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Recent Activity
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- Scott Adams replied to Scott Adams's topic in Gluten-Free Foods, Products, Shopping & Medications80Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
There is a new gluten-free Chez-Its that just launched....😉 -
- trents replied to Scott Adams's topic in Gluten-Free Foods, Products, Shopping & Medications80Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
@Lotte18, Cheese Its have wheat flour as a primary ingredient so they would not fall under the category of cross contamination. No celiac should consume those. Skittles, on the other hand, are actually gluten free, according to the package. But I don't eat those either. -
- Aretaeus Cappadocia replied to Scott Adams's topic in Gluten-Free Foods, Products, Shopping & Medications80Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
@Lotte18, when you say "bread", what is your requirement? Is it sufficient that you can butter it and eat it with a meal, or do you mean a robust sandwich bread that won't break apart with rough handling? I've been experimenting with bread and find it relatively easy to make the former (mix buckwheat flour/flaxseed meal/baking powder, bake and eat) but it... -
- Scott Adams replied to mermaidluver22's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease4
Some inflammation in ileum with celiac?
What your son is experiencing isn’t unheard of, and your doctor’s cautious “watch and monitor” approach makes sense given the mixed signals. In celiac disease, inflammation is typically strongest in the proximal small intestine, but downstream effects—especially after long periods of undiagnosed disease—can sometimes involve the distal or terminal ileum, eith... -
- Known1 replied to Known1's topic in Introduce Yourself / Share Stuff21Diagnosed Marsh stage 3C in January 2026
@knitty kitty Just a quick follow up to let you know that my niacin flush is completely gone now. Thank you for the extra push to stick with the B-complex. Last week I added 1000mg of a Moringa supplement to my daily intake. I have been experiencing a fair amount of bloating and gas from that, but am sure it will pass (unintended pun) once my body adjusts...- 1
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Posts
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By Scott Adams · Posted
There is a new gluten-free Chez-Its that just launched....😉 -
@Lotte18, Cheese Its have wheat flour as a primary ingredient so they would not fall under the category of cross contamination. No celiac should consume those. Skittles, on the other hand, are actually gluten free, according to the package. But I don't eat those either.
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By Aretaeus Cappadocia · Posted
@Lotte18, when you say "bread", what is your requirement? Is it sufficient that you can butter it and eat it with a meal, or do you mean a robust sandwich bread that won't break apart with rough handling? I've been experimenting with bread and find it relatively easy to make the former (mix buckwheat flour/flaxseed meal/baking powder, bake and eat) but it's more involved to make the latter (Vitamix, overnight fermentation, and proofing). Personally, I've given up on pre-packaged gluten free breads because I don't like the taste, especially after the first day open (and they are expensive). At any rate, I agree with you on the role of bread - I really miss a good crusty loaf about as much as anything else. -
By Scott Adams · Posted
What your son is experiencing isn’t unheard of, and your doctor’s cautious “watch and monitor” approach makes sense given the mixed signals. In celiac disease, inflammation is typically strongest in the proximal small intestine, but downstream effects—especially after long periods of undiagnosed disease—can sometimes involve the distal or terminal ileum, either from immune activation, microbiome shifts, or residual healing patterns. That said, isolated ileal thickening plus elevated calprotectin does overlap with early or mild Crohn’s disease, even in the absence of symptoms or classic biopsy findings like granulomas. The reassuring parts here are his normalized tTG-IgA, improving calprotectin trend, lack of symptoms, and non-specific histology—all of which argue against aggressive Crohn’s right now. Many kids in this “gray zone” remain stable without progressing, especially when inflammation markers trend down. Continued monitoring with periodic labs and imaging/scopes is key, and it’s reasonable to consider this either prolonged post-celiac immune activity or very mild, indeterminate IBD for now rather than jumping to treatment prematurely. -
@knitty kitty Just a quick follow up to let you know that my niacin flush is completely gone now. Thank you for the extra push to stick with the B-complex. Last week I added 1000mg of a Moringa supplement to my daily intake. I have been experiencing a fair amount of bloating and gas from that, but am sure it will pass (unintended pun) once my body adjusts. Thanks again and have a blessed day ahead!
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