Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Day Breast Cancer Walk


SofiEmiMom

Recommended Posts

SofiEmiMom Enthusiast

Hello! I wasn't sure where to post this. But...has anyone accomplished the 3 day breast cancer walk (60 miles)? I am interested in doing it, but I wasn't sure how it would work with the food issues. I was at a cheering station last month for it and was very inspired, and talked to some women who walked it and they said they are fed all day and you have to stay at a camp for the 3 days. Just wondering if anyone here has done it and how you managed it with the gluten-free diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hsd1203 Newbie

I did 2 of their events pre-dx... from what I remember, there is nothing provided that you'd be able to eat, BUT there were some people that had their families bring them food into the camp for dinner every night. You could probably pack breakfast stuff in your bags... lunch might be tricky on the walk during the day, but you could either bring a pack with you or have someone cheering you along the way bring some food too.

There are some ppl who question their operating costs for these events, but having done them, I think that they have been some of the most inspiring events of my life, so I think it would be worth figuring out the food issue.

best wishes, h

  • 1 year later...
home-based-mom Contributor

I am resurrecting this old thread because I was thinking of doing this. It just so happens that the timing coincides with my 60th birthday and I thought it would be a good way to mark that milestone.

HOWEVER, they don't seem to offer any food other than regular and vegetarian, and the website said you can't have people coming into camp and there is no way I could haul 3 day's worth of food around. I'm not even sure I could walk that far! :o

Anyway, I just wondered if there was more current info from anyone about this event.

Thanks!

  • 1 month later...
uvm87 Newbie

Hi! I have done 3 3-day walks so I hopefully can answer your questions. First of all, the 3 Day walk is a truly amazing experience and I highly recommend you go. Everyone I know who has done it feels that it is an experience that can't be put into words. That being said, I just got my test results back for Celiac and am waiting to get a biopsy so I wasn't looking for Gluten-Free food when I walked.

There will always be something you can eat at the rest stops--oranges or bananas and peanut butter. The rest of the stuff is usually has gluten...pretzels, graham crackers, potato chips,... As for breakfast, I think there were always eggs and bacon and then stuff with gluten. Lunch is usually a sandwich, chips, piece of fruit and cookie. But, I would call the coaches and tell them your situation and I think they will do what they can to accomodate. One suggestion might even be that you pack your own lunch and they could bring it to the lunch stop for you.

As far as visitors, that really isn't true. They will make exceptions and if you speak to your coach beforehand, they probably will give you a guest pass for family members.

I hope that answered your questions. The coaches are really wonderful and they accomodate many people with health issues (going through chemo, etc) so I would give them a call. You probably will do many more after your first walk. Let me know if you have other questions.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,436
    • Most Online (within 30 mins)
      7,748

    Vivien Armstrong
    Newest Member
    Vivien Armstrong
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.