Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

O U T O F I T

faegan

Recommended Posts

faegan Contributor
faegan
Posted

Hi all...

I'm having the following symptoms:

Brain Fog

Light headed

Floaters in my Vision

Pins and Needles

Impact of Alcohol Up (2 Beers = Tipsy + Hangover)

Irritability

Degenerative Disc Disease in Neck acting up

I've been test for lyme and other tic borne illnesses, but have not gotten results yet.

Anyone have similar symptoms? I'd love to hear any diet changes that could be at

work. It seems to be getting worse since I started the diet in April.

Also, do these symptoms sometimes happen because of the body's work at

repairing itself? Were these things going on but I couldn't feel them?

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lorka150 Collaborator
lorka150
Posted

have you checked all your products? cross contamination? are the beers gluten-free? there could be a lot of things as the issue, here.

marciab Enthusiast
marciab
Posted

Hi there,

In addition to looking for hidden gluten, you might look into the following. This is what helped me. :)

Brain Fog - try eliminating all processed grains

Light headed - are u hypoglycemic ? try eating meat / protein 3 times a day, esp for breakfast

Floaters in my Vision - sorry, don't know

Pins and Needles - could be b12 deficiency, use sublingual b12 or injections

Impact of Alcohol Up (2 Beers = Tipsy + Hangover) - stop drinking !!! wait until u heal up a bit :blink:

Also sounds like Candida

Irritability - who isn't ? :D Just kidding .. :lol: But seriously, this diet takes a toll on most of us. :)

Degenerative Disc Disease in Neck acting up - try adding omegas to your diet, they decrease inflamation.

Hope this helps. Marcia

rinne Apprentice
rinne
Posted
Hi all...

I'm having the following symptoms:

Brain Fog

Light headed

Floaters in my Vision

Pins and Needles

Impact of Alcohol Up (2 Beers = Tipsy + Hangover)

Irritability

Degenerative Disc Disease in Neck acting up

I've been test for lyme and other tic borne illnesses, but have not gotten results yet.

Anyone have similar symptoms? I'd love to hear any diet changes that could be at

work. It seems to be getting worse since I started the diet in April.

Also, do these symptoms sometimes happen because of the body's work at

repairing itself? Were these things going on but I couldn't feel them?

Thanks!

I've had floaters in my vision but until yesterday didn't know they were related to Lyme disease. I've been gluten free since the beginning of May except for accidental glutenings, also I'm off dairy and although I have seen an improvement I have begun to wonder whether or not I might have Lyme in addition to Celiac or whether Lyme triggered the Celiac. I have about 70% of the Lyme symptoms and I have seen no improvement in them with a gluten free diet. Ankylosing Spondylitis is another condition I am suffering from although that could be Lyme too as I have begun to learn.

In some ways I am better than I was in the winter and I would say the diet is helping but I don't know at this point whether it is the complete solution as other conditions are getting worse.

eleep Enthusiast
eleep
Posted

Wait -- two beers -- are those gluten-free beers? That could be your culprit right there. You need to eliminate anything with barley in it -- and any beer that isn't clearly labeled gluten-free (read -- almost all beer) will have barley malt or wheat in it.

The brain fog and stressy/irritable symptoms could very well be indicative of B vitamin deficiency -- which is a celiac problem, but is also a problem with alcohol -- one of the reasons for irritability/hangovers the morning after a few too many drinks is that drinking significantly depletes B vitamins (as does smoking, which I quit recently).

If you are healing, you may also find that your tolerance has decreased because your body is absorbing alcohol more quickly. I actually quit drinking at all for a while to let my body recover. It took less than a glass of wine at dinner to make me feel as though I shouldn't be driving. Now that I'm a lot stronger, I don't need to be as careful (I'm going to a wine-tasting tonight if I get enough writing done!) and my body is a lot happier for having had the chance to heal. Actually, my entire sense of well-being and happiness is a lot better in general.

eleep

CarlaB Enthusiast
CarlaB
Posted

two drinks makes me tipsy and can give me hangover. Two beers with gluten would give me a couple week hangover!!!! My BIL thinks this would have saved him thousands over the years and he's jealous, it takes much more than two for him to get tipsy and get a hangover .... I guess it's all in what your priorities are!

I have most of your symptoms. Like everyone has said, check the beer.

faegan Contributor
faegan
Posted
  • Author

Thanks for everyone's reply! Yes - the beers are definitely gluten free (New Grist). I'm going to digest :) everyone's advice, make a plan, and I'll let everyone know how it goes! Thanks, Again!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,131
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.