Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Confused

hillary-h

Recommended Posts

hillary-h Rookie
hillary-h
Posted

Hi, My 5 year old daughter goes for her biopsy on january 29, 2004 both blood tests came back posative for celiac disease. Her symptoms are usually diarrhea and vomiting this month she has been doing better but I noticed her stool is almost white and it floats when I told the doctor this I thought I saw some concern on her face is this just another symptom of celiac?

Thanks,

Hillary

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest TESTinME
Guest TESTinME
Posted

Not sure about the symptoms. I would just keep an eye on it and if she is getting better on gluten-free diet not worry about it. If it persists, then explore it further.

Curious why the biopsy is necessary if blood tests are positive. Is she eating a gluten-free already?

seeking-wholeness Explorer
seeking-wholeness
Posted

Hillary, oops, I already replied to you on the endoscopy report thread before I noticed this post, so see that thread for my input! I hope you have a good day!

hillary-h Rookie
hillary-h
Posted
  • Author

Thank you Sarah. No ronni hasnt started the diet yet in fact her doctor hasn't mentioned it to me she said we will discuss it after her biopsy what I have learned about the diet is through the message board. In regards to having a biopsy I thought it was standard procedure to have one after the blood tests. I just hope she'll be okay and Im concerned on the damage thats being done while we wait for the biopsy.

Hillary

DLayman Apprentice
DLayman
Posted

It's only 9 days away so I wouldn't worry about it too much, you could cut down on her intake of gluten but she really needs to be ingest gluten to have the biopsy come out right too.

We go in with our son tommorow for his endoscopy, he has not had blood tests yet.

As far as the stools go.. pale floating stools are a sign of malsorption and fat in the stools. If you want to bulk her up try giving her pediasure if she can keep it down. Otherwise just hang on till the 29th and we are always here to back you up!

Guest TESTinME
Guest TESTinME
Posted
In regards to having a biopsy I thought it was standard procedure to have one after the blood tests. I just hope she'll be okay and Im concerned on the damage thats being done while we wait for the biopsy.

I didn't think it was standard procedure to have a biopsy if the blood test proved positive. I can't see the point of it other then causing more pain for someone not being on a gluten-free diet.

I may be biased though, because I am self diagnosed. I was told I had IBS and went off gluten and began to feel better in 2 weeks....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748
    Chloelouise04
    Newest Member
    Chloelouise04
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.