Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Day Breast Cancer Walk


SofiEmiMom

Recommended Posts

SofiEmiMom Enthusiast

Hello! I wasn't sure where to post this. But...has anyone accomplished the 3 day breast cancer walk (60 miles)? I am interested in doing it, but I wasn't sure how it would work with the food issues. I was at a cheering station last month for it and was very inspired, and talked to some women who walked it and they said they are fed all day and you have to stay at a camp for the 3 days. Just wondering if anyone here has done it and how you managed it with the gluten-free diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hsd1203 Newbie

I did 2 of their events pre-dx... from what I remember, there is nothing provided that you'd be able to eat, BUT there were some people that had their families bring them food into the camp for dinner every night. You could probably pack breakfast stuff in your bags... lunch might be tricky on the walk during the day, but you could either bring a pack with you or have someone cheering you along the way bring some food too.

There are some ppl who question their operating costs for these events, but having done them, I think that they have been some of the most inspiring events of my life, so I think it would be worth figuring out the food issue.

best wishes, h

  • 1 year later...
home-based-mom Contributor

I am resurrecting this old thread because I was thinking of doing this. It just so happens that the timing coincides with my 60th birthday and I thought it would be a good way to mark that milestone.

HOWEVER, they don't seem to offer any food other than regular and vegetarian, and the website said you can't have people coming into camp and there is no way I could haul 3 day's worth of food around. I'm not even sure I could walk that far! :o

Anyway, I just wondered if there was more current info from anyone about this event.

Thanks!

  • 1 month later...
uvm87 Newbie

Hi! I have done 3 3-day walks so I hopefully can answer your questions. First of all, the 3 Day walk is a truly amazing experience and I highly recommend you go. Everyone I know who has done it feels that it is an experience that can't be put into words. That being said, I just got my test results back for Celiac and am waiting to get a biopsy so I wasn't looking for Gluten-Free food when I walked.

There will always be something you can eat at the rest stops--oranges or bananas and peanut butter. The rest of the stuff is usually has gluten...pretzels, graham crackers, potato chips,... As for breakfast, I think there were always eggs and bacon and then stuff with gluten. Lunch is usually a sandwich, chips, piece of fruit and cookie. But, I would call the coaches and tell them your situation and I think they will do what they can to accomodate. One suggestion might even be that you pack your own lunch and they could bring it to the lunch stop for you.

As far as visitors, that really isn't true. They will make exceptions and if you speak to your coach beforehand, they probably will give you a guest pass for family members.

I hope that answered your questions. The coaches are really wonderful and they accomodate many people with health issues (going through chemo, etc) so I would give them a call. You probably will do many more after your first walk. Let me know if you have other questions.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,386
    • Most Online (within 30 mins)
      7,748

    TByrd
    Newest Member
    TByrd
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.