed our own town, even :blink: - lots of laughs!). Some people on that thread have had to figure out so many things due to intolerances, maybe you could learn from their experiences. And no, you don't have to read the whole thing!

Good luck.

p.s. it's called "OMG I think I can eat dairy again" :)

Susan, can you post a link to that thread? I must be looking in the wrong place. Thanks! ~Noelle

Susan, can you post a link to that thread? I must be looking in the wrong place. Thanks! ~Noelle

I just found it!

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I'm sorry you're so restricted. I know it sucks, cause I can relate to you on the restricted part. I can ONLY eat soluable foods. Right now because of my stomach, I'm only on liquids and baby food. When I'm not having a hard time, I can add in other soluable foods, but it's not a big list. And not being able to eat gluten on top of every thing, I'm very restricted. Just gotta adapt the best you can.

KLS

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Hi,

Sorry that you are so restricted. I sure know how that feels. It's extremely frustrating.

I decided to do a 96 food igg test and FINALLY got it back. It shows that I have a huge reaction to almonds! Of course, I eat almonds every single day because they are in my gluten free bread. DOH.

I know not everyone thinks these test are accurate, but it might be worth it for you. I sure hope the almonds make a difference because I feel like I just can't take much more.

S

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You might also check into yeast or candida as a possible cause of your bloating and cramps, etc.

here is some info:

Candida diet and elimination:

Lame Advertisementubb/Forum1/HTML/021412.html

http://www.wholeapproach.com/diet/

Lyme symptoms list compared with yeast symptoms

Lame Advertisementubb/Forum1/HTML/021202.html

"Successful control and elminiation of a Candida Albicans overgrowth requires a multifaceted program as described below. Failure to follow ALL the steps simultaneously will result in slow progress and will lengthen healing time significantly. The program should be tailored to the individual and must balance the need to eliminate the Candida and deprive it of its food source while insuring proper nutrition for the individual."

Five Steps to Candida Elimination:

1. You must starve it into submission by eliminating its food source.

2. You must kill it with anti-fungal herbs and supplements. [e.g....garlic, onion, caprylic acid, Pau D'Arco capsules or tea, clove, grapefruit seed extract, olive leaf extract, oil of oregano, tea tree oil, Echinacea, Goldenseal, black walnut, MSM, barberry root, uva ursi, neem leaf, biotin]

3. You must reestablish the proper balance and quantity of probiotic bacteria in the digestive tract. [...multi-strain lactobacillus acidophilus and bifidus capsules with FOS should be taken between meals to maximize repopulation of the digestive tract by beneficial bacteria.]

4. You must reestablish proper levels of all B vitamins (yeast free) and utilize other immune enhancing supplements to boost immune system function. [e.g ... B complex vitamins (yeast free), biotin, beta 1-3 glucan, colostrum, maitake mushroom, vitamins A, C, E, zinc and selenium]

5. You must cleanse and heal the digestive tract to promote proper elimination of toxins and Candida and assimilation of nutrients. [e.g...chlorophyll, MSM, omega 3 fatty acids found in flax seed and salmon oils, GLA found in borage, evening primrose and black currant oils. Pantothenic acid, digestive enzymes between meals]


Negative biopsy for celiac 1980

Fibromyalgia 1980

IBS 1980

Interstitial Cystitis 1992

Systemic yeast

Diagnosed w/ Chronic Lyme Disease 2000

Diagnosed w/ Chronic babesia 2000

Tachycardia 2001

Asthma 2005

Have had Lyme and babesia for

about 48 yrs.

Began gluten-free July 19 '06

Native TEXAN living in Missouri

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Thank you for the responses. I am finding so much good information here. Lymetoo-I had Lyme Disease too and spent 6 months on iv antibiotics. They say you never really get rid of it though. I think the antibiotics messed up my stomach more. Did you go on iv meds?

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