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Negative Celiac Gene Test- Still Need To Be gluten-free?

carolinagirl

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carolinagirl Rookie
carolinagirl
Posted

Ok- got a stupid question- if the celiac gene test comes back negative, does that mean that someone will never get actual celiac dz? can that person still have an intolerance? Also, does anyone know if you have no predisposition to celiac via genetics, can you still have villi damage? Thanks- I am so very very confused! :blink:

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AndreaB Contributor
AndreaB
Posted

I don't know what lab you went thought but most (I think) only test for the main celiac genes, DQ2 and DQ8. Enterolab tests for more than that and genes that have been labeled as gluten sensitive genes. You may still have a gluten sensitive gene which can cause the same discomfort and lead to many problems as well. You might want to check out what the cost is for enterolab's gene test or do the whole gluten panel from them ($369). Click Open Original Shared Link for the website.

Welcome. :D

carolinagirl Rookie
carolinagirl
Posted
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Thanks- I do believe that my dr. ordered it from Prometheus Labs. I was planning on doing enterolab, but didn't know much about their genetic testing. Sounds pretty thorough. I want to avoid endoscopy-

AndreaB Contributor
AndreaB
Posted

I wouldn't want to go that route either. My doctor agreed to do the celiac panel but I had already been very gluten light for over 1 month and was one who didn't have much in the way of symptoms.

I like enterolab and am thankful that they saved us from much sickness down the road. We were vegan and ate tons of gluten and soy products. My daughter had HSP (Henoch Schonlein Purpura) and just saw her kidney doctor last week. He is familiar with celiac and I think her gluten intolerance could have made that worse since it is an autoimmune disease. We'll find out this fall/winter after her first cold if she gets a relapse. Two of the symptoms of HSP are rhuematoid arthritis and abdominal cramps which are the same for gluten intolerance or celiac. Since we didn't get an official diagnosis we refer to ourselves as gluten intolerant, even though we all have at least one celiac gene.

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