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Positive Test....skin Symptoms Not Typical

brizzo

By brizzo
in Dermatitis Herpetiformis

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brizzo Contributor
brizzo
Posted

I guess this is more of a venting on my part....but I was diagnosed by enterolab this month. Here's my gripe. I have no intestinal symptoms. I only have DH "like" symptoms on my scalp; NO WHERE ELSE!. Only my scalp. I have been on a gluten-free diet for two months with pretty damn good results. I still have the occasional "blister" here or there. But it has been due to CC at wendys , ignorance about certain alcohol products, and other foods. (still new at this =) I will not take meds. I DO NOT trust 1/2 the meds out there, and refuse to poison my body by taking them.

I guess my question is ....has anyone else heard of someone having DH on the scalp only, or am I just a freak? :ph34r: Just curious. And yes, I tested positive at enterolab. My results are below.

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CarlaB Enthusiast
CarlaB
Posted

I used to have a rash on my scalp that I never had tested for being DH. I asked my doc about the rash (she also practices holistic medicine along with conventional). She said it was from the constant inflammation in my system ... my adrenals were fatigued and unable to come up with the hormones necessary to heal the rash. Now that I'm addressing my adrenal fatigue, the rash is clearing up.

frenchiemama Collaborator
frenchiemama
Posted

I know that it is fairly common to get DH on the scalp. Only on the scalp? Not sure, but everyone is different. DH is always supposed to be symmetric, but I have one spot that isn't (I got it on both hands, both knees, both ankles, but only one elbow). Not typical, but not impossible either.

  • 2 weeks later...
almostnrn Explorer
almostnrn
Posted

I had spots on my scalp until I gave up my beloved Aveda shampoo which was pretty much like liquid gluten, lol. I have not heard of anyone just getting it in one area but then again if I had a nickel for every time a dermatologist told me "you can't get DH there" I'd be a millionaire. Be happy the diet is working and don't press your luck...I have found mine got worse after time.

mouse Enthusiast
mouse
Posted

One of my doctors was telling me that a friend of his in medical school got diagnosed with Celaic Disease and the only thing he had was DH on the scalp and only the scalp. He had no symptoms at all. Just the terrible rash and itching on his scalp.

  • 2 weeks later...
dyankeetoo Newbie
dyankeetoo
Posted

Hi, Brizzo: I'm pretty much a lurker here, but I have to tell you...I've had the scalp problem my entire life, and I'm 59 years old. Only recently developed the blisters all over, and I haven't had the biopsy yet. I'm betting on a positive, though, as I've been gluten free for three months, and I've begun to see a positive difference in my energy level and...HOORAY the constant nausea and stomach aches, running like a crazy person to the jon are gone (except for one instance when I made meatloaf with corn chips and paid dearly). Apparently I'm one of those who can't tolerate corn either.

Do the scalp itchies clear up when you take antibiotics? Mine do, but come right back as soon as I've finished the course. Thank goodness I have thick hair.

Best,

Laurie

  • 3 weeks later...
bwizzle Newbie
bwizzle
Posted

Hey brizzo and anyone else experiencing problems here. I want explain my situation. I am a 22 year old male and have been experiencing scalp "pustules" going on 5 years now. I have been to numerous doctors and had every test done (blood and biopsies) and yet to find a solution. Antibiotics work and when i go off of them, my condition returns. I am seeing an allergist and he bleieves its a food allergy. After doing some research I believe it is DH. I have just started my gluten free diet along with a detox system. I do no really have any other symptoms besides these itchy bumps on my scalp. Also my skin gets really itchy and I was wondering if anyone else experiences this. And the symmetric thing, yes it forms symmetrically only my scalp. I am sick of seeing new doctors and putting antibiotics in my body. I went through college with this plague and i know how hard it is to deal with. I am going to give this diet a shot because i am at the end of the road.

Brad

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