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"the Trigger"


Guest ~jules~

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ianm Apprentice

I think it started the day I was conceived. I always had problems with severe brain fog and fatigue. It got progressively worse in my 20's and by my mid 30's I almost lost everything. I really don't think I would be alive right now if I kept eating gluten.


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Looking for answers Contributor

Add me to the mono list (Yikes!). I had it when I was 17 and things got far worse following the illness. Prior to that, I had suffered throughout childhood with digestive problems, had chronic upper respiratory illnesses and D and cramping. I also had my appendix removed when I was in 6th grade and I remember my issues getting more intense afterward, but it wasn

Eliza13 Contributor

I was always a sickly child. It started with diarrhea as a baby. Tonsils out at age 2!!!! Teeth sealed at age 7 (enamel was coming off). Hated dairy as long as I can remember. Lots of throwing up since childhood. Always tired as a kid. High white blood cells as a kid.

You'd think with all of the above, someone would have clued in. I was 30 when diagnosed!!!!

swittenauer Enthusiast

I'd say I was the event that caused my husbands celiac to arise. Well, I shouldn't say that but we met & married really quickly so in a period of a few months we moved in, bought a house, moved to the new house & all of the sudden he was a father to a 6 year old. He loves it & it has been fun. However, the day we closed on our new house.......he got sick. He had a ton going on as did I in a really short time frame. He has it under control though & we are all happy & healthy now.

  • 4 years later...
Februaryrich Rookie

To much partying.

I'm pretty sure my celiac developed during my late teens/early 20's when I was partying A LOT. I think I wore my body out, and my lifestyle was just so fast for my body to handle.

I agree on that last sentence, mine also developed when I was overworking my body out physically.

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      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
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    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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