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HeatherMelissa

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HeatherMelissa Apprentice
HeatherMelissa
Posted

Hi, well, my ped. just diagnosed my daughter today with celiac disease.

My daughter is 2 and a half and has had unexplained anemia for quite some time. Her blood tested positive tow out of three times, yet her endoscopy and colonoscopy came back looking great. The GI doc just retruned from a conference in Paris regarding celiac disease and feels confident in this diagnoses. I am actually relieved. I have felt this is what the problem was for quite some time. It feels good to start working on getting her healthy.

Shoot, I forgot to mention that she has Down syndrome also. Anyhow, she is an extemely picky eater. Seriously she eats yogurt from breaksafet, applesauce for a snack. Beans and Orzo (an orzo that I found made from lentil beans, gluten free) And chocolate pudding. Oh, and gold fish crackers. So, I know the crackers have to go, and I have found gluten-free cheese crackers on line, but she won't eat anything that is not shaped like a goldfish. The yogurt has corn food starch. The applesauce is OK. So, I guess my two questions are, anyone see any fish shaped gluten-free cheese crackers? And, how do you know is the food starch in food is safe? Oh, I am also pumping breastmilk for her since I have a 6 month old. Should I be gluten-free too?

Thanks, off to bed, my eyes hurt from so much reading! :blink:

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lovegrov Collaborator
lovegrov
Posted

If the food starch is named, like corn, then you know what it is. If it says modified food starch you then have to call the manufacturer and ask if it's gluten-free because it could be modified wheat starch. Usually it isn't, but it could be.

Can't help on the others.

richard

chasesmom Newbie
chasesmom
Posted

Hi,

Gluten DOES travel through the breastmilk. If you are going to continue to pump breastmilk for your daughter, you should also be on a gluten free diet. It is great you are still giving her milk, it will continue to boost her immune system. Good luck finding the crackers, I have not had good luck finding a tasty cheese cracker my son finds appealing. Take Care!

Colleen

flagbabyds Collaborator
flagbabyds
Posted

You could always bake cheese crackers and cut them into fish shapes

celiac3270 Collaborator
celiac3270
Posted

Applesauce....as long as it's all apples...and some sugar, perhaps, it's fine.......oh, yeah, I just saw that you said you found one that was fine.

There are plenty of gluten-free yogurts...don't know which cause I'm still dairy-free; in the recovery stage. Scroll up and hit "site map" on the left...then find something that says something like "gluten-free products" or "gluten-free foods"....click that...you can look at a category of things: such as gluten-free sodas or gluten-free hotdogs/corndogs......etc.

Choc. pudding....Kozyshack makes a gluten-free chocolate pudding which I ate before going gluten-free and I loved it -- it's great. Many Jello products are gluten-free......someone might know if their choc. pudding is gluten-free?

I posted on some other post that you wrote.....oh yeah, in this section......anyway, good luck with the cheese crackers in the shape of fish.... :)

-celiac3270

HeatherMelissa Apprentice
HeatherMelissa
Posted
  • Author

Thanks everyone. I researched and her yogurt, applesauce and pudding are fine. We found a recipe for Pepperridge Farm Gold Fish, we are ordering a cookie cutter and everything :) And her soup is made with either potatoe, corn or wheat starch, whatever they have on hand. The rest of the ingredients are simple, so I think I 'll just try to make it myself. THANK YOU

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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