Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coping With Gluten Intolerance

BamBam

By BamBam
in Coping with Celiac Disease

Recommended Posts

BamBam Community Regular
BamBam
Posted

Hello, I am new to the boards and fairly new to learning about gluten intolerance. After 15 years of tests and finding nothing that is causing my diarrhea/constipation/abdominal pain etc, a friend of mine suggested that I may be gluten intolerant awhile back. It is fairly easy to give up the big stuff, bread, rolls, crackers, donuts etc. Where I am having problems is all the little extra ingredients in things. For instance tonight I had Kraft 1000 Island Dressing on my salad, was that good or bad? I need a little kick in the pants to know and learn more about this. I have been battling this sickness for close to 15 years, I do feel better when I don't eat wheat, but like I said above, I am not paying enough attention to the little things. Can I get some advice from some of you that know what it is all about? I've read a lot of the posts lately and feel that I am on to something here, that I am truly gluten intolerant. I feel really good when I don't eat wheat. I am also lactose intolerant. So basically what do I need to watch for on condiments or in canned items like soup? I understand the different flours and I even got a Betty Hageman recipe book that has some interesting stuff in it. Please give me some tips on what to watch out for. Thanks in advance for your help. I am looking forward to a healthier and less stressed life!!

BamBam

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Alexolua Explorer
Alexolua
Posted

I'll try to answer your question, and welcome to the boards!

For instance tonight I had Kraft 1000 Island Dressing on my salad, was that good or bad?

I tried looking around on the web, couldn't find anything saying it was gluten and dairy free. So, I'd assume it isn't. Calling the company would be the best way to find out. Someone else here might know too.

I need a little kick in the pants to know and learn more about this.

How's this for a kick. Even if you aren't feeling a reaction for the little stuff, you can still be causing your body damage.

Do you know for sure you are lactose intolerant? Have you been tested, or tried any products to help with lactose intolerance and had them work? I ask, because if you are saying so because you react to milk, it means you could be allergic to a milk protien, like casien, which is different than lactose.

I'm still new to the diet as well, so not an expert. Only been 6 weeks now. But if you want to find products that are Dairy Free and Gluten free, this website can be quite helpful: gfcfdiet.com

Hopefully some of this helped!

tbell48 Newbie
tbell48
Posted

You must read every label of items you pick up. If it says Wheat flour, wheat starch, rye, malt, barley or undistilled vinegar-PUT IT BACK ON THE SHELVE.

If you become used to using a product-recheck it every 3 months, as the manufacturers will change where they get their products.

I don't know if you have a Hy-Vee in your area, but they have a very good list of Gluten-Free foods. I am sure any of the bigger groceries have the same thing. The University of Iowa puts out a booklet of Gluten-Free foods and what to avoid. And contacting the companies always works. I spent days on the computer doing this!

Also contact a health food store in your area-they are always very helpful.

When you are still eating Gluten-you are defeating yourself, and braking down your immune system, which will only lead to trouble down the road for you. My Mother and baby Sister both died from cancer, because they didn't know they had Celiac disease. Hopefully, with my diagnoises I will be able to spare my family, and my generations to come unneeded medical worrys. Since my diagnois, my Daughter and Granddaughter have both tested positive.

Best of luck to you

Theresa

celiac3270 Collaborator
celiac3270
Posted

First step: know what ingredients to avoid. There's a list on the site (thorough list) that tells you what ingredients are bad. Contrary to the impression one might get, gluten isn't just looking at the label to see if it has "wheat", "rye", "barley" or "oats". Here's the list: https://www.celiac.com/st_prod.html?p_prodi...-59104125314.5e....anything that doesn't say "gluten-free" on the package and contains natural or artifical flavors could contain gluten.....therefore, you need to call the company to find out if most mainstream products are gluten-free.

Most important, DO NOT give up--it's difficult at times, but you'll be helping yourself in the long run. Also, DO NOT cheat--the little satisfaction you get from eating a cookie or piece of bread will get you feeling sick and will mush up your intestines -- it's not worth it -- every crumb matters.

You might have celiac disease. If you do have it and do not follow this diet as well as you can, you could end up with malnutrition, osteoporosis, arthritis, and cancers. If you are willing to restrict your diet you could avoid not only the short-term pains, but the long-term complications that could cut years from your life. This disease doesn't require medicines and pills and surgery to deal with.....and it can be dealt with--it's all a matter of the will and desire you have to be healthy.

-celiac3270

BamBam Community Regular
BamBam
Posted
  • Author

Are there companies that make small packages of gluten free dressings and other condiments? Those would be nice to have to take with to restaurants. Last night I ate out, and something was wrong, all bloated and gassy today. Do you know of anything like that out there?

BamBam

scudderkidwell Rookie
scudderkidwell
Posted

Well, you can do what I do. I have a small lunch bag that looks more like a purse that I take with me when I know we're going out to eat. In it I put small containers of my husbands favorite salad dressing, Butter (Lactose Free), a couple of rolls, Ketsup and Mustard if he needs it. To keep things cool, I'll put in a small ice pack. This really comes in handy when we're out and about shopping. I'll also use the lunch bag to pack snack foods. Hope this helps. :D

Wife of a Celiac, Jean

crc0622 Apprentice
crc0622
Posted

BamBam:

Annie's has small packets you can carry in your purse - you can get them at the Gluten Free Trading Company - web site is www.foodforceliacs.com.

A lot of Kraft dressings are gluten-free. Kraft is a company which will always list any gluten source clearly on the label, so you don't have to wonder. If you don't see wheat, barley, rye, oats, then it's okay. Wish more were like that.

Celeste

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rattaway Newbie
rattaway
Posted

Welcome to the board all newbies. I am still a newbie too I think. I also want to add that you should also be wary of Modified food starches. These can sometimes be modified from wheat. Best Wishes, Rian

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.