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Dealing With Dairy

celiac3270

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celiac3270 Collaborator
celiac3270
Posted

Hi,

A question about how to deal with dairy: I do not have any allergies to dairy/casein/lactose or lactose intolerance or anything like that, but like many Celiacs in the recovery stage, I react to dairy....in large amounts. For example, at the beginning of the diet, I ate a big bowl of gluten-free ice cream.....and I got sick that night from the dairy. I've heard something about using lactaid pills to deal with dairy (but I don't have any intolerances). Does that really work? Is it a good idea? Does anybody do this? I can deal with limited dairy, but I was wondering if anyone w/o intolerances uses this method so that they can still eat dairy....just interested. Thanks.

-celiac3270

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judy04 Rookie
judy04
Posted

celiac3270,

I can't help you about taking lactaid, I haven't tried it yet.

I did want to let you know that the original Lactaid made

by McNeil (makers of Tylenol) is gluten-free.

burdee Enthusiast
burdee
Posted

Hi celiac3270:

Long before my undiagnosed celiac symptoms became painful enough to suspect celiac disease, I reacted painfully to dairy. So my doctor suggested 'lactaid' supplements (chewable tablets) and lactose-free milk. That DID help for a while, so I didn't have cramping pains after I consumed dairy. HOWEVER, eventually recurrent pain led me to suspect celiac and try the gluten-free diet. Even while gluten-free and using lactaid, I still had lingering symptoms. When my Enterolab results indicated antibodies to gluten AND casein, I understood that lactaid didn't protect me from the milk protein casein, but only the milk sugar lactose (so I have to avoid all forms of dairy now). :o I have other celiac friends in my support group who can successfully use lactaid supplements and milk to consume dairy w/o symptoms. So I guess I would answer your question "Yes (for lactose intolerance)" and "NO (for cow's milk--which includes casein--intolerance)". ;)

BURDEE

celiac3270 Collaborator
celiac3270
Posted
  • Author

Okay...thanks, for the replies...I guess if I can just avoid large amounts of dairy, that's better, anyway.

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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