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So...i Have Gone Gluten Free...its Not Working Out.

abbypanda

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abbypanda Newbie
abbypanda
Posted

I saw a DR. back in October. He did a blood test on me and it was positive, so he also checked my small intestines and confirmed my diagnosis of Celiac Disease.

I went on a gluten free diet using resources and this site. It was GREAT for the first month or so. The day I went off gluten I noticed an immediate change.

But since, I have had problems with my stomach bloating. (that was my major symptom). My stomach has beel bloated w/ out rest for 3 months straight now. I didnt even have it this bad when I ate gluen.

The only thing I can think is that my healing intestines are having a large reaction if I come in contact with a small amount of gluten.

I cook all of my food when I can. I travel for work and I am very picky about where and what I eat, but I realize sometimes theres the possibility of crosscontamination.

But even w/ a miniscule amount of cross contamination, should I be feeling this way.

It is really interfering with my daily life!

Thanks for the help :(

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Debbie65 Apprentice
Debbie65
Posted

Hi,

I´ve read here that once you go gluten-free you become more sensitive to gluten and even a small amount can cause a bad reaction. It´s really important to go 100% gluten-free as even if you get no noticable reaction you are slowing the healing process so try to be really vigilant.

I´ve also read that us people with celiac disease are more susceptible to other intolerances so you might want to look there for a solution,also at first diagnosis, especially when the villi are still damaged dairy foods often cannot be tolerated. I´ve read that these can often be reintroduced once recovery is underway.

Hope that helps a little while you wait for more experienced members to get back to you.

AndreaB Contributor
AndreaB
Posted

Aside from the possible cc that you already mentioned, two other big culprits are dairy and soy. If you eat them try cutting out one for a month and note any changes and then the other (but don't reintroduce the first one you go off of). Note any changes and stay off both for at least two months, preferably longer (4-6 months) and then reintroduce a month apart and see if you notice any difference in how you feel.

I posted an article on soy intolerance in the Leaky Gut Other Intolerances section if you want to look at that. Don't give up, keep going forward. If you go back to gluten you will only get worse and much sicker.

I read on a different thread (I forget who posted) that it takes three weeks for a person's body to recover from a glutening. Even if physical symptoms don't last that long. Even miniscule amounts can cause a lot of trouble for your body. I was never one that had obvious symptoms and now I notice cc, get tummy troubles for about a day and it's over. It just amazes me.

mythreesuns Contributor
mythreesuns
Posted
But since, I have had problems with my stomach bloating. (that was my major symptom). My stomach has beel bloated w/ out rest for 3 months straight now. I didnt even have it this bad when I ate gluen.

I have had terrible problems with bloating due to milk products. That was actually my first stab at trying to feel better--eliminating all milk from my diet. That has helped tremendously with the bloat.

And now that I'm gluten free as well, I no longer look "pregnant" LOL

Rikki Tikki Explorer
Rikki Tikki
Posted

Toni and Debbie:

I just love your signatures. They made me laugh this morning :lol::lol::lol:

abbypanda Newbie
abbypanda
Posted
  • Author

Thanks everyone for the replies. I will continue on my quest to stay 100% gluten free. I dont eat milk because my allergist said I'm allergic to milk and mold products. I didnt know that about soy though. I dont eat soy much but on occasion and have been lately so I will try that route and eliminate it.

Thanks again to those who replied.

abby

Guest nini
Guest nini
Posted

it sounds like you are not 100% gluten free and probably still getting hidden gluten in your system from either cross contamination or personal care products like shampoos, lotions, makeup, etc...

also, mos Celiacs are lactose intolerant until the villi begin to heal (which for me was about 6 months) and some continue to be lactose intolerant. Other food intolerances often make their presence known after going gluten-free.

You need to be 100% gluten free all the time, if this means only carrying your own food and not eating out, then that is what you have to do. For me the risk of cc is too high at most restaurants. Even if I'm very picky about what I order.

Keep in mind that AVERAGE healing time is a MINIMUM of 2 years for most of us and for some of us that have been sick all our lives, it takes longer than that. Just keep sticking with the diet, constantly read labels, verify items every time as ingredients change, or stick with a diet of foods that are naturally gluten-free like fresh fruits and veggies, clean meats, pure herbs for seasoning, Olive oil for cooking, rice, potatoes, nuts and beans... if you make everything from scratch and know what is in it, you drastically reduce your risk of cross contamination.

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