Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Deliberate Food Risk Taking


Kaycee

Recommended Posts

Kaycee Collaborator

I was a bit silly last night, and pushed the boundaries with food way too far. I knew when I ordered the chips, that there was a chance of a reaction, but I was prepared to take that risk.

What I want to know is how far do you push the boundaries with food, and what is your weakness?

Mine last night was chips from the fish and chip shop and a steak fried rice, minus the soy sauce. Chips are my weakness, always have been. But I think I will have to reiveiw that situation, and redraw my food boundaries

I know I will never eat something that is labelled as having been prepared on the same machinery as gluten containing products, and I will never eat anything labelled as containing low amounts of gluten. I will not risk any lollies and chocolate unless I know for sure they are fine. So why would I purposely eat chips which are more than likely cooked in the same fryer as battered food? Is it just the craving for the product, which I think it probably is. On average I might have chips once a month, and have never reacted like I did last night, so I think my hot chip eating days from the takeaways days are all but over. It could've been the rice dish, having been cooked on a uncleaned pan. Usually I order my rice dish, minus chips early in the day, and that has worked before, as I tend to think, the dish will be clean. Well it better had be. I am not used to demanding clean pans etc etc. I think this is just a reflection of my meek nature. I wish I was a tiger!

I will still cook oven fries, but it is just the convenience of someone else cooking my meal that I will miss. I think I am mourning the fact that I can't even enjoy a nice takeaway.

Catherine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mtndog Collaborator

It's so hard. What is considered risk-taking for those of us with intolerances is such a joke compared to others. I guess mine would be eating something that someone else has prepared (except for two or three people who REALLY know the diet and CC issues in my life) in a social situation because I feel "bad".

The other is allowing myself to get SO hungry that I'm willing to do this. :angry:

ravenwoodglass Mentor

The biggest risk I take is eating Gortons Shrimp Temptations, the scampi and the lemon pepper. I have called the company and it is processed in a wheat facility even though it is gluten-free, so far so good. I know I will be sorry one day but they are sooooo good. I've learned the hard way not to trust anything I don't cook myself so I guess I am not to adventurous.

Mango04 Enthusiast

Chips (I mean french fries!!! hehe) are my weakness as well. A few weeks ago I was out having drinks with friends and they just kept begging me to have some of their fries. So I did, and then I was really mad at myself even though I didn't get sick. Alcohol and fries must be like the world's most unhealthy combo, despite any gluten risks haha

I also recently ate some raw cashews that said they may contain traces of dairy and gluten. That was NOT a good idea. I was hiking in the mountains watching everyone else eat heaps of food and I didn't see that dang warning on the package until I got there. hehe okay I really need to be more careful....

Jestgar Rising Star

I often eat stuff processed in a wheat facility or that may have been fried in a communal fryer. I just never eat very much and never twice in the same day. I do skip food that I know was fried in a communal fryer.

eleep Enthusiast

I'd have to agree about having other people cook for me being my biggest risk right now. Although, eating dairy right now is kind of a risk for me -- I've been reacting less and less to lactose when I do eat it, so I've been more likely to risk a tiny bit of hard cheese here and there over the past few weeks -- the last time, however, I paid for it with a night of sleeplessness.

Yipes -- Mango -- did you have a reaction in the woods? Having a reaction while I'm backpacking is one of my worst nightmare scenarios. Although, ironically, I think that the sustained exercise of backpacking kept my reaction symptoms in the past down to a minimum -- even though I might have eaten whole wheat pita for lunch, I'd really mostly just feel a little worn down later in the afternoon.

eleep

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,831
    • Most Online (within 30 mins)
      7,748

    ATownCeliac
    Newest Member
    ATownCeliac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.