Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal Pain


Gamecreature

Recommended Posts

Gamecreature Rookie

I've been recently diagnosed as having Celiac. Just a few days prior to testing and diagnosis, I started getting pain in my abdomen. It came and went, in a fashion not consistent with apendicitis. After an intense night of pain in my lower back and right side, I went to see my GP, suspecting a possible kidney stone. Tests and a CT scan showed swollen lymph glands, but nothing else. The episodes of pain have been continuing, so the DR. put me on antibiotics, on the off chance that it's Diverticulitis. I'm about halfway through the antibiotics, but there doesn't seem to be any change in the episodes of pain. Occasionally the discomfort extends to my hip and right leg.

So my question is this - is this something that is likely to go away now that I'm treating my Celiac or is this something else that the Celiac has triggered and will need additional treatment to clear up? Or is this just a result of my poor posture? ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I can't dx your problem, but I can tell you about me.

Several weeks before I finally had to go to the doctor with constant D, I had sharp needle pains in my abdomen and a chronic pain in my lower back, and I was feeling some heat on my lower back as well.

I concluded that it was because of the inflammation in my small intestines, due to Celiac. It took several months for the back ache to subside, but yes, it did and hasn't been back since. ( I had lower back aches for many years).

Another thing you might want to look in to, check and see if your anti-bio is gluten free.

I hope that this was helpful.

Gamecreature Rookie
Another thing you might want to look in to, check and see if your anti-bio is gluten free.

Yes, the thought had occured to me and it appears to be on the gluten-free list. Thanks.

tiffjake Enthusiast
I've been recently diagnosed as having Celiac. Just a few days prior to testing and diagnosis, I started getting pain in my abdomen. It came and went, in a fashion not consistent with apendicitis. After an intense night of pain in my lower back and right side, I went to see my GP, suspecting a possible kidney stone. Tests and a CT scan showed swollen lymph glands, but nothing else. The episodes of pain have been continuing, so the DR. put me on antibiotics, on the off chance that it's Diverticulitis. I'm about halfway through the antibiotics, but there doesn't seem to be any change in the episodes of pain. Occasionally the discomfort extends to my hip and right leg.

So my question is this - is this something that is likely to go away now that I'm treating my Celiac or is this something else that the Celiac has triggered and will need additional treatment to clear up? Or is this just a result of my poor posture? ;)

I agree with Momma Goose, it could be anything. I can't really diagnose you either, but I can say that once I started eating gluten-free my abdominal pain went away for the most part. I am unsure if you are male or female, but if you are female, be sure you are looking at gyn-type stuff.....

Gamecreature Rookie
... if you are female, be sure you are looking at gyn-type stuff.....

It never occured to me to be specific, but suffice it to say that that does not apply to me. :lol:

This has all been very interesting, thanks for the info!

MistressIsis Apprentice

Does it feel like the nerve going down the inside of your right leg is burning, hurting etc?

Mine was my lower back & that nerve, as well as frequent urinating, ok frequent doesn't begin to describe it. Turns out my bowel was so swollen it was pinching that nerve 24/7 as well as constantly pushing on my bladder. ok so being male not quite the same spot for the bladder but...Cutting gluten out completely removed all those problems.

Gamecreature Rookie
Does it feel like the nerve going down the inside of your right leg is burning, hurting etc?

Mine was my lower back & that nerve, as well as frequent urinating, ok frequent doesn't begin to describe it. Turns out my bowel was so swollen it was pinching that nerve 24/7 as well as constantly pushing on my bladder. ok so being male not quite the same spot for the bladder but...Cutting gluten out completely removed all those problems.

Nope, not the bladder, something a little more sensitive. I think the final piece has fallen into place. I'll bring it up with my doctor the next time I see him.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
dekefish Newbie

I am just learning to remove gluten from my diet, after going 2 weeks without it, my lower back, my hips, my posture, all my body pain and abdomen discomfort/bloatedness had subsided almost completely. after making a mistake last week, it all returned in about a day in a half and I'm just starting to feel kind of okay again. It seems like it can have a huge effect on joint pains, and yes, the bloating seemed to hugely effect my lower back+sacrum. I'm still blown away by how crippling the effects can be.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.