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Can You Please Help Me?

Serena

By Serena
in Doctors

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Serena Newbie
Serena
Posted

I am Disabled and pregnant and have Celiac Disease. I really need to find a doctor in my area and some support or persons in my area, I have hard time moving around due to fibromyalgia Please help me... I live in Argyle, TX.. Thank you so much.

Serena

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CarlaB Enthusiast
CarlaB
Posted

Welcome. Sorry, I don't live near you, but I thought I'd post to bump this back to the top.

happygirl Collaborator
happygirl
Posted

I know absolutely nothing about TX, I am sorry I can't help. But, here is what I found on the GIG (Gluten Intolerance Group) webpage for support groups in TX. If there is one near you, I am CERTAIN you could call them and they could help refer you somewhere. Even if they aren't but "so" close, they still might be able to help!!!!!!!!!! (www.gluten.net)

TEXAS

Alamo Celiac Gluten Intolerance Group®

Lynn Rainwater, Branch Manager

www.alamoceliac.org

Alamo Celiac Austin

Francie Kelley, Contact

phone: 512-301-2224

email: fkelley@austin.rr.com

Alamo Celiac Corpus Christi

Susan Revier, Contact

phone: 361-855-6810

email: jamesrevier@grandecom.net

Alamo Celiac San Antonio

Anne Barfield, Contact

phone: 210-340-0648

email: annebarfield@satx.rr.com

Clute:

Gulf Coast Celiac and Gluten Intolerance Group®

Cecilia McNeil, Branch Manager

phone: 979-265-0819

email: clmcneil@academicplanet.com

Dallas/Ft. Worth:

North Texas Gluten Intolerance Group®

Betty Barfield, President

phone: 817-577-0212

email: manager@northtexasgig.com

website: www.northtexasgig.com

Plano:

Lone Star Celiac Gluten Intolerance Group®

Sandy Klein, Branch Manager

phone: 972-424-2307

email: sandyklein1@comcast.net

website: www.dfwceliac.org

Wichita Falls:

Texoma Gluten Intolerance Group®

Michelle Squires, Branch Manager

phone: 940-642-5833

email: wfceliac@aol.com

Also...CSA (www.csaceliac.org) has some support groups:

CSA Local Units: Texas

CSA Resource Unit #3002

Raquel L. DeAnda, El Paso

915-533-8794, bonrache2@elp.rr.com

--------------------------------------------------------------------------------

CSA State Coordinator

Janet Y. Rinehart, Houston

281/679-7608, txjanet@swbell.net

--------------------------------------------------------------------------------

CSA Houston Celiac Support Group #25 Click here for this chapter's Website

Gerry & Mary Lu Mase, Houston

713/461-5731, gdmase@houston.rr.com

Janet Y. Rinehart, Houston

281/679-7608, txjanet@swbell.net

--------------------------------------------------------------------------------

CSA West Texas gluten-free Awareness Chapter #32

Pat Gatlin, Midland

432-563-4847, pgatlin@fbc-midland.org

--------------------------------------------------------------------------------

CSA Resource Unit #11-53

Jill Hollywood, Eastland

254/629-2200, jillahollywood@hotmail.com

--------------------------------------------------------------------------------

CSA Resource Unit #2063

Steve O’Connor, Waco

254/399-0472, s88oconnor@sbcglobal.net

--------------------------------------------------------------------------------

CSA Resource Unit #2086

Windy Cannon, Whitehouse

903/871-8213, wlcannon@cox-internet.com

--------------------------------------------------------------------------------

CSA East Texas Celiac Support Group #99

Jennifer Poorman, Longview

903-752-5473, poortexan@netzero.com

Windy Cannon, Whitehouse

903/871-8213, wlcannon@cox.net

--------------------------------------------------------------------------------

CSA Resource Unit #3007 Click here for this chapter's Website

Rebecca Holland, Lubbock

806-798-2366, allamerican1@door.net

--------------------------------------------------------------------------------

CSA Resource Unit #3018

Donna Moseley, Amarillo

806-353-9307, dmoseley66@cox.net

--------------------------------------------------------------------------------

CSA Resource Unit #3023

Becky Zarnowski, San Angelo

325-944-0130, zarnow@verison.net

Also, the Celiac Disease Federation has some support groups: www.celiac.org

Texas

El Paso

Susan Pieper (505) 522-8182 - spieper@huntel.com

Please call around---I hope you can find some assistance! Let us know if there is anything we can do. Take care.

Nooner Newbie
Nooner
Posted

Serena,

I second Laura's suggestion. That's exactly what I did, called support groups to find a referral. The support group leaders are there to help you, and trust me, word gets around as to which physician is good and which one treats you like dirt. You might have to speak to more than group leader. There are two separate organizations within a few miles of me. One referred a doc that is the group's medical advisor. I'm sure he's fine, but before calling him I talked to the other group. They referred a doc who accepts Enterolab results. That's what swayed me to the second doc, and he turned out to be great.

Good luck! You're not too far from Dallas/Ft Worth, right? I'm sure you can find someone good in the area!

~Li

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    • trents
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      By trents · Posted

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      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. Both of these conditions would thrive on carbs and you do say you feel better when you don't eat a lot of carbs. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done? You have had over 1 foot of your small bowel removed by that surgery in 2022 so that would certainly challenge digestion and nutrient absorption.  Edited
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