Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Would You Go To The Gi?


mike2184

Recommended Posts

mike2184 Rookie

I am supposed to go the the GI next week, and I am trying decide whether I should still go.

My symptoms before going gluten-free were never too bad, as I only started going to the doctor about 5 months before I went gluten-free. I had D about once a week, tingling in hands/feet, colds about every 3 weeks.

I have been gluten-free for 8 weeks now, and I have definitely had the positive response that I was looking for. I know that I am at the very least gluten intolerant, and I will never knowingly eat gluten again. I feel that my trial has been long enough that I know that gluten is what makes me sick.

I guess I was still thinking of going to make sure nothing else is wrong. I have had normal bloodwork, no unusual stomach pain, no D except when I eat gluten, no blood in stool. My unprofessional diagnosis is that gluten is the only problem and I don't have Chron's or UC, but again that is just unprofessional.

I also wanted to get some advice on supplements. I am currently taking Nature's Made Multi, Vitamin C, B12 and Magnesium (for my neurological symptoms). I still get tingling from time to time that is improving - I know people have mentioned sublingual B12, but I'm not sure where to get them.

So, I'd just like some opinions on where to go from here. Oh, and I'm a 31 year old male if that helps any.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mayflowers Contributor

Hi Mike,

If you've been eating wheat for 30 years then it's going to take some time for the body to heal. I read other people had the same symptoms here, tingling in hands and feet. Just make sure you don't have gluten sneaking in somewhere... I just read on the carton of Rice Dream that it contains barley gluten.. I was so annoyed. I had to throw it out!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,570
    • Most Online (within 30 mins)
      7,748

    Moody
    Newest Member
    Moody
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.