Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Get Worse As The Day Goes On?


Terch

Recommended Posts

Terch Apprentice

I find that I am pretty good in the morning, stomach, energy etc. but as the day goes it gets worse. It doesn't seem to matter what I eat for dinner even plain white rice I get gassy and gurgling and just plain uncomfortable.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

That is true if I don't watch my carb/fat/protein ratios, as I am somewhat hypoglycemic. Otherwise, I'm fine. Especially if I get regular exercise. But if I'm not careful about how what I eat will affect my blood sugar, it can be "bad". :P

Carriefaith Enthusiast

Around the time when I was being diagnosed with celiac disease, I would get really sick (D) in the morning and not have many more stomach problems until dinner. Then I would get explosive gas and severe bloating. This got better with time on the gluten-free diet.

Kody Rookie

I pretty much feel the same all day, headaches and all... until later on at night is when I feel my best, tired and can't sleep, but able to focus. Hence the reason that I do all my homework late at night.

spunky Contributor

I always thought my symptoms were just crazy. I usually didn't/don't do too bad in the mornings, but I could tell just how sick I'd be by the end of the day just by going on what time it would all start. If there were rumblings and howlings sounding by 10:00 a.m., I knew I was in for one heck of a time. IF they didn't start until 2:30 or 3:00, I knew it was just a regular bad day, and by bedtime I would be a mess of a human being, but it was okay because I'd sleep it off and be better by morning. Eventually the good mornings got shorter and shorter for me, and the sick afternoons and evenings became what my life was all about. I never went to any doctors or got any official diagnosis of anything, but just put myself on a gluten-free diet starting in February, 'o6, to see what would happen (and out of desperation too!!!!) and now I never have any problems before noon, which means they are milder than ever. For about one whole month now, MOST days I have very few problems. I've had one day that I thought was perfectly normal, no howling, no gas, no excessive bathroom visits...most of my days seem to be leaning more and more in that direction now. My biggest problem at this point is gassiness by the end of the day. I rarely have the grumbling, growling, pain, or need for multiple restroom visits anymore. I'm 53, believe I've had subtle hints of something going on my entire life, but symtpoms worse and worse for the past 10 years or more. I feel I'm healing very rapidly, from what I've seen and read. I am extremely cautious about everything I eat, where it comes from, etc. I have eaten out only two times since February, both times in a big buffet in which the salad bar is off away from the rest of the stuff (Golden Corral Buffet). I ate only salad and fruit. I took my own bottle of gluten-free (and I'm also dairy-free) salad dressing along.

Terch Apprentice

I was wondering when you all started to feel better after going gluten free? I have been gluten free for two weeks and see my doctor in two weeks. I am not noticing any improvement yet, maybe a few good days the first week and that's it. I also have a lot of upper gi discomfort, ie chest pain and tightness and feeling very full or very hungry even whenI know I am not. As well as the lower gi discomfort. Not so much with the D but just trying to get comfortable and pass gas. With the upper I burp like a madwomen, it's horrid.

[

Yenni Enthusiast
Around the time when I was being diagnosed with celiac disease, I would get really sick (D) in the morning and not have many more stomach problems until dinner. Then I would get explosive gas and severe bloating. This got better with time on the gluten-free diet.

That is exactly the way it is for me. Really bad in the morning and then slowly get better as the days goes by. Then after dinner I get bloated and icky feeling again. The evening thing is better now when I am off gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Drama-Queen Rookie

I always find that my energy level is great in the morning, and then by the end of the day I am toast. This is why I try to plan my day accordingly and get to bed early. It makes it hard when you are a student and can't do late night things, but not being a zombie in class is better. I also find that my pain gets worse as the day goes on. Mornings are great for having less pain and stiffness. I usually find that a cup of ginger tea in the afternoon keeps my stomach happy and helps me feel happy too. Maybe you should try ginger tea? Find one that is just ginger shavings, with no flavor additives. It is a natural stomach soother and helps your digestion. Whatever you do, DO NOT drink peppermint tea, it actually irritates your stomach. Other than that, Pain, stiffness, and lack of energy just comes with the territory. It will get better with time. I promise, but your stomach is always going to be finicky until you heal more. Of course, everytime you get glutened it sets you back on the healing process, but that is inevitable, unless you live in a bubble and never go outside it. ^_^

I was wondering when you all started to feel better after going gluten free? I have been gluten free for two weeks and see my doctor in two weeks. I am not noticing any improvement yet, maybe a few good days the first week and that's it. I also have a lot of upper gi discomfort, ie chest pain and tightness and feeling very full or very hungry even whenI know I am not. As well as the lower gi discomfort. Not so much with the D but just trying to get comfortable and pass gas. With the upper I burp like a madwomen, it's horrid.

[

It takes awhile! Give yourself time. If you think about it your intestine has been really badly damaged and it takes time to heal. It has been about 1 and 3/4 months for me and I am still not "perfect" or back to normal. Just take care of yourself. Take gluten-free vitamins. Drink lots of water. SLEEP! I know it is hard but this is what has helped me improve so much! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.