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Anyone Else In Central Upstate Ny?

TriticusToxicum

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TriticusToxicum Explorer
TriticusToxicum
Posted

Just curious. I know of 2 other individuals w/ Celiac's in my area. One of them is my sister! I figure there are others out there! Come on in!

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lorka150 Collaborator
lorka150
Posted

How about near Western New York across the Canadian border? It's the best I can do. :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Hello from the Lake Trout Capital of the World, or so the sign says <_<:D I live on Seneca Lake midpoint between Rochester and Syracuse. Your near Syracuse right?

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
Hello from the Lake Trout Capital of the World, or so the sign says <_<:D I live on Seneca Lake midpoint between Rochester and Syracuse. Your near Syracuse right?

Actually, almost exactly 1/2 way betweeen Albany and Binghamton on I-88. We used to go out to Keuka Lake (Penn Yan) to a cousin's cottage as a summer getaway when I was a kid. Nice area out there. I LOVE Bully Hill Wine!

ravenwoodglass Mentor
ravenwoodglass
Posted
Actually, almost exactly 1/2 way betweeen Albany and Binghamton on I-88. We used to go out to Keuka Lake (Penn Yan) to a cousin's cottage as a summer getaway when I was a kid. Nice area out there. I LOVE Bully Hill Wine!

I think I was thinking of Oneida, some of the Indian names get confusing.

Bully Hill is great as a number of other area wines. We are near Naples and they have a wonderful Grape festival every year. I have been told the Italians found it to be much like Italy when they came here and the climate is great for the grape. If I am ever able to take day trips again I would like to do a wine tour myself, there are trains that have recently started runs in season with blues music that sound like fun. I've lived all over the country and upstate NY is one of the prettiest and cheapest places I have lived, as long as you don't mind the NY taxes. Hard to make non NYers understand sometimes that all of NY is not NYC.

Where was your picture taken? It is really pretty, is it the Catskills?

jerseyangel Proficient
jerseyangel
Posted

My husband and I are both from Syracuse--our families are still there. We used to have family picnics at Keuka Lake years ago--my mom's family also has people in Owego and Auburn.

Ravenwood--you're so right about how beautiful it is up there--especially this time of year.

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
I think I was thinking of Oneida, some of the Indian names get confusing.

Bully Hill is great as a number of other area wines. We are near Naples and they have a wonderful Grape festival every year. I have been told the Italians found it to be much like Italy when they came here and the climate is great for the grape. If I am ever able to take day trips again I would like to do a wine tour myself, there are trains that have recently started runs in season with blues music that sound like fun. I've lived all over the country and upstate NY is one of the prettiest and cheapest places I have lived, as long as you don't mind the NY taxes. Hard to make non NYers understand sometimes that all of NY is not NYC.

Where was your picture taken? It is really pretty, is it the Catskills?

I've been to the grapefest in Naples...never knew you could/would make a grape pie!

NY/NYC - uh huh!

Pic is from the Catskills last year. I prefer the Adirondacks (call me a mountain snob! :lol: ), but the Catskills are closer (and easier on the knees!).

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jerseyangel Proficient
jerseyangel
Posted

This is kind of off the topic--but it happened in Syracuse :D And has to do with grapes....

My ex-sister in law <_< once made a "blueberry" pie and brought it to a family dinner. At the time, she was new to the group, so we were all on our best behavior. Anyway, we begin to eat the pie, and crunched into all these little seeds--unexpected because we were thinking blueberries! And you could tell no one wanted to say anything!!

The nut had mistakenly bought grapes instead :blink: --it actually had a good taste, but that texture left a lot to be desired :lol:

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
This is kind of off the topic--but it happened in Syracuse :D And has to do with grapes....

My ex-sister in law <_< once made a "blueberry" pie and brought it to a family dinner. At the time, she was new to the group, so we were all on our best behavior. Anyway, we begin to eat the pie, and crunched into all these little seeds--unexpected because we were thinking blueberries! And you could tell no one wanted to say anything!!

The nut had mistakenly bought grapes instead :blink: --it actually had a good taste, but that texture left a lot to be desired :lol:

One of my ex-girlfiends (a nut herself) pulled a similar stunt with cherries in a cherry pie. She didn't pit them...Ouch

jerseyangel Proficient
jerseyangel
Posted
One of my ex-girlfiends (a nut herself) pulled a similar stunt with cherries in a cherry pie. She didn't pit them...Ouch

Ouch is right :lol:

babygirl1234 Rookie
babygirl1234
Posted

buffalo ny here

ravenwoodglass Mentor
ravenwoodglass
Posted
buffalo ny here

The land of the snow. It must be nice to be so close to the falls. You are new, let me take this chance to welcome you. You have found a great place for info with a lot of very nice folks.

lorka150 Collaborator
lorka150
Posted

the falls are wonderful until you live there :P

jerseyangel Proficient
jerseyangel
Posted

We went to the Falls on our honeymoon! (I know, very original! :lol: )

lorka150 Collaborator
lorka150
Posted

i love niagara on the lake, but can do without the falls. some 'hidden' parts are nice. i live on the canadian side, though. the american side, in my opinion, is really grungy. although i am sure there are hidden parts on there i dont know, too.

Anteau25 Apprentice
Anteau25
Posted
buffalo ny here

Hey, I'm from Buffalo too!!

babygirl1234 Rookie
babygirl1234
Posted

cool :) ive been gluten-free since i was 16

utopia Newbie
utopia
Posted

Hello all, Im new to all this, and wanted to post a note, just to say hello. Im living in upstate ny, Seneca Falls area... between Rochester and Syracuse... Im excited 'cause after years of symptoms, I finally found a doctor who would do more than tell me to get some fiber and go away... The bloodwork is not in yet, but dr. seems to believe that I have celiac disease... soooo, at least I have a diagnosis....maybe...YEAH!!! Thats half the battle... Now im off to get some gluten free recipes... and just in time for the Hollidays...This is going to be interesting...

Peace and love to all -

jerseyangel Proficient
jerseyangel
Posted
Hello all, Im new to all this, and wanted to post a note, just to say hello. Im living in upstate ny, Seneca Falls area... between Rochester and Syracuse... Im excited 'cause after years of symptoms, I finally found a doctor who would do more than tell me to get some fiber and go away... The bloodwork is not in yet, but dr. seems to believe that I have celiac disease... soooo, at least I have a diagnosis....maybe...YEAH!!! Thats half the battle... Now im off to get some gluten free recipes... and just in time for the Hollidays...This is going to be interesting...

Peace and love to all -

Hi and welcome to the board :D Always great to meet a fellow Central New Yorker B)

I'm glad you found a doctor who will listen and work with you--you're right, that's half the battle right there! Yes, read up on the recipes and the products forums--lots of great info there. Good luck on the tests, and feel free to post with any questions you might have. Last year was my first gluten-free, so I know that the holidays can be successfully done on the diet.

Let us know how your tests come out :)

Canadian Karen Community Regular
Canadian Karen
Posted

Don't know NY very well, I am originally from Toronto, but now live about 1 hr east of Toronto. The only time I have been to NY is when I played baseball. We used to play tournaments on the weekend, and after playing 3 games on a Saturday, we would go home, shower and change and then drive down to Buffalo to party for the night at a place called "The Library". We had designated drivers so the rest of us could have a blast. We would get home around 3 a.m. and be up at 6:00 a.m. to play a 7:00 a.m. game!!!! Ahhhhh, those were the days!

The only other thing I am aware of in NY is my niece goes to university there, in Ithaca, NY. Anyone near there?

Hugs.

Karen

Anteau25 Apprentice
Anteau25
Posted
cool :) ive been gluten-free since i was 16

Hey. Did you lose power from the snow storm? I lost it Thursday night and just got it back on today!!

babygirl1234 Rookie
babygirl1234
Posted

yes i did got it back on sunday lost it thursday night

AmyMarie Newbie
AmyMarie
Posted

I'm live in upstate, Saratoga NY. About 30 min north of Albany.

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
I'm live in upstate, Saratoga NY. About 30 min north of Albany.

Welcome!

That's a great area. I used to live in Albany - absolutely LOVE hiking in the Adirondacks!

  • 1 month later...
jcgirl Apprentice
jcgirl
Posted

Hi all, I am from Conklin, NY. Did anyone else get hit by the June flood. Boy it is hard being gluten-free in a FEMA trailer. Major break out of DH going on and it is miserable. Almost back in the house though

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
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