Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal Pain


bklynceliac

Recommended Posts

bklynceliac Apprentice

Hello all. I've been on the gluten-free diet nearly two months now and am feeling a great deal of improvement. The one thing that hasn't gone away at all though is the abdominal pain. What bothers me most is I have no idea what it is. It feel like someone inflated a few long balloons and stuck them in various places in my stomach and pelvis. The most logical connection to me is gas, but I don't feel extremely gassy and don't have any problem retaining it. The pain is most noticeable at night when it's impossible for me to lie on my stomach, making it very hard to sleep. It doesn't seem to be made better or worse with different food choices. And the location of the pain seems to change daily. I'd love to hear if other people have a similar thing, and any thoughts on what it is or what I might do would be much appreciated. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



covsooze Enthusiast

Hi there. It does sound like gas to me. When you say food choices don't seem to make any difference, have you actually tried cutting out any foods for more than a few days? I know that if I have beans or lentils I get painful wind and also if I have dairy. If there's a few things contributing to the gas, it will be difficult for you to see an obvious connection with what you eat - you might benefit from doing a food diary. The other thing is, my gas reduced significantly after going gluten-free. It takes time to get the diet right and to heal - maybe you just need time?

Finally, try a hot water bottle at night :)

kbtoyssni Contributor

My pain also moves around. Sometimes it's my stomach, which usually feels like I've swallowed some razor blades and makes me want to curl up in a ball to stop the pain. Sometimes it's more in my intestines, which feels more like bloating/gas and a dull ache.

penguin Community Regular

I get three types of pain: I get pain like you describe, the balloon feeling, and for me it's gas. I take phazyme when that happens and it works wonders.

The second type of pain is a burning in my stomach, which is usually because of too much acid and not enough food.

The third type of pain, the bain of my existance, is what I call the "crunching pain". For some reason (gluten-free or not) I periodically get pyloric spasms, and it feels like my stomach is trying to eat iself, it's the only way I can describe it. It's in the stomach itself and nobody has been able to tell me why I get it. I take phenergan and sleep for a few days when it happens.

IrishKelly Contributor
Hello all. I've been on the gluten-free diet nearly two months now and am feeling a great deal of improvement. The one thing that hasn't gone away at all though is the abdominal pain. What bothers me most is I have no idea what it is. It feel like someone inflated a few long balloons and stuck them in various places in my stomach and pelvis. The most logical connection to me is gas, but I don't feel extremely gassy and don't have any problem retaining it. The pain is most noticeable at night when it's impossible for me to lie on my stomach, making it very hard to sleep. It doesn't seem to be made better or worse with different food choices. And the location of the pain seems to change daily. I'd love to hear if other people have a similar thing, and any thoughts on what it is or what I might do would be much appreciated. Thanks!

This happened to me too. After i started the gluten free diet i thought things were getting better...but then a couple of weeks into the gluten-free diet i noticed there was still all of this gas pain...like something was alive and crawling around inside of me!! After eliminating Dairy it has gotten 75% better...i highy recommend trying to eliminate dairy. I've never had any dairy troubles until the last few months because of the damage i've done to my intestines due to the gluten overload. Are you dairy free now??

sspitzer5 Apprentice

I have an on and off knawing type of pain below my belly button on the left side. I don't have it for months and then it sort of flares up again. I think it's some type of ulcer. Hopefully I'll get some clues on what going on next month when I get another endoscopy and a colonoscopy. The doctor says he'll give me a camera capsule if nothing turns up with the other tests.

S

bklynceliac Apprentice

hey there, i'm not dairy free, and in fact have been having a lot more dairy lately, as it is one of the few gluten-free things I really enjoy. But I know it's a possible irritant. I've not eliminated it because I've never noticed any causal relationship with it and my pains. I can eat a pint of ice cream and they are no better or worse. But maybe if i cut it out completely they'll chill out?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishKelly Contributor
hey there, i'm not dairy free, and in fact have been having a lot more dairy lately, as it is one of the few gluten-free things I really enjoy. But I know it's a possible irritant. I've not eliminated it because I've never noticed any causal relationship with it and my pains. I can eat a pint of ice cream and they are no better or worse. But maybe if i cut it out completely they'll chill out?

OH YES!!! I'm 28 and have NEVER had any dairy issues until the last few months. I was told that 8-9 out 10 people who are glutent intolerant (and never knew) will also become dairy intolerant temporarily because of the damage we've done to our intestines along the way. The ville (i think it connects the stomach to the large intestine?) has hairs that have been damaged because of the glutent consumption over the years. Once you are dairy and gluten free for a few months (my doc said it could take up to six months) you will notice a huge difference and you will eventually be able to re-introduce dairy again once your healed :D

Green Fingered Gaelic Newbie

I think we all get lactose intolerent, to a degree, when we get the aul glutonium in the diet. The villi house the lacto bacilli. I think. Over the years I've got allot of conflicting advice and so I'm just sayin what makes sense to me, based on my gut instinct :P ;-) . Sometimes if the villi don't get too damaged they will repair and repopulate the bacilli. If they get too damaged they won't be able to house them anymore and you will be permenantly lactose intolerent.

At the moment I've got bad numb constant pains in ma belly. I was on holiday two weeks ago and am still recovering.

Other than that some times I get sharp pains that feel like they run the length of my intestine, pretty much in an instant i get this internal electric shock. Its paralises me. I just hope it never happens to me when I'm driving.

So at the moment I'm suffering from this constant ache and I have to confess that at times like this I use a the herb mj to smooth over my pains, it also helps with the appetite I find.

Other than those pains I get muscle and bone aches at different times.

Peace,

Q

PS. Diagnosed aged 2, by my gran, despite several doctors critism, am 26 now, have recently become more sensitive and hence my interest in this forum etc.

eleep Enthusiast

You know, I didn't even realize I had ongoing abdominal pain until after I stopped eating gluten -- the first time I got glutened after that, I felt these shooting pains deep in my stomach that were incredibly familiar and made me realize how acclimated to feeling crappy I had been for years!

eleep

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,468
    • Most Online (within 30 mins)
      7,748

    Jcarder
    Newest Member
    Jcarder
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.