Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Day Breast Cancer Walk


SofiEmiMom

Recommended Posts

SofiEmiMom Enthusiast

Hello! I wasn't sure where to post this. But...has anyone accomplished the 3 day breast cancer walk (60 miles)? I am interested in doing it, but I wasn't sure how it would work with the food issues. I was at a cheering station last month for it and was very inspired, and talked to some women who walked it and they said they are fed all day and you have to stay at a camp for the 3 days. Just wondering if anyone here has done it and how you managed it with the gluten-free diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hsd1203 Newbie

I did 2 of their events pre-dx... from what I remember, there is nothing provided that you'd be able to eat, BUT there were some people that had their families bring them food into the camp for dinner every night. You could probably pack breakfast stuff in your bags... lunch might be tricky on the walk during the day, but you could either bring a pack with you or have someone cheering you along the way bring some food too.

There are some ppl who question their operating costs for these events, but having done them, I think that they have been some of the most inspiring events of my life, so I think it would be worth figuring out the food issue.

best wishes, h

  • 1 year later...
home-based-mom Contributor

I am resurrecting this old thread because I was thinking of doing this. It just so happens that the timing coincides with my 60th birthday and I thought it would be a good way to mark that milestone.

HOWEVER, they don't seem to offer any food other than regular and vegetarian, and the website said you can't have people coming into camp and there is no way I could haul 3 day's worth of food around. I'm not even sure I could walk that far! :o

Anyway, I just wondered if there was more current info from anyone about this event.

Thanks!

  • 1 month later...
uvm87 Newbie

Hi! I have done 3 3-day walks so I hopefully can answer your questions. First of all, the 3 Day walk is a truly amazing experience and I highly recommend you go. Everyone I know who has done it feels that it is an experience that can't be put into words. That being said, I just got my test results back for Celiac and am waiting to get a biopsy so I wasn't looking for Gluten-Free food when I walked.

There will always be something you can eat at the rest stops--oranges or bananas and peanut butter. The rest of the stuff is usually has gluten...pretzels, graham crackers, potato chips,... As for breakfast, I think there were always eggs and bacon and then stuff with gluten. Lunch is usually a sandwich, chips, piece of fruit and cookie. But, I would call the coaches and tell them your situation and I think they will do what they can to accomodate. One suggestion might even be that you pack your own lunch and they could bring it to the lunch stop for you.

As far as visitors, that really isn't true. They will make exceptions and if you speak to your coach beforehand, they probably will give you a guest pass for family members.

I hope that answered your questions. The coaches are really wonderful and they accomodate many people with health issues (going through chemo, etc) so I would give them a call. You probably will do many more after your first walk. Let me know if you have other questions.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,859
    • Most Online (within 30 mins)
      7,748

    Santa Don
    Newest Member
    Santa Don
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.