Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

That Didn't Last Long....


Guest ~jules~

Recommended Posts

Guest ~jules~

Okay since I was diagnosed my husband has been really supportive. Lately I'm sensing he's getting a little burnt out on the cc issue, and I'm not very happy with him right now. Apparently he thinks he's just not going to be capable of remembering not to do certain things that will make me sick. So we just had a discussion on how he thinks I should do things so its easier for him. Nice.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

Ugh... My husband didn't understand the cc thing either so I ended up just making my whole house gluten free. Otherwise I would find crumbs everywhere. It wasn't until I made everything gluten free that I started really feeling great. Perhaps you could do the same? He may feel it's an inconvenience in the beginning, but it will be healthier for the whole family and most importantly YOU WON'T BE SICK!!! I'm sure he relies on you for many, many things. If you're sick, how will you perform these duties??? Just casually stop buying glutenous things and replace them with gluten free things. Likely he won't notice until he's practically gluten free already.

Guest ~jules~
Ugh... My husband didn't understand the cc thing either so I ended up just making my whole house gluten free. Otherwise I would find crumbs everywhere. It wasn't until I made everything gluten free that I started really feeling great. Perhaps you could do the same? He may feel it's an inconvenience in the beginning, but it will be healthier for the whole family and most importantly YOU WON'T BE SICK!!! I'm sure he relies on you for many, many things. If you're sick, how will you perform these duties??? Just casually stop buying glutenous things and replace them with gluten free things. Likely he won't notice until he's practically gluten free already.

I agree, I'm thinking about it really. He's already suggested it, so I think it would be okay. This is just not working. You know sometimes couples have enough issues at times and things to bicker about, I don't need to chomp at him everyday over this, I just need to solve the problem, go gluten free all the way...

CarlaB Enthusiast

It's much easier to be all gluten-free. The only gluten we have is the snacks the kids take to school with them ... the gluten-free ones are just too expensive to provide for a houseful of kids!

You need to get better at guilt ... I would have said, "Oh, yes, I'm very concerned that I'm doing everything I can to make my lifelong disease that I'm just now accepting, getting used to, and healing from less of an inconvenience to you. Please tell me how I can do that." Something like that makes the point well. Usually hubbies just aren't thinking when they say something like that and this kind of comment snaps them back to the reality that it's not always about them.

cgilsing Enthusiast

It took a while for my husband to get a grip on how little things would make me sick. This probably isn't the best advice, but it worked for me. I didn't dump it on him all at once. At first he seemed really frustrated by things. There was a lot of "You can't have THAT either!?! So I simplified our diets until he (and I)got used to the basics. Then little by little I dropped an "oh yeah, you can't let your hamburger bun touch my burger" or "we need a second toaster because I can't use yours" Now he is as careful as I am about food and reads lables like a champ :lol: Eventually he saw how much better I was (and how much better his life was for it) and that totally outweighed the inconvienence. :rolleyes:

Guest ~jules~
It's much easier to be all gluten-free. The only gluten we have is the snacks the kids take to school with them ... the gluten-free ones are just too expensive to provide for a houseful of kids!

You need to get better at guilt ... I would have said, "Oh, yes, I'm very concerned that I'm doing everything I can to make my lifelong disease that I'm just now accepting, getting used to, and healing from less of an inconvenience to you. Please tell me how I can do that." Something like that makes the point well. Usually hubbies just aren't thinking when they say something like that and this kind of comment snaps them back to the reality that it's not always about them.

Oh I gave it to him believe me, I just wanted to be polite on the board lol....I'm a bit of a spitfire...Really though its just so strange to me how some people are givers and some people are takers. I told him okay were going gluten free, lets do it once and for all. The silly man helped me cook dinner, then when it came time to fix the boys plates he says "oh let me grab the flour tortillas" ugh!!!!!!! We just discussed this, so I said no dear grab the corn, and throw the flour out, everyone is having the corn. LMAO!!!! I love him dearly, but sometimes I just stare at him blinking....wondering.... smiling......how many marbles might be left up there!!!! :blink: Its just a major adjustment for everyone at first, I don't think anyone is to blame....

Adelle Enthusiast

Hey so first I wanna say *hugs* cause I know ur struggle. We're going gluten free cause I can't seem to get ryan (my hubby) to clean the counter! Oh well, I do the grocery shopping, he's going gluten free wether he knows it or not!

Second, are u going to the support group in salem? I just found out, it's every 3rd saturday (that's tomorrow) at 5125 skyline rd (skyline at keubler) room #3. I've never been, but I'm gonna go tmw to try it out. (I have a mohawk, if ur there u'll probably recognize me) :).

Hang in there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest ~jules~
Hey so first I wanna say *hugs* cause I know ur struggle. We're going gluten free cause I can't seem to get ryan (my hubby) to clean the counter! Oh well, I do the grocery shopping, he's going gluten free wether he knows it or not!

Second, are u going to the support group in salem? I just found out, it's every 3rd saturday (that's tomorrow) at 5125 skyline rd (skyline at keubler) room #3. I've never been, but I'm gonna go tmw to try it out. (I have a mohawk, if ur there u'll probably recognize me) :).

Hang in there.

Theres a group, heck ya I want to go! To meet another living breathing celiac would be really nice, sometimes I feel like a freek in my own house! Is it in that Doctors Clinic on the corner? I can't go to the one tomorrow we have plans with friends I won't be able to get out of, but if you could let me know what building, or a phone number that would be wonderful! :D Thats a pretty good location also, I live out south. Thanks so much...Eh, well I never had the mohawk, but when I was 21 it was purple punky color....he he.... :P Maybe I'll see you at the next one, and thanks again...

Nooner Newbie
:blink: Its just a major adjustment for everyone at first, I don't think anyone is to blame....

Isn't that the truth! We all make mistakes, and it takes a while to learn new habits.

Congrats on getting your house gluten free. That will really help. Your husband might need some extra assurance right now that this is hard now, but it will get easier and will all be worth it. Tell him often how much you appreciate his help and support. Positive reinforcement does wonders for all of us!

~Li

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,987
    • Most Online (within 30 mins)
      7,748

    Paula Burlando
    Newest Member
    Paula Burlando
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.