Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Contacting Companies


bmzob

Recommended Posts

bmzob Apprentice

I'm a newly diagnosed Celiac. Since finding out I went through my pantry and decided to contact companies to see if their products were gluten-free. Some of the companies websites were informative while others I had to email. Most of the companies wrote back telling me their labels are the best place to look. but most of these companies have questionable ingredients and there is nothing next to them to tell you what it is derived from. also i though wheat was the only allergen in the top eight that has to be included. so for us what about the rye, barley, etc? How is the label the best place to look if it does not include these things? Any tips for label reading? Thanks.

Britni


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

With the new labeling laws only Wheat will be listed........rye, barley, malt is not required.

So if a product is wheat free, it may not be gluten free.

On this site on the "front page", there is a safe, and forgidden list. That may be helpful to you.

Kraft, Hormel are good "listing" companies.

Sorry this is so brief, but got to go. Others will be here soon.

Welcome to Celiacland and some very helpful peops.

Lisa

Guest nini

you might want to check out my Newbie Survival Kit, it could help answer a lot of your questions, including lists of safe foods.

If you click on the link in my signature below for my web page, at the bottom of my web page you will find a link to download the Newbie Survival Kit. Let me know if you have any trouble with that!

jerseyangel Proficient

Hi Britni--welcome! :)

The usual answer that I've gotten from a mainstream company is that "any gluten ingredients will be listed". If they say this, all you need to do is read the label.

If they out and out refuse to answer your questions about gluten (which has never happened to me), I wouldn't use the product.

I've been at this for over a year, and with the exception of the specialty companies, every company I've contacted has given me a satisfactory answer. Then, it's up to us to decide if the product is safe. :)

Rikki Tikki Explorer

Hi Britni and welcome

The labels have always been a source of confusion to me. I know Kraft will list if their products have anything in them from grains but beyond that I find it very confusing. If you follow nini's directions you will be able to access a list of safe and not safe foods. Generally stay away from processed foods, look for distilled vinegars and the like.

Glad to have you. Remember also to be cautious of medication as they sometimes use gluten to bind their ingredients.

myserenityprayer Explorer
you might want to check out my Newbie Survival Kit, it could help answer a lot of your questions, including lists of safe foods.

If you click on the link in my signature below for my web page, at the bottom of my web page you will find a link to download the Newbie Survival Kit. Let me know if you have any trouble with that!

by the way....i loved your bewbie kit. thank you!! its on my desktop and will be forever. i also emailed it to my mom so she can stop calling me every 2 seconds about a gluten-free question!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.