Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be Celiac


jane p

Recommended Posts

jane p Newbie

Hi,

I am new here and will try and make a long story short. For two years I've had motion sickness type feeling much of the time, continuous ringing in my ears, and my skin burns like someone poured hot water over it. This flares up every few weeks and I usually feel a mild burning.

Have had multiple normal tests-mri brain and spine, chemistry and hematoloty normal (wbc a little low)

He did a gliadin Igg which was 28 and says High next to it (can't find out what normal is) and IgA which was normal (9). my b12 was normal low at 311.

He said everything looked fine. I frequently get nauseated, and have bouts of constipation and diarrhea (sorry to be graphic :)

Should I go further with celiac diagnosis. He said since my gliadin IgA was normal it couldn't be that.

Thanks for any input.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Welcome!

I'm not sure. I was diagnosed by Enterolab, it's another method that I used because I was already gluten-free. I think there are people around here diagnosed because their IgG was high ... I know that's not much help, but I just wanted to welcome you!!

GFBetsy Rookie

Actually, the gliadin tests are the least sensitive of all of the celiac tests. (Only 54% sensitive, according to one of my husband's lab magazines (he's a medical technologist).) So you could have it, even though that test was negative. In fact, the most sensitive of the celiac tests is only 86% sensitive, so even if ALL your tests came back negative, you could still have it.

rinne Apprentice

Have you ever tried a gluten free diet?

Ursa Major Collaborator

I agree with rinne, why don't you try the gluten-free diet to see if it makes you feel better? The diet challenge is a valid diagnostic tool, too. Your symptoms could be caused by celiac disease, and the gluten-free diet is a healthy diet and can't hurt you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,737
    • Most Online (within 30 mins)
      7,748

    Ifeanyi
    Newest Member
    Ifeanyi
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In general with pharmaceutical products cross-contamination is a much lower risk.
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
×
×
  • Create New...