Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else In Central Upstate Ny?

TriticusToxicum

Recommended Posts

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
Hi all, I am from Conklin, NY. Did anyone else get hit by the June flood. Boy it is hard being gluten-free in a FEMA trailer. Major break out of DH going on and it is miserable. Almost back in the house though

I'm from Oneonta, up the Susquehanna from you. I didn't get flooded out of my house, but the town of Oneonta and surrounding area was hammered. Much of the city was under water for the better part of a week. The sewage treatment plant was underwater and nonfunctioning until September (sorry about the raw sewage dumped into the river :ph34r: ) Many of the roads are still showing some damage from the flood.

I hope your situation turns around for you very soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jcgirl Apprentice
jcgirl
Posted
I'm from Oneonta, up the Susquehanna from you. I didn't get flooded out of my house, but the town of Oneonta and surrounding area was hammered. Much of the city was under water for the better part of a week. The sewage treatment plant was underwater and nonfunctioning until September (sorry about the raw sewage dumped into the river :ph34r: ) Many of the roads are still showing some damage from the flood.

I hope your situation turns around for you very soon.

'Willi Wonka Chocolate River' as my 13 year old liked to call it has cleared up and behaving itself for the most part. Gave us a scare a couple times though when it creeped back up the bank. Things are finally moving along with a new crew working on the house. I will even have my very own gluten free kitchen pantry cabinet. With 4 kids it is hard to keep them out of my gluten-free snacks and especially the fruity pebbles.

  • 3 months later...
MegNY Newbie
MegNY
Posted

I'm from Buffalo too!

CanadianKaren... The Library -- good times!

--Meg

  • 3 weeks later...
SocietyInDenial Newbie
SocietyInDenial
Posted

I'm from Albany!

And, does anyone have information on support groups around here? I know that there is one at St. Peter's Hospital but they only meet a few times a year, and I would love to go to a celiac disease group weekly/monthly. Maybe AmyMarie? Any in Saratoga?

jacqui Apprentice
jacqui
Posted
I've been to the grapefest in Naples...never knew you could/would make a grape pie!

NY/NYC - uh huh!

Pic is from the Catskills last year. I prefer the Adirondacks (call me a mountain snob! :lol: ), but the Catskills are closer (and easier on the knees!).

I was for the Bronx and really grew up in Greenwood Lake NY (on the Jersey border about 50 min. northwest of the city), a small country town. I absolutely know what you guys mean about NY/NYC, I moved to California in '89 - WOW, I just realized how long I have been living out here - yikes :huh:

People were so absolutely rude once they heard me talk, granted I did have a very strong Bronx accent, but they assumed I was what everyone stereo types NYC as - Honestly I can't remeber what I wanted to say/word I wanted to use.

But then on the other hand I thought of California as palm trees, beaches and the ocean, boy did I have a rude awakening when I moved in with my brother in Union City California!! I hated it here for the first year!!

jacqui Apprentice
jacqui
Posted
I'm from Albany!

And, does anyone have information on support groups around here? I know that there is one at St. Peter's Hospital but they only meet a few times a year, and I would love to go to a celiac disease group weekly/monthly. Maybe AmyMarie? Any in Saratoga?

Hi there,

My sister lives downstate and has celiac disease, newly dx'd. I was 1st last April and she was in denial until mid-January 2007..

Anyway, my point is she may be moving up to the Albany area by this summer.

Have you called GIG or Celiac Sprue Assoc.? Their websites are where I found our support group.

powderprincess Rookie
powderprincess
Posted

Hi Everyone,

I am not in Upstate anymore but I loved reading this post. I went to school at Syracuse and LOVED it there. I worked at Song Mountain in Tully my senior year. Clearly the best job I've ever had (alright, most fun job anyway). I have family and friends in a lot of the places you mentioned :)

Just popping in to say "hey" and I love NY.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 years later...
Kre8sioN Newbie
Kre8sioN
Posted

Newburgh, Ny (town of) new here, adjusting

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748
    Wilson1984
    Newest Member
    Wilson1984
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.