My Test Results

[susiek]

My doctor called and told me everything tested in the normal range. Here are the results. I'm typing them directly from the lab report she faxed me. Everything also says "see comments" and I cannot find a comments page.

Here are the results:

IgA=303 (normal range: 68-378)

Endomysial Abs: Negative

Gliadin IgG=23.1 (negative range: < or - 25.0 EU)

Gliadin IgA=8.4 (negative range: < or -25.0 EU)

Transglutaminase IgG Auto ABs=<6.0 (negative range: <6.0)

Transgluaminase IgA Auto ABs=<4.0 (negative range: <4.0)

I have an appointment with the gastro in two weeks. I'm also anemic.

Thanks in advance!

[Nantzie]

They look negative to my untrained eye. I also had negative blood tests (actually, very similar numbers to your's...), as well as a negative biopsy, but a dramatic improvement after trying the gluten-free diet. My doctor is blown away by my improvement, but technically I don't have celiac. Now, my doctor encourages her patients who come in with celiac symptoms but test negative to try the diet anyway. There are a lot of cases of false negatives from blood and biopsy. So just keep that in mind as you're exploring the possibility that gluten may be causing a problem for you. I hope you give the diet a try even if all your tests come back negative. I did and it changed my life.

Nancy

[susiek]

Thanks, Nancy. I did the gluten free diet for a week and really did feel better. Then the sheer weight of it made me think, "I'm negative...I don't need to be gluten free." But after nearly a week on gluten, I'm going back off it! lol For some strange reason, the diarrhea and stomach cramps have been worse than this week than right before I went off. But not as bad as when I first got sick at the end of April.

I'm wondering about the biopsy though. I'm scared all of this is something else--possibly serious--and the endoscopy/colonoscopy will tell me what it is. Maybe I'm off base though...

[Nantzie]

That's exactly why I ended up doing the biopsy. Just in case...

Nancy

[Mayflowers]

Don't subject yourself to the uneccessary surgical risk of a biopsy when all you need is a stool test by Enterolab. Go to www.enterolab.com and you'll see how MUCH MORE ACCURATE a stool test is than a biopsy OR blood test. Many people on this forum had negative blood work and negative biopsies, and when tested by Enterolab were positive for gluten intolerance.

[oceangirl]

Don't subject yourself to the uneccessary surgical risk of a biopsy when all you need is a stool test by Enterolab. Go to www.enterolab.com and you'll see how MUCH MORE ACCURATE a stool test is than a biopsy OR blood test. Many people on this forum had negative blood work and negative biopsies, and when tested by Enterolab were positive for gluten intolerance.

I had the biopsy/colonoscopy, too, just to rule out things more "serious". I was so sick and uncomfortable for so long, I needed to do that. My bloodwork was positive, biopsy negative. Of course, I'd been gluten-free for a few months at that time. You have to "trust your gut", but it sounds like doing the biopsy may give you more peace of mind. Good luck. (For the endoscopy they put me completely under as I have a choking fear- that might be an idea for you.)

lisa

I had the biopsy/colonoscopy, too, just to rule out things more "serious". I was so sick and uncomfortable for so long, I needed to do that. My bloodwork was positive, biopsy negative. Of course, I'd been gluten-free for a few months at that time. You have to "trust your gut", but it sounds like doing the biopsy may give you more peace of mind. Good luck. (For the endoscopy they put me completely under as I have a choking fear- that might be an idea for you.)

lisa

Oh yes, AFTER all that I went through Enterolab, just to confirm for myself. Yes to genes for gluten intolerance, yes, to active gluten reactivity.

[ravenwoodglass]

Thanks, Nancy. I did the gluten free diet for a week and really did feel better. Then the sheer weight of it made me think, "I'm negative...I don't need to be gluten free." But after nearly a week on gluten, I'm going back off it! lol For some strange reason, the diarrhea and stomach cramps have been worse than this week than right before I went off. But not as bad as when I first got sick at the end of April.

I'm wondering about the biopsy though. I'm scared all of this is something else--possibly serious--and the endoscopy/colonoscopy will tell me what it is. Maybe I'm off base though...

If the endo and colonoscopy are going to ease your mind about the possibility of other problems then go ahead and do it. The worst part is the prep for most. If you feel better off of gluten I would certainly stay off it. While the blood tests showed a negative result they were at the high end of that negative. I also agree that Enterolab would be a good thing if you can afford it. The truest test though is dietary response.

[Mayflowers]

Ocean Girl, do you remeber how many units you were over "normal range" (gluten sensitivity) from Enterolab? I was 72.

[oceangirl]

Ocean Girl, do you remeber how many units you were over "normal range" (gluten sensitivity) from Enterolab? I was 72.

Yes, I have it here and it is MILD compared to you- 12 units! Of course, I was off gluten at that point for 4 months. (Except for the "stray" gluten that seems to easily permeate my aura...) My tTg was down from 28 when my blood was tested ("mild" positive) to 7- so that was good. I have a sneaking suspicion you might do well to go through with the colonoscopy/endoscopy to rule out other things. I was scared, like you, but glad I did it. Then I HIGHLY recommend Enterolab, particularly with your numbers, to give you assurance you're on the right track. Of course, I also agree with everyone else that you know best and if gluten-free feels better- just do it! "Dangerous Grains"- aarrgghhhh!!!, can't think of the authors' names is a good read that explains WHY so many people are gluten-sensitive. If you are older, which you probably aren't, a colonoscopy is recommended after age 50. I am 48 so it made sense to do that at least. In my lifetime I've had upper and lower GIs (FUN!!!!!) too many times to count! I wish you great luck!

lisa

Yes, I have it here and it is MILD compared to you- 12 units! Of course, I was off gluten at that point for 4 months. (Except for the "stray" gluten that seems to easily permeate my aura...) My tTg was down from 28 when my blood was tested ("mild" positive) to 7- so that was good. I have a sneaking suspicion you might do well to go through with the colonoscopy/endoscopy to rule out other things. I was scared, like you, but glad I did it. Then I HIGHLY recommend Enterolab, particularly with your numbers, to give you assurance you're on the right track. Of course, I also agree with everyone else that you know best and if gluten-free feels better- just do it! "Dangerous Grains"- aarrgghhhh!!!, can't think of the authors' names is a good read that explains WHY so many people are gluten-sensitive. If you are older, which you probably aren't, a colonoscopy is recommended after age 50. I am 48 so it made sense to do that at least. In my lifetime I've had upper and lower GIs (FUN!!!!!) too many times to count! I wish you great luck!

lisa

Aargghhh again! I just mixed up Susiek and Mayflowers! Sorry- well, you get the gist. Mayflowers- I have similar genes to you- subtypes 5 and6.

lisa

[Mayflowers]

Thanks OceanGirl. I was wondering why you're telling me to have a colonoscopy.

I am due for one but I broke my ankle in June and I figured I have one next year.

[oceangirl]

Thanks OceanGirl. I was wondering why you're telling me to have a colonoscopy.

I am due for one but I broke my ankle in June and I figured I have one next year.

Mayflowers,

'Cause I'm a LUNATIC! Pretty savvy with the old computer! Sorry. yes, I would never encourage anyone to just get a colonoscopy for the heck of it! Take care.

lisa

Mayflowers,

'Cause I'm a LUNATIC! Pretty savvy with the old computer! Sorry. yes, I would never encourage anyone to just get a colonoscopy for the heck of it! Take care.

lisa

Ooh... sorry about your ankle!

[Guest ~jules~]

My doctor called and told me everything tested in the normal range. Here are the results. I'm typing them directly from the lab report she faxed me. Everything also says "see comments" and I cannot find a comments page.

Here are the results:

IgA=303 (normal range: 68-378)

Endomysial Abs: Negative

Gliadin IgG=23.1 (negative range: < or - 25.0 EU)

Gliadin IgA=8.4 (negative range: < or -25.0 EU)

Transglutaminase IgG Auto ABs=<6.0 (negative range: <6.0)

Transgluaminase IgA Auto ABs=<4.0 (negative range: <4.0)

I have an appointment with the gastro in two weeks. I'm also anemic.

Thanks in advance!

I was just diagnosed recently, and in my bloodwork I only tested moderately high for one antibody, the gliadin. It was when I went in for my upper enoscopy and biopsy, that I was diagnosed with celiac. I also read that you can have normal bloodwork, but have a posative upper biopsy, I wouldn't take the chance, go get the endoscopy not a colonoscopy, I had one of those and it was normal of course. take care...~jules~

[Mayflowers]

THAT's why I believe (along with others) that the stool test is more sensitive and accurate than blood. It makes MUCH more sense because the antibodies that attack the gluten are in the intestines NOT in the blood as much and are more readily found in the stool.. What is with GI's? How stupid are they? I suppose they can sell more drugs for the drug companies if they can't diagnose it. And I suppose they make more money when a person is dying from celiac than prevention...It's a business.

The blood test probably doesn't show anything until you're half dead. I don't know about you but I don't want to wait that long.

You should get one just for the heck of it to see... only $99 at Enterolab. I just received the egg, soy and yeast test kit which I'm sending back tomorrow. I'm very happy with the other results. I'd like to get the York test kit for 113 food allergies, but I'm afraid I won't have much left to eat....