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What Is Wrong With Me!


KayJay

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KayJay Enthusiast

My stomach has been hurting for the last few weeks. I have been nauseated just about all day long. I have no idea what is going on. I am gluten-free and have been for 3 years now. I don't drink milk or soy. I just can't pin point what is causing all of these problems. My dh keeps telling me to go to the doctor but when I did a few months ago he didn't know what was wrong. He said it could be an ulcer and wanted to send me to a GI. I have seen so many doctors that all don't know what is wrong that I feel it is a waste of money to go. My dh thinks I am nuts but I figure you guys could understand where I am coming from.

Besides, I think it is something that I am eating. I have no idea what it could be. Unless I have become super sensitive to milk products. I do eat cheese and sour cream etc..

Any ideas?


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Robert Brown Newbie

When you get the chance, please reply with a list of what your typical diet includes. It's a very real possibility that milk is hurting you. Try cutting out dairy for a week and see what happens.

Rob

jknnej Collaborator

It could be a whole host of things:

are you pregnant? I'm assuming not-that's usually the first thing you'd rule out!

How is your blood sugar? Thyroid?

You could be lactose intolerant, you could have other food allergies, and believe it or not, you could have anxiety. One major way my anxiety presents is with nausea, and a lot of it. Only when I started taking anxiety meds did I realize how sick it was making me because all of a sudden I was 100% better.

Are you taking any meds that have nausea as a side effect? There are MANY that have it as a side effect. I was taking heartburn meds once that made me really nauseated and didn't realize the meds were doing it until I stopped taking it.

If none of the above then I guess your doctor will have to tell you what tests you should have...that's all I can think of.

KayJay Enthusiast

Thanks no I am not pregnant something else is going on. I am going to cut out all dairy and see what happens. Last night for dinner I had grilled fish and a baked potato with just a tab bit of butter on it. About 10 mins. after eating my head felt dizzy and started spinning. Then I started to feel sick. This happens every time I eat no matter what I eat. Any ideas?

CarlaB Enthusiast

That's how the casein in the butter would have made me feel. I'd cut out all dairy and see how you do. Be careful about replacing it with soy ... I did that and found I didn't get better ... then I cut out the soy, too. Things are finally starting to look up! (Maybe, still feeling pretty sick, but nothing like I was).

miles2go Contributor
Thanks no I am not pregnant something else is going on. I am going to cut out all dairy and see what happens. Last night for dinner I had grilled fish and a baked potato with just a tab bit of butter on it. About 10 mins. after eating my head felt dizzy and started spinning. Then I started to feel sick. This happens every time I eat no matter what I eat. Any ideas?

This is the question that a lot of us have that never seems to get answered. When you can't eat anything, what are you supposed to eat? I've had success with eliminating some lectins in the past and appreciate Ursula's link to the website in her signature. On the other hand, there's the Paleo diet approach. Macrobiotics would have you eat brown rice and nothing else for a time. I'm willing to try another elimination diet, but at this point, I honestly wouldn't know what I could eat. I've got the wheat, corn, soy, shellfish, green beans, broccoli, beets, pears thing going and was vegetarian beforehand, so there's the other issue of whether or not you get that enzyme back after being veg for a length of time in order to properly digest meat, as well as the question of if certain food families should be avoided Marjorie Hurt Jones has a kind of radical approach, at least according to my dietician that involves a rotation diet of foods that you know don't hurt you (like we can tell that, eh? :)) and eating a lot of those foods at any particular meal over the course of a day to achieve a balanced diet while keeping a food diary, of course! I don't know if I think this is the best plan for me because of my level of atopy, but I've been doing a rotation diet for many years and think that if, geez, I could just get the right elements into the rotation, I might get some relief. So there's a rather non-answer to your question, sorry, but I think the dairy, the fish and the nightshade potato are kind of calling out to me in your dinner from last night. Hope you get to feeling better soon! If I think up a better strategy, I'll certainly post.

KayJay Enthusiast

Thank you so much! Okay so I just looked at some stuff and read that Casien intolerance is just like Gluten you can never have it. I had the Entrolab done and came back gluten and casien intolerant. I cut Casien out pretty much of my diet but it has slowly been creeping back in. I thought if I cut it out completely that I would be able to have it once my body healed. hmmm guess not. This stinks!!! :(

I just went back and looked at my Entrolab results and it said 20 units for Casien and normal is under 10. That isn't so bad is it? Although, it sounds like it doesn't really matter the levels if they are high you can't have it huh?


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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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