Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Sugar Problems?


chgomom

Recommended Posts

chgomom Enthusiast

I am pushing this issue when I see the doc on the 8th.

Last time I check ed it was really low, so...I had a piece of fruit, and a little fruit juice...and walah!(because I frequently get blurry visiosn, dizzy, and agitated) Just now the same garbage happening, I got a piece of fruit, and had a sip of pop because there was no juice available in the machine (pop was Sierra Mist)

And wow.....my head feels better, and no more nastiness with the eyes.

Why is is such a struggle....with these docs. I firmly beleive with my new diet and possibly the joy of the problems my entire family has being genetically gifted to me, I have problems with my blood sugar now.

I am really concerned about Type 1. Uggghhh

Anybody else have these issues ....or anything similar.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

How did you check it? What is "realy low" ? Have you been tested for Diabeties? Do you have a home glucose monitor?

ravenwoodglass Mentor
I am pushing this issue when I see the doc on the 8th.

Last time I check ed it was really low, so...I had a piece of fruit, and a little fruit juice...and walah!(because I frequently get blurry visiosn, dizzy, and agitated) Just now the same garbage happening, I got a piece of fruit, and had a sip of pop because there was no juice available in the machine (pop was Sierra Mist)

And wow.....my head feels better, and no more nastiness with the eyes.

Why is is such a struggle....with these docs. I firmly beleive with my new diet and possibly the joy of the problems my entire family has being genetically gifted to me, I have problems with my blood sugar now.

I am really concerned about Type 1. Uggghhh

Anybody else have these issues ....or anything similar.

I had blood sugar issues for years. One thing you should do is to eat a bit of protein soon after you have that bit of sugar. I used to just eat a teaspoon of tablesugar but fruit juice is much better. The protein will help to keep your blood sugar more stabelized and keep it from going from spiking up and down. Do get things checked out by your doctor but also be sure to eat frequent small meals containing both protein and carbs to keep your levels stable.

chgomom Enthusiast

low.....was 68....I used my neighbors monitor and I am considering buying a cheap one from the pharmacy tonight.

I have had it tested.....but they said.....when it was low (for me) 75 thats normal....and when it was its highest....119...that was ok. I've done fasting not fasting, glucose tolerance...all of that....

They seem to think its not a problem....

So I will get some protein that easily aceesible. I just know...I worry about the blurry vision, the agitation and the dizziness.

I told the docs...have me do hom monitoring so I can check it when I am having the syptoms and show you....They won't do it.

Not to mention, when these symptoms comes on my pulse is wacky,,,,can go higher than 100...and then as soon as I have the sugary..and something to eat....or drink it goes back to its usualy of 75 to 80

VydorScope Proficient
low.....was 68....I used my neighbors monitor and I am considering buying a cheap one from the pharmacy tonight.

I have had it tested.....but they said.....when it was low (for me) 75 thats normal....and when it was its highest....119...that was ok. I've done fasting not fasting, glucose tolerance...all of that....

They seem to think its not a problem....

So I will get some protein that easily aceesible. I just know...I worry about the blurry vision, the agitation and the dizziness.

I told the docs...have me do hom monitoring so I can check it when I am having the syptoms and show you....They won't do it.

Heres somthing you can do yourself. Log your results and bring them to your doc.

Either borrow the meter, or buy one. I bought one from CVS for $15 or $20.

Fast for at least 8 hours, its easiest to do this while your alseep. Then test you blood. Your result should be between 70-120 (those numbers are not hard fast and vary a little form doc to doc, so dont stress about exact results.). If its signigifgnalty higher that is indictive of diabetes and you need to get the ORal Glucose Intorence Test ( I think thats the right name, they make you drink stuff at the doc and test you) They can also do an AC1 test, which you can do your self at home too, just costs more the then home glucose monitors do.

Next eat a meal thats a little sugary, but not out of line for a "normal person". Note the time you eat. Make sure its a good sized meal, you wont be eating agian for a while. :DDo not eat or drink at all after this till I mention food again in the insutructions or your results will be worthless

Check you blood about 1 hour Prbly be high, but should be under 160 or so. Do not worry about this reading as much, its the least imporant of the set.

Then check at 2 hours, should be below 140ish

Then check agian at 3 hours, should still be falling.

Then check agiain at 4 hours should be ABOVE 70. Remeber these numbers are a rough, a score of 68 is close enough.

At 4 hours, if your score is below 70, and your feeeling symptoms, eat somthing sugary (Rasins, fruit, juice, etc) and check agian in like 15 mins. If your score impoves and your symptoms imporve thats indicitive of reactive hypoglycemia.

Eeither way, your testing it done now, so eat up. :)

Make sense? Take your reuslts with you to the doc and let them see the hard numbers.

ehrin Explorer
I am pushing this issue when I see the doc on the 8th.

Last time I check ed it was really low, so...I had a piece of fruit, and a little fruit juice...and walah!(because I frequently get blurry visiosn, dizzy, and agitated) Just now the same garbage happening, I got a piece of fruit, and had a sip of pop because there was no juice available in the machine (pop was Sierra Mist)

And wow.....my head feels better, and no more nastiness with the eyes.

Why is is such a struggle....with these docs. I firmly beleive with my new diet and possibly the joy of the problems my entire family has being genetically gifted to me, I have problems with my blood sugar now.

I am really concerned about Type 1. Uggghhh

Anybody else have these issues ....or anything similar.

It does not appear that you have T1 diabetes - T1 diabetics are HYPERglycemic - where our blood sugars run high because our pancreas has stopped producing insulin. T1 diabetics are always diagnosed with high blood sugars not low. (Other common symptoms are frequent thrist and urination, a funky acetone like smell and weight loss). Your pancreas is obviously producing insulin if you are getting low blood sugars, and yes 68 is low. It sounds more like hypoglycemia - where the pancreas produces too much insulin to fight blood sugar spikes.

I'm not sure if hypoglycemics fight lows the same way.

But T1 diabetics follow the rule of 15's.

15 grams of fast acting carbs (no fat!!), wait 15 minutes, test

if still low follow again

if not - follow up with a protein source

PB crackers, cheese stick, glass of milk.

penguin Community Regular
I'm not sure if hypoglycemics fight lows the same way.

But T1 diabetics follow the rule of 15's.

15 grams of fast acting carbs (no fat!!), wait 15 minutes, test

if still low follow again

if not - follow up with a protein source

PB crackers, cheese stick, glass of milk.

Yeah, I do it pretty much the same, except that I don't test. I have quick sugar, and then wait long enough to be able to eat something (when I'm confident I'll be able to chew and not throw up)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient
Yeah, I do it pretty much the same, except that I don't test. I have quick sugar, and then wait long enough to be able to eat something (when I'm confident I'll be able to chew and not throw up)

When I thikn a crash si comming I usally grab a handfull of Rasins, or real fruit juice... somthing. Then once I think everything stable agian I hunt some protein/fat. So basicly the same idea, I just do not measure, time and test everytime.

tarnalberry Community Regular

just having fruit or fruit juice is going to keep you roller-coastering with bloodsugar and insulin levels IF you are a reactive hypoglycemic. you definitely need some fat and protein to moderate the release of sugar into the bloodstream. if you search through the site, you'll find a lot of advice on the topic - there's no single solution for everyone, of course. ;)

the self-testing over 8 hours idea is a good one. and remember that 'average' testing numbers are for an 'aveerage' population - you might feel symptoms sooner than that.

Guest Doll
It does not appear that you have T1 diabetes - T1 diabetics are HYPERglycemic - where our blood sugars run high because our pancreas has stopped producing insulin. T1 diabetics are always diagnosed with high blood sugars not low. (Other common symptoms are frequent thrist and urination, a funky acetone like smell and weight loss). Your pancreas is obviously producing insulin if you are getting low blood sugars, and yes 68 is low. It sounds more like hypoglycemia - where the pancreas produces too much insulin to fight blood sugar spikes.

I'm not sure if hypoglycemics fight lows the same way.

But T1 diabetics follow the rule of 15's.

15 grams of fast acting carbs (no fat!!), wait 15 minutes, test

if still low follow again

if not - follow up with a protein source

PB crackers, cheese stick, glass of milk.

Actually, early on in Type 1, the beta cells may begin to function irregularly as they are being destroyed by autoimmunity. Some Type 1's DO have hypoglycemia prior to being diagnosed.

Your doctor should test you for anti-GAD, ICA, and anti-insulin antibodies to see if you are developing Type 1. The oral glucose tolerance test is not usually used/helpful in diagnosing Type 1, and an HbA1c (3 month cumulative blood sugar value) is a very poor marker for Type 1, as it usually comes on suddenly. In this case, you also more than likely would not have enough sustained abnormal levels to make a difference.

More than likely it is NOT Type 1, but you should get tested. There are many trials for the newly diagnosed that can preserve insulin production (via immune regulation) if detected early.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.