Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Where I Introduce Myself?

Adelle

By Adelle
in Introduce Yourself / Share Stuff

Recommended Posts

Adelle Enthusiast
Adelle
Posted

Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Turtle Enthusiast
Turtle
Posted

That's AWESOME!

Welcome to the boards!!

You'll love it here!!

mouse Enthusiast
mouse
Posted

Welcome to the forum. Just remember that we do not consider any question stupid. That is great that doctor #10 listened to you and ran the blood tests. That is totally awesome.

AndreaB Contributor
AndreaB
Posted

Welcome Adelle! :D

You've come to the right place. This is a very warm and loving community.

BTW....I'm about 2 hours North of you....SW Washington, north of Vancouver about 1/2 hour.

ÆON Newbie
ÆON
Posted

Howdy hi!

I'm happy to hear that you found the problem and are feeling better. I'm kinda new here too and have found this to be the greatest place for information and support. :)

Guest ~jules~
Guest ~jules~
Posted

Hi, I am from salem also! Wow there really is someone else in this town with celiac....If you don't mind me asking, are you seeing a gi? I see Dr. Em at salem gastroenterology, he's awesome. I actually only had to see him twice before diagnosed, imagine that! My family doctor is the stubborn moron, he's over at the salem clinic, I'm looking to change that soon. I saw him about 6 times over a period of a year and a half before he even gave me a refferal, that I had to ask for. :blink: Well, welcome to the group, if I find any good gluten-free stuff here in town I'll be sure to share, or don't hesitate to ask....Julie

Adelle Enthusiast
Adelle
Posted
  • Author

No I'm not seeing a GI yet, I did about 4.5 years ago. He said I was, "just fine". So I really don't want to see another doc, yet. Yay more people in salem!! I'm me or something sometime :). Anyway, I'm so happy to find a place like this. I just got a bread maker today. Mmmm gluten-free sandwiches. Well, I have nothing else to say. Thanks for bein here ya'll!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Welcome Adelle:

I just wanted to add that the poster "Nini" has a gluten free startes list, that has lots of great information for those begining the diet. Just remember, being gluten free, is not all about food. Gluten can be found the shampoos, soap, cat food, dog food, face creams and and basically anything that can get into your mouth.

Do a members search for her name and personal message her and it will be there for you.

Again, welcome to the world of Celiacland.

Lisa

par18 Apprentice
par18
Posted
Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

Hi,

I am really impressed that you were able to find out on your own. Also that you feel confident that the diet is your answer. Just keep listening to your body. Having a spouse willing to support you makes all the difference. I feel 100% that you will continue to progress. My wife supported my diet and our home is gluten free. Good luck and welcome. Your success is our success!

Tom

Adelle Enthusiast
Adelle
Posted
  • Author

I know I'm uber lucky! Yay! So far things are going well (3.5 weeks!). Someone mentioned to look in unexpected stuff, all clear, I randomly got lucky with my bath products, I already cleared/washed the cupboards. But I forgot to check my guinea pig food! I have 2 piggies, boudika and maeve. Their food contains wheat. Oh no! I can't just not feed them. Luckily ryan (my husband) volunteered to feed them (and buy the food etc) so I don't have to touch it! I also work with horses (many of whom eat oats), so I'l have to wash my hands a ton and be extra careful. Anyway I feel so welcomed! Yay!

AndreaB Contributor
AndreaB
Posted

I love horses!!!!!

I had one in high school. Now I collect breyer custom painted horses. :)

cowrdlyon Rookie
cowrdlyon
Posted

Conragtulations on finding the site. I too was only diagnosed recently. August 16th to be exact. I was on vacation at the beach and got a call from the doctors office...Happy Birthday, I know your on vacation so enjoy the sun...By the way, stop eating all wheat and products containing gluten bacause that's what has been making you sick for the last 4 months!!! Not the perfect way or day to find out but what can ya do? I've been gluten free since 3 days after that and I feel so much better. So......Welcome, Welcome, Welcome and hang in there!

lovebug Newbie
lovebug
Posted
Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

thats great you are lucky. i was diagnosed in april and have been on the gluten-free diet ever since but i am very sick. i myself am so week i cant work.

debmidge Rising Star
debmidge
Posted

Adelle

Welcome! You'll be glad that you came aboard. There's a great group of people here who are very eager to share tips, hints and commiserate with you if you need it.

Don't be bashful about joining in any of the threads.

Deb

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    2. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    3. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    4. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,248
    • Most Online (within 30 mins)
      7,748
    Tc clark
    Newest Member
    Tc clark
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.